Re: Welcome Dimetrios

[Guest guest]

Hi -- I have CMT Type 2 and have real problems with pain and

sleeping. I've found several things that help, but don't totally

take away the pain:

1. Ice my feet for about 20 minutes at a time several times

during the evening (always protect your feet by wrapping

the ice well in a towel).

2. Take 50 mg of desyril at bedtime (prescribed by the

doctor.

3. Drink a couple of glasses of tonic water (has quinine in it)

which help leg and foot cramps.

These are just some things that work for me. I'd be glad to hear

of any that you have found to be helpful. Keep up your courage

and best of luck in looking for a job.

nne in Oregon, USA

FROM GREECE WITH LOVE

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>Hello. My name is Dimitrios, 32 years old and I am from Greece. I

>diagnosed with CMT type II last April after a biopsy (neuro) and an EMG.

>

>My mother (who died when she was 44 years old because of heart disease)

>had CMT. I have two sisters. The older one (38 years old) hasn' t CMT

>and the younger one (36 years old) has CMT. We do not know anything

>about their children.

>The symptoms I have, are pain and burning feelings (down the knees). In

>the same area, I can't feel the cold and the hot.

>Because of the pain I have two main problems: I can't work and I can't

>sleep in the nights. My doctor gave to me some medicines such as

>Neurontin and Saroten but the result wasn't what I expected (they

>decreased, not disappeared the pain and the burning feeling). So I

>stopped them for a while.

>Now I am looking for a new beginning (new job).

>If there is someone like me with CMT II, i would like to have a

>conversation with him/her because i have some questions about food,

>drugs, physical exercises, e.c.t.

>I also want to give you congratulation about this site. It is very nice

>and very helpful to all the CMTers and their families.

>Thank you all!

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