knowledge sharing

[Guest guest]

Hello from Jack of Norfolk and Washington

I also am one not doing much writing. Partially because I haven't been a

member long enough (8 wks or so) to know your various situations.

I am 59 and had CMR diagnosed about 15 years ago. My daughter has CMT and I

think my father does, but he is adament about not discussing it. In answer

to the recent question, no, I do not feel resentment about passing it on,

nor about receiving it. To me the alternative is non existance.

I didn't feel my CMT was severe until recently when my high arches began to

roll under more. Nevertheless my pain and limping became more than I wished

to put up with. Anyway I found, quite by accident, a doctor in the Norfolk

area who tested my weight bearing while I was tied to his computer. He

determined that at 170 lbs total, I set the office record on both feet at

380 and 413 pounds per sq inch at the ball under the litttle toe on each

foot. I was also told that my arches were the highest he had ever seen.

That was about five weeks ago.

I have been to at least eight DPM's in past 30 years and none even

considered doing this. But. after much soul searching & four second

opinions, a week ago I had a triple athrodesis, a plantars fascia release,

wedged my heel, brought it around into straight position and put in two

stainless screws and two staples. He did not feel it necessary to do a

achilles tendon release because after the other changes were done it was

relieved anyway.

Time will tell if this was a wise choice, but the Doctor is thus far very

pleased. I will update for all of you to evaluate your own situations as

time passes.

Jack