Guest guest Posted April 12, 2000 Report Share Posted April 12, 2000 Welcome , glad you found the site and are getting alot out of it! Hey, we were almost neighbors - I lived in Oklahoma City and Guthrie back in the 1980s! There are some Arizonan's in this group - hopefully they will jump in and give you a Dr. name or too. I also lived in Phoenix for a few years and the Barrows Neurological Center/Hospital is very good! Gretchen wrote: > > My name is I live in Ponca City Okla.I was told when > I was 30 after being injured in a work accident I had Polyneuritous > .Because when given an EM test my lack of nerve activity they told me > I'd be in a wheelchair in a year. They had no name for it just said they > thought it was inherited . My mother had allot of leg pain and cramps. I > have had carpal tunnel surgery on both hands. In 1994 we got a new > neaurogilest in town he finally gave my problem a name CMT I don't know > what kind I have never had the blood test.I stepped out of the car > 8-12-99 & my left foot felt like all heck broke loose found a orthopedic > who did an ultrasound & said I had a rupture tendon I'm starting to get > the claw toes on left foot don't know if this is because of my feet > starting to deform or what I have the very high arches he said there > would have to be a tendon taken out of the back of me leg & put in my > arch.He could not do it & had no experience with CMT . I'm going to > sdale Az. next week to my daughters & I have a apt. with a foot & > ankle Dr. at Mayo Clinic. No doctors in my area know anything about CMT. > My neouroglist has only had one other case. My daughter in AZ. has it > also they discovered it when they gave her an EMG for carpal tunnel..I > am now 53 I have extreme weakens in hands,pain in calves of legs,bad leg > cramps and I'm not at all good at explain all of.this. Thank you so much > Gretchen for inviting me to this group I've learned so much. > > / > > ------------------------------------------------------------------------ > Whatever you want, chances are you'll find it at one of the hundreds > of sites in The PointClick Network--like Disney.com, eCost.com, > FogDog.com and many more. You get paid as you shop and an additional > 10% off any purchase, anytime. > http://click.egroups.com/1/2994/7/_/616793/_/955591556/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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