Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 I have a question for the group. My neurologist has diagnosed my " condition " as hereditary demylenating peripheral (poly)neuropathy. From everything I've learned about my condition, it seems that it goes under the heading of CMT or HMSN, both terms seem to be interchangeable to me. Since I applied to Social Security for Disability, I'm wondering how I should refer to my condition? In the paperwork I put in, I wrote what my neurologist diagnosed, then put aka, HMSN or CMT. What does everyone think? Are HMSN and CMT interchangeable terms to describe what we experience? PS, I've been following everyone's comments on SSD with great interest! Since I applied on June 1, 2000 I've heard nothing, except to get a supplemental 6 page form to fill out in mid June from the agency that SS uses here in land to evaluate disability claims, that wanted me to document my daily activities. I also get this mailing list in digest format, so anyone responding to me, it may take me a bit longer to reply. Thanks! Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 << What does everyone think? Are HMSN and CMT interchangeable terms to describe what we experience? >> You need to check. I believe I heard that they know Charot Marie Tooth and have it listed. However, they are interchangeable terms medically. http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html http://www.mdausa.org/disease/cmt.html http://medweb.bham.ac.uk/http/depts/clin_neuro/teaching/tutorials/hmsn/hmsn.ht ml http://www.muscular-dystrophy.org.uk/information/Key%20facts/hmsn.html Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2000 Report Share Posted July 22, 2000 Hello , the demyelenating describes what kind of cmt you have. CMT 1 is demyelenating, while cmt 2 is axonal. This is a descripting what kind of the nerve (the myelin-sheet or the inside of the nerve is affected. Peripheral means that it starts in the arm and feet. A few years ago they thougt it would stop at the elbows or knees but now they know this is not true. What your neurologist meant is that you have cmt or hmsn :-)) Bye, Jim Topper schrieb: > I have a question for the group. My neurologist has diagnosed my > " condition " as hereditary demylenating peripheral (poly)neuropathy. From > everything I've learned about my condition, it seems that it goes under the > heading of CMT or HMSN, both terms seem to be interchangeable to me. Since > I applied to Social Security for Disability, I'm wondering how I should > refer to my condition? In the paperwork I put in, I wrote what my > neurologist diagnosed, then put aka, HMSN or CMT. > > What does everyone think? Are HMSN and CMT interchangeable terms to > describe what we experience? > > PS, I've been following everyone's comments on SSD with great interest! > Since I applied on June 1, 2000 I've heard nothing, except to get a > supplemental 6 page form to fill out in mid June from the agency that SS > uses here in land to evaluate disability claims, that wanted me to > document my daily activities. > > I also get this mailing list in digest format, so anyone responding to > me, it may take me a bit longer to reply. Thanks! > > Jim > > ------------------------------------------------------------------------ > Best friends, most artistic, class clown Find 'em here: > http://click.egroups.com/1/7078/13/_/616793/_/964113768/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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