Re: Intro after the fact

[Guest guest]

Welcome ,

This is Joanie here. I have only been on this list for 2 weeks. A lot of

support!

Intro after the fact

Hi everyone, here from South Carolina. I have been reading and

posting at cmtus for several weeks only and thought I'd tell you a bit

about myself. I am new to the internet and still shy about revealing

personal things about myself online. I had signs of CMT since early

childhood and was finally diagnosed at 20 while attending Physical

Therapy school. Don't know for sure what type I am, probably CMT1A. I

will be 42 this month and live with my husband of 17 years, two

daughters...age 8 and 10 and a cairn terrier named " Rusty " .

I was fortunate to be able to practice PT for 15 happy years and am now

currently a housewife, chef, taxi-driver, volunteer, etc...I STAY BUSY!

I have only had surgeries to straighten out my hammer-toes and walk with

shoe orthotics right now. Finally broke down and got them this winter

and they make such a difference in my gait pattern. Can you read between

the line that I am just a little bit vain!

There are days when I really ponder the what will be's regarding my

level of independence in the future, but most of the time I am quite

positive about my condition and most things, in general. I do beleive in

maintaing the hightest level of fitness I can manage. Fatigue seems to

be more of a problem every year. Having this e-mail group has really

been a source of fullfillment and a blessing for me. I am finding it

informative, fun and it validates so many symptoms, problems and

questions that I have wondered about for years. Thanks for this

opportunity to share. Woodard

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