wrong group

[Guest guest]

Arthur,

You don't even belong in this group, you and some others that believe like

you, belong in a group like Yoga, Meditation or other new age self help

cults that believes we can control our illnesses through " out of the body " ,

thought control, and concentration. You probably believe you are a god

also, like Shirley McClain. If you refuse to take drugs for RLS, would

you refuse to take them if you were a diabetic or had high blood pressure?

You are minimizing RLS as unimportant. You are definitely saying it's in

our head, and we should get off it and get a life. Yes, I am angry, angry

enough to be crying, and when I'm that angry I will say what I think. You

are even criticizing the research that is going on, about the possibilities

of the excitability of the spinal cord. I am very impressed with that

research, and I resent you making light of what NIH is doing to help us.

Who do you think you are? to try to put a halt on research. And that's

exactly what will happen if enough of you spout off such nonsense. I knew

someone like you would come along, and fall into those lines about us

controlling it ourselves so bluntly, as if you know what you are talking

about. Evidently you don't have it or you would know

it's not called RLA, and wouldn't take is so lightly. The only RLS

community that doesn't get down on you will be the ones that think like

you, and belong with you. A support group is supposed to support and

sympathize with, not call us hypochondriacs, and tell us to get it all

together. Some of us can't help what is happening to us you know.

Depending on the responses you get from us regarding your letter, will let

me know if I'm in the wrong support group. I won't need to be asked to

leave.

June 65, Delaware