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FROM GREECE WITH LOVE

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Hello. My name is Dimitrios, 32 years old and I am from Greece. I

diagnosed with CMT type II last April after a biopsy (neuro) and an EMG.

My mother (who died when she was 44 years old because of heart disease)

had CMT. I have two sisters. The older one (38 years old) hasn' t CMT

and the younger one (36 years old) has CMT. We do not know anything

about their children.

The symptoms I have, are pain and burning feelings (down the knees). In

the same area, I can't feel the cold and the hot.

Because of the pain I have two main problems: I can't work and I can't

sleep in the nights. My doctor gave to me some medicines such as

Neurontin and Saroten but the result wasn't what I expected (they

decreased, not disappeared the pain and the burning feeling). So I

stopped them for a while.

Now I am looking for a new beginning (new job).

If there is someone like me with CMT II, i would like to have a

conversation with him/her because i have some questions about food,

drugs, physical exercises, e.c.t.

I also want to give you congratulation about this site. It is very nice

and very helpful to all the CMTers and their families.

Thank you all!

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