Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 DEAR KATHLEEN I AGREE WITH YOUR COMMENTS ON THE SO CALLED PAINLESS CMT. MY DAUGHTER SUFFERS A GREAT DEAL OF PAIN, AND THERE HAS BEEN MANY DOCTOR TELL ME THERE IS NO PAIN ASSOCIATED WITH CMT. WHAT DO THEY KNOW ? THEY ARE NOT THE ONES SUFFERING. I ALSO READ WITH INTEREST THE ARTICLES ON GENETICS. STEPHANIE HAS CMT TYPE 1B AND WE HAVE BEEN TOLD THAT THIS IS A VERY RARE FORM OF THE DISEASE. I HAVE HAD A BLOOD TEST DONE WHICH TESTS THE P0 GENE, TO SEE IF I TOO HAVE THE DISEASE. OR WHETHER THIS IS A MUTATION. LET ME KNOW IF THERE IS ANYONE ELSE OUT THERE WITH CMT TYPE 1B, I WOULD LOVE TO HEAR YOUR COMMENTS. REGARDS JULIE Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.