Guest guest Posted January 13, 1999 Report Share Posted January 13, 1999 Hi, All...... I received so many nice, warm fuzzies from people in the group in regard to my bad night again last night .........and I really appreciate the thoughtfulness. I wrote that letter not so much to complain about what I was going through, as to take the opportunity to describe to you all how my RLS felt, while I was actually going through it. All of our symptoms are so different, it seems........and it's difficult to describe them if we're not feeling them at the moment. Sometimes, our attacks are different.....not always exactly the same......which makes it harder to describe also. Several people thought what I was experiencing was severe pain......which is not true. There was some pain, but mostly it was an electrical type of feeling....seizure type........deep inside, throbbing, jumping, unbearable kind of feeling......that makes you want to scream. It just brings me to tears sometimes..........much as I hate to admit that. The codeine I take is not for pain.......it is to stop the sensation of the jumpiness from communicating with my brain. It numbs the feelings so that I can lie still and go to sleep again. Several wondered if this was indeed RLS.........absolutely, positively YES. This is my RLS.........twitchy, jumpy, jerky, miserable RLS. Perhaps tonight will be better........sleep well, everyone........ Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 1999 Report Share Posted January 13, 1999 Connie, I can totally relate to your feelings - I've been having the same thing for 2 weeks now - it's driving me crazy. Every night I think it will be different, and it's not. Maybe it's something about the month of January?! I am so angry and frustrated that I'm taking it out on my husband, and may be a single woman before too long! This will pass, for all of us, just have to hang in there for a while. ne, 58, Lawrenceville, NJ On Wed, 13 Jan 1999 23:35:05 EST MetaMom123@... writes: >From: MetaMom123@... > >Hi, All...... > >I received so many nice, warm fuzzies from people in the group in >regard to my >bad night again last night .........and I really appreciate the >thoughtfulness. > >I wrote that letter not so much to complain about what I was going >through, as >to take the opportunity to describe to you all how my RLS felt, while >I was >actually going through it. All of our symptoms are so different, it >seems........and it's difficult to describe them if we're not feeling >them at >the moment. Sometimes, our attacks are different.....not always >exactly the >same......which makes it harder to describe also. > >Several people thought what I was experiencing was severe >pain......which is >not true. There was some pain, but mostly it was an electrical type >of >feeling....seizure type........deep inside, throbbing, jumping, >unbearable >kind of feeling......that makes you want to scream. >It just brings me to tears sometimes..........much as I hate to admit >that. > >The codeine I take is not for pain.......it is to stop the sensation >of the >jumpiness from communicating with my brain. It numbs the feelings so >that I >can lie still and go to sleep again. > >Several wondered if this was indeed RLS.........absolutely, positively >YES. >This is my RLS.........twitchy, jumpy, jerky, miserable RLS. > >Perhaps tonight will be better........sleep well, everyone........ > >Connie > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 1999 Report Share Posted January 14, 1999 Connie, You described my RLS to a T. It is not a pain(only sometime pain) but it's a deep down feeling. I especially feel like it's an electrical current going through me. trying to describe it to someone else is very difficult, but you hit the nail on the head. When mine gets that bad the only thing that will stop it is codeine. Right now I have reduced my mirapex and started taking tension tamer in the form of capsules. So far for the last 3 days I've had some improvement. I'm not sleeping through the night, but more than before. Hopefully this will last.for awhile. Sleep Well Jan/44/Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 1999 Report Share Posted January 14, 1999 Connie, You described my RLS to a T. It is not a pain(only sometime pain) but it's a deep down feeling. I especially feel like it's an electrical current going through me. trying to describe it to someone else is very difficult, but you hit the nail on the head. When mine gets that bad the only thing that will stop it is codeine. Right now I have reduced my mirapex and started taking tension tamer in the form of capsules. So far for the last 3 days I've had some improvement. I'm not sleeping through the night, but more than before. Hopefully this will last.for awhile. Sleep Well Jan/44/Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Try the hypoglycemic diet. There are a number of books out there on it. High protein and low carbs will straighten you out. Hard on the kidneys so make sure you drink at least 1/2 of your body weight in ounces to flush out your kidneys on a regular basis. In a message dated 1/2/2002 8:11:11 PM Eastern Standard Time, capescape@... writes: > I went cold turkey on all sugar and bread a couple weeks ago and my skin > looked great, it is just so friggin hard to do. > Any suggestions in how do make a dent in this thing ?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 you have discovered what many already know, but most rosaceans will not alter their eating and drinking habits and want other treatment. You can find all this information at the following sites: http://www.rosaceadiet.com http://groups.yahoo.com/group/rosacea-diet-users-support-group/ Brady Barrows author of the cea Diet founder of the cea Diet Users Support Group On Wednesday, January 2, 2002, at 07:56 PM, capescape@... wrote: > Guys, > > I think a Huge contribution to my Roscea is the presence of > Carbohydrates and sugar in my diet. > > I have read the books " Potatoes not Prozac " , " Sugar Busters " and I have > seen how sensitive people with cea are to the foods they eat. > > I am also just recently aware that some people who are sensitive to > sugar and certain carb's skin and body's age faster. I believe that it > can predispose some to diabetes. > > I went cold turkey on all sugar and bread a couple weeks ago and my > skin looked great, it is just so friggin hard to do. > Any suggestions in how do make a dent in this thing ?? > > Thanks, > > Chris > > > -- > Please read the list highlights before posting to the whole group > (http://rosacea.ii.net/toc.html). Your post will be delayed if you > don't give a meaningful subject or trim your reply text. You must > change the subject when replying to a digest ! > > See http://www.drnase.com for info on his recently published book. > > To leave the list send an email to rosacea-support- > unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 I've a friend who's in final year medicine. I've discussed these non-carb (protein-oriented) diets with him, and he had a very bad opinion of them. Said that the only fuel source that can drive the brain to a satisfactory level is glucose. We can't manufacture glucose from other energy sources and we must therefore ingest it. The brain can run on something else called ketones apparently, but not very well. Moral: non-carb diets can turn you into an aggravated, stupid person. At least for the duration of the diet. Mind you, that's just what I've heard. Stuart > Try the hypoglycemic diet. There are a number of books out there on it. > High protein and low carbs will straighten you out. Hard on the kidneys so > make sure you drink at least 1/2 of your body weight in ounces to flush out > your kidneys on a regular basis. > > > In a message dated 1/2/2002 8:11:11 PM Eastern Standard Time, > capescape@... writes: > > > > I went cold turkey on all sugar and bread a couple weeks ago and my skin > > looked great, it is just so friggin hard to do. > > Any suggestions in how do make a dent in this thing ?? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 I've a friend who's in final year medicine. I've discussed these non-carb (protein-oriented) diets with him, and he had a very bad opinion of them. Said that the only fuel source that can drive the brain to a satisfactory level is glucose. We can't manufacture glucose from other energy sources and we must therefore ingest it. The brain can run on something else called ketones apparently, but not very well. Moral: non-carb diets can turn you into an aggravated, stupid person. At least for the duration of the diet. Mind you, that's just what I've heard. Stuart > Try the hypoglycemic diet. There are a number of books out there on it. > High protein and low carbs will straighten you out. Hard on the kidneys so > make sure you drink at least 1/2 of your body weight in ounces to flush out > your kidneys on a regular basis. > > > In a message dated 1/2/2002 8:11:11 PM Eastern Standard Time, > capescape@... writes: > > > > I went cold turkey on all sugar and bread a couple weeks ago and my skin > > looked great, it is just so friggin hard to do. > > Any suggestions in how do make a dent in this thing ?? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Stuart, you friend is missinformed. You can utilize protein two ways: (1) Protein synthesis (2) The body can break down fat and protein into glucose which is what the brain requires. Glucogon which is another hormone the pancreas makes is used in the process along with a host of other factors. (3) Most low carb diets are just that, low carb and allow some carbohydrates which can be used for glucose which the brain needs. check out this book, Protein Power, by Drs. Eades: http://www.galaxymall.com/nutrition/proteinpowerplan/ Brady Barrows author of the cea Diet http://www.rosaceadiet.com On Thursday, January 3, 2002, at 12:26 AM, Stuart e wrote: > I've a friend who's in final year medicine. I've discussed these > non-carb > (protein-oriented) diets with him, and he had a very bad opinion of > them. > Said that the only fuel source that can drive the brain to a > satisfactory > level is glucose. We can't manufacture glucose from other energy > sources > and we must therefore ingest it. > > The brain can run on something else called ketones apparently, but not > very well. > > Moral: non-carb diets can turn you into an aggravated, stupid person. > At > least for the duration of the diet. > > Mind you, that's just what I've heard. > > Stuart > > > > >> Try the hypoglycemic diet. There are a number of books out there on >> it. >> High protein and low carbs will straighten you out. Hard on the >> kidneys so >> make sure you drink at least 1/2 of your body weight in ounces to >> flush out >> your kidneys on a regular basis. >> >> >> In a message dated 1/2/2002 8:11:11 PM Eastern Standard Time, >> capescape@... writes: >> >> >>> I went cold turkey on all sugar and bread a couple weeks ago and my >>> skin >>> looked great, it is just so friggin hard to do. >>> Any suggestions in how do make a dent in this thing ?? >>> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 My apologies to everyone for my seemingly misinformed post. In the interest of furthering knowledge on this subject, I shall discuss your replies with my friend and report back if he has anything interesting to say. It was only what I had heard, and I certainly didn't mean to give offence. Stuart > Stuart, > > you friend is missinformed. You can utilize protein two ways: > > (1) Protein synthesis > > (2) The body can break down fat and protein into glucose which is what > the brain requires. Glucogon which is another hormone the pancreas > makes is used in the process along with a host of other factors. > > (3) Most low carb diets are just that, low carb and allow some > carbohydrates which can be used for glucose which the brain needs. > > check out this book, Protein Power, by Drs. Eades: > > http://www.galaxymall.com/nutrition/proteinpowerplan/ > > Brady Barrows > author of the cea Diet > > http://www.rosaceadiet.com > > On Thursday, January 3, 2002, at 12:26 AM, Stuart e wrote: > > > I've a friend who's in final year medicine. I've discussed these > > non-carb > > (protein-oriented) diets with him, and he had a very bad opinion of > > them. > > Said that the only fuel source that can drive the brain to a > > satisfactory > > level is glucose. We can't manufacture glucose from other energy > > sources > > and we must therefore ingest it. > > > > The brain can run on something else called ketones apparently, but not > > very well. > > > > Moral: non-carb diets can turn you into an aggravated, stupid person. > > At > > least for the duration of the diet. > > > > Mind you, that's just what I've heard. > > > > Stuart > > > > > > > > > >> Try the hypoglycemic diet. There are a number of books out there on > >> it. > >> High protein and low carbs will straighten you out. Hard on the > >> kidneys so > >> make sure you drink at least 1/2 of your body weight in ounces to > >> flush out > >> your kidneys on a regular basis. > >> > >> > >> In a message dated 1/2/2002 8:11:11 PM Eastern Standard Time, > >> capescape@... writes: > >> > >> > >>> I went cold turkey on all sugar and bread a couple weeks ago and my > >>> skin > >>> looked great, it is just so friggin hard to do. > >>> Any suggestions in how do make a dent in this thing ?? > >>> > >> > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
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