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Nina,

Thanks for your beautiful letter. I could identify w/everything that

you wrote. I was in the process of writing to you when I hit the

wrong key and my ltr disappeared. I don't know if it will be posted

or if it just vanished. So I don't want to repeat everything in case

it did get posted. I wanted to thank you for sharing what life w/CMT

is like as I have the exact same problems.I am not familiar

w/Dejerine Sottas. But I am familair w/ the pain and overwhelming

fatigue. I too am thankful for a list like this,it helps not to feel

so all alone.

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