Re: Digest Number 189/finding others

[Guest guest]

Gretchen, I knew I wasnn't the only one because I had family members with CMT

and when I would goo to crippled childrens clinic in Portland, OR the doctors

would talk about comparisons.

However, I find it a constant amoung our new support group members and

people that have finally found literature on CMT and got ahold of my phone

number. They come or call andd they most always say they thought they were

the only ones in the area. They had never met anyone else with CMT. They

find it very soothing to know they aren't alone.

Jeanie

In a message dated 3/6/00 9:32:01 PM Pacific Standard Time, CMTUS (AT) onelist (DOT) com

writes:

<< Message: 8

Date: Mon, 06 Mar 2000 18:14:41 -0800

Subject: finding others

Hi everyone, something I have wondered about - for years I knew no one

with CMT. Not even did I meet anyone at the MDA clinic, as people were

there for other things. Then I found out about a couple of in-print

newsletters, but still never met anyone or knew anyone personally with

CMT. Found one email group and only very recently, did I meet someone

'in person' with CMT. Is this a common story for you? Did anyone think

they were the only ones in the world with CMT? I know I did - for years.

But definitely not anymore!

Gretchen

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