Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 In a message dated 1/27/00 5:34:22 PM Pacific Standard Time, juliannefisher@... writes: << Hi -- I have CMT Type 2 and have real problems with pain and sleeping. I've found several things that help, but don't totally take away the pain: >> Bengay helps the burning in feet. jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 In a message dated 1/27/00 5:34:22 PM Pacific Standard Time, juliannefisher@... writes: << Hi -- I have CMT Type 2 and have real problems with pain and sleeping. I've found several things that help, but don't totally take away the pain: >> Bengay helps the burning in feet. jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Hi -- I have CMT Type 2 and have real problems with pain and sleeping. I've found several things that help, but don't totally take away the pain: 1. Ice my feet for about 20 minutes at a time several times during the evening (always protect your feet by wrapping the ice well in a towel). 2. Take 50 mg of desyril at bedtime (prescribed by the doctor. 3. Drink a couple of glasses of tonic water (has quinine in it) which help leg and foot cramps. These are just some things that work for me. I'd be glad to hear of any that you have found to be helpful. Keep up your courage and best of luck in looking for a job. nne in Oregon, USA FROM GREECE WITH LOVE >From: =?iso-8859-7?Q?=D0=E1=F0=E1=E4=EF=EA=F9=F3=F4=DC=EA=E7=F2=20=D0=EF=EB=FD=E2= E9=EF=F2?= polyvios@...> > > > >Hello. My name is Dimitrios, 32 years old and I am from Greece. I >diagnosed with CMT type II last April after a biopsy (neuro) and an EMG. > >My mother (who died when she was 44 years old because of heart disease) >had CMT. I have two sisters. The older one (38 years old) hasn' t CMT >and the younger one (36 years old) has CMT. We do not know anything >about their children. >The symptoms I have, are pain and burning feelings (down the knees). In >the same area, I can't feel the cold and the hot. >Because of the pain I have two main problems: I can't work and I can't >sleep in the nights. My doctor gave to me some medicines such as >Neurontin and Saroten but the result wasn't what I expected (they >decreased, not disappeared the pain and the burning feeling). So I >stopped them for a while. >Now I am looking for a new beginning (new job). >If there is someone like me with CMT II, i would like to have a >conversation with him/her because i have some questions about food, >drugs, physical exercises, e.c.t. >I also want to give you congratulation about this site. It is very nice >and very helpful to all the CMTers and their families. >Thank you all! > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 In a message dated 1/28/00 11:22:19 AM Pacific Standard Time, polyvios@... writes: << HELLOW JACEE THANKS FOR YOUR ANSWER.WHAT IS BENGAY? DIMITRIOS JACEE17@... wrote: > From: JACEE17@... > > In a message dated 1/27/00 5:34:22 PM Pacific Standard Time, > juliannefisher@... writes: > > << Hi -- I have CMT Type 2 and have real problems with pain and > sleeping. I've found several things that help, but don't totally > take away the pain: > >> > Bengay helps the burning in feet. > jenny >> It is a cream. You can order it online at a pharmacy if your regular pharmacys don't carry it. Heck I will mail some to you if you can't find it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2000 Report Share Posted February 2, 2000 HELLO WHAT IS BENGAY? HAVE A GOOD TIME! DIMITRIOS GREECE JACEE17@... wrote: > From: JACEE17@... > > In a message dated 1/27/00 5:34:22 PM Pacific Standard Time, > juliannefisher@... writes: > > << Hi -- I have CMT Type 2 and have real problems with pain and > sleeping. I've found several things that help, but don't totally > take away the pain: > >> > Bengay helps the burning in feet. > jenny > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 HELLO JENNY. WHAT'S YOUR DAY? I SEND YOU THIS MESAGE FOR THE CREAM BENGAY, AGAIN. I ASKED MY DOCTOR ABOUT IT AND HE TOLD ME THAT I CAN' T FIND THIS CREAM IN WHOLE GREECE. HE ALSO TOLD ME THAT IT IS GREAT ABOUT THE BURNING FEELING. COULD YOU POSSIBLY SEND ME SOME (IN ANY WAY)? PLEASE LET ME KNOW. THANKS A LOT. YOURS FAITHFULLY DIMITRIOS GREECE JACEE17@... wrote: > From: JACEE17@... > > In a message dated 1/28/00 11:22:19 AM Pacific Standard Time, > polyvios@... writes: > > << HELLOW JACEE > THANKS FOR YOUR ANSWER.WHAT IS BENGAY? > DIMITRIOS > > JACEE17@... wrote: > > > From: JACEE17@... > > > > In a message dated 1/27/00 5:34:22 PM Pacific Standard Time, > > juliannefisher@... writes: > > > > << Hi -- I have CMT Type 2 and have real problems with pain and > > sleeping. I've found several things that help, but don't totally > > take away the pain: > > >> > > Bengay helps the burning in feet. > > jenny >> > It is a cream. You can order it online at a pharmacy if your regular > pharmacys don't carry it. Heck I will mail some to you if you can't find it. > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
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