thanks for welcome

[Guest guest]

Hello, everyone. Thanks for the warm welcome you

extended to me when I joined the group. It was

gratifying to hear from others who have CMT. I was

beginning to believe I was a " lone ranger " never

having met anyone who had CMT. What I don't understand

is if this is supposed to be an inherited disorder why

there doesn't appear to be any other cases in my

family. I am the youngest of four children, ranging in

age from 49 to 59, and the only one with overt

symptoms. My sister, the eldest, had a different

father which migh account for her escaping but neither

of my two brothers has any sign of CMT. My mother

doesn't recall any of her siblings or parents having

anything like the symptoms of CMT. Most of my dads

relatives died fairly youngish from alcoholism. I was

33 before I had a diagnosis. My mother felt guilty for

a long time thinking she was somehow responsible. I

was pretty clumsy as a child and used to have scarred

knees a lot from falling. It has been only the last

few years that the pains seem to be unbearable

sometimes. I started walking with a cane a little over

a year ago. Does anyone know if CMT affects internal

organs like the kidneys or stomach?? Thanks again for

the welcome. PS Does anyone live in the Seattle area?

Would like to hear from anybody who does. .

[Guest guest]

I had never heard of CMT until I some wise doc said no one falls as

much as I did without reason so we took tests .Now I realize my Dad had it He

fell a lot and had funny feet like mine.Also we have droopy eyes.Mine have

been lifted twice and need it again.I have been awkward forever but pain

began this yr.Walking has also been hard for years.Gwen

[Guest guest]

there's a new one I didn't know cmt could cause, drooping eyelids. I also

have those.

Any more unusual tidbits out there :-)

E

[Guest guest]

there's a new one I didn't know cmt could cause, drooping eyelids. I also

have those.

Any more unusual tidbits out there :-)

E