Re: CMT and/or FM

[Guest guest]

Hi ,

It is nice talking to you. I guess we are a lot alike. I feel you

are right the more stress the more pain. Trying to live a stress

free life is almost impossible isn't it. LOL I also have not found

any pain meds that work. My doctor has given me various kinds and I

just decided my liver was not worth it esp since they don't work

anyway. I am taking Prozac now and like I said before it is the only

thing I have found that keeps me sane. You are also right when you

say, what difference does it make. There is absolutey no cure

anyway. I believe it is a mind adjustment anyway. We just need to

set our mind that we have this problem and find a way to still enjoy

life in spite of it. I used to sit around feeling sorry for myself,

but no more. I do what I can when I can do it. If I am having a bad

day, I listen to music or get on the computer, or read, or crochet

(when my shoulders, arms, and hands will let me). If I am having a

good day, I catch up on what I didn't do on my bad day. LOL LOL It

was good hearing from you. Take care.

Cindy

> Hi Cindy,

>

> in my case it is nearly the same. In 1997 my grandfather died

because of

> cancer

> and this was too much for my body. I got a lumbago which didn' t get

> better and

> after a few weeks I had pain in my whole body. A blood test showed

that

> my

> rheumatic factor was much too high and so I went to rheumatologist

who

> diagnosed FM. I also had a lot of problems with depressions. My

father

> left us

> when I was a kid, my mother became an alcoholic when I was a

teenager

> and my

> problem is (if it could be called a problem) that I am too

sensitive.

> In 1995, after I started working as a product-manager, the

depression

> got worse

> and in 1996 I decided to go to a therapy. Then I also started to

take

> Prozac.

> In 1999 I changed my job and since then the FM-pain is much better.

I

> still

> have a lot of pain in my back but the other parts of my body

(except my

> feet

> because of the surgery) don' t hurt very often anymore. But still I

> believe it is

> not really FM, that it has the same symptoms as FM because of what

you

> said

> about the damaged nerves. The more stress I have the more pain I

have.

> And

> to be honest what does it matter if it is because of CMT or FM,

there is

> no help

> in both cases because the therapy for FM does not work if you have

CMT.

> But one thing I found out: Neraly no pain-medicine works for me and

this

>

> often makes it hard if the pain is getting to much.

>

> By the way since I know that studies have shown that about 40% of

the

> people

> with CMT have so much pain they can' t live a normal life I think

pain

> belongs

> to some of us while others with CMT have other problems.

>

> Bye,

>