Guest guest Posted January 8, 1999 Report Share Posted January 8, 1999 HOLY TOLEDO Diane, Fissures in the tongue!!!!!!!!!!!! I was BORN with a tongue like that, same as my Grandma Robbins. Once when I asked her about it she replied, straight-faced, that it is a sign of royalty!!! Now you tell me it's iron deficiency!!!!!! I'm absolutely devastated..............and will ask to have my ferritin levels checked on my next VA visit. My granddaughter too has the same kind of a tongue and we both derive sadistic pleasure by displaying our tongues whenever the subject comes up. :-))) Oh my!!! Cheers!! Jeanne and Mr. Biggles in a blizzard white-out in Poultney, VT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 1999 Report Share Posted January 8, 1999 HOLY TOLEDO Diane, Fissures in the tongue!!!!!!!!!!!! I was BORN with a tongue like that, same as my Grandma Robbins. Once when I asked her about it she replied, straight-faced, that it is a sign of royalty!!! Now you tell me it's iron deficiency!!!!!! I'm absolutely devastated..............and will ask to have my ferritin levels checked on my next VA visit. My granddaughter too has the same kind of a tongue and we both derive sadistic pleasure by displaying our tongues whenever the subject comes up. :-))) Oh my!!! Cheers!! Jeanne and Mr. Biggles in a blizzard white-out in Poultney, VT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 1999 Report Share Posted January 12, 1999 Group, I too have those very painful fissures in my tounge at times and my dentsist told me it was a form of herpiess and gave me an rx for it. Well, I was too embarassed to have it filled...I can imagine the pharmasist having a chuckle over how she got a herpies on her tounge so since it happens so seldom I just live with it. If you find about anything that works please let me know.... Lee http://members.tripod.com/~webtv40/chickendance.gifhttp://members.tripod.com/~webtv40/chickendan... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 1999 Report Share Posted February 5, 1999 Hi , I live in land and have RLS. What is the name of the company and where is it??? janegf@... ---michael nortrup wrote: > > > > Fellow sufferers: > > Hey! I've won at least one small victory over our Friend. A medical > company in land is developing specialized monitors that people wear > to measure RLS movements. And, they're paying RLS people to wear the > things around the ankles or chest for a few days. I made 50 bucks this > week. In about a month, can make another $150 by wearing the stuff for a > week and staying in the sleep lab overnite, wired up like enstein. > While this doesn't QUITE pay for 15 years of misery, what the heck, it's > something, right? > > Hope all of u sleep better tonite than I probably will. > > Mike, 54 > York, pa. > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 1999 Report Share Posted February 10, 1999 Dear : My doctor has me on the following - and it's been working EXTREMELY WELL: 100 mg Zoloft first thing in morning .125 g mirapex around 9:00 a.m. .5 g xanax also around 9:00 a.m. .125 mirapex at 1:00 p.m. .5 g xanax at 1:00 p.m. .125 mirapex at 7:00 p.m. .5 g xanax around 10:00 p.m. which will allow me to sleep I suffer from daytime RLS also which is why my dr. has me divide the medication up during the three times a day. It's been about 3 months now on this regimine and the RLS is comletely controllable - sometimes I even foget it's there! So, for me, right now, the above regimine has been a miracle.....now if I could only find relief for the fibromyalgia! Tina in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 1999 Report Share Posted February 10, 1999 Hi and All, I take at least 3 Sinimet (total of 75 mg carbodopa and 300 mg levodopa) and 3 Mirapex (0.25 mg) in the evening. My neurologist tried to get me off of Sinemet and onto Mirapex completely. I tried (it was hell because I had to dose down off of Sinimet and go without anything for a week and then dose up on Mirapex). I found that for me Mirapex did not come close to Sinimet in terms of relieving my RLS. I went back to Sinimet - I was able to slightly decrease my Sinimet dosage by continuing to use Mirapex with it. I had gotten up to 4 and sometimes 5 Sinimet at night. I too have daytime symptoms ... have to leave meetings, etc. I have to make sure I take Sinimet (don't bother with Mirapex in the daytime) about an hour before going to a movie or anything like that. The reason I don't bother with Mirapex in the daytime is because I don't think it really does very much for me. Like you, I worry about the medicine losing its effectiveness. I know there are other medicines so I guess that's what you do then. Also I understand that with Sinimet if it begins to be ineffective, you can go onto something else for a while and then go back to Sinimet and it will work for most people again. I don't know anything much about other drugs, but generally if you take any drug in significant amounts regularly, you're going to develop a tolerance for it. One exception to this is Premarin (estrogen), but then you're a man and you'll never have to worry about that one. Jane janegf@...> ---michael nortrup wrote: > > > > > > > Dear Fellow Sufferers: > I need a few thoughts on suggested meds. I take 3 .25mg tabs of mirapex > about 3 hrs. before bedtime. My docs have always stuck with one med at a > time for me but t seems like lot of you use mre than one medicine. > > I'M DIRECTING THIS TO THOSE WHO USE MRAPEX IN CMBINATION WITH ANTHER > MEDICATON. Can you tell me what medicine you use in addition to mirapex, > how much you use, and what point in the day you take it? I also suffer > from terribe daytime symptoms when I have to sit in afternoon meetings. > What do you take for that? I hesitate to use the mirapex in the daytime, > too, because using it too much might diminish its effectiveness. > > If anybody as any suggestions, I'd love to hear from you. > > Thanks > > Mike, 54 > York, Pa. > mikezpen@... > > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2000 Report Share Posted April 14, 2000 Just went to my ortho doctor yesterday. He has lots of patients that have CMT, and I feel his experience is very good. I found out that my tendon/tendons is gone, the one that helps the ankle keeps the foot from turning out. They are going to take the good tendons from my toes, cause he said that those were the ones that I have been using to pick my foot. Those good tendons from my toes will be used to correct the ankle. I think it is going to be positioned somewhere near the inside of the foot, across from the ankle. He mentioned the tibalis, sorry I can't be more specific for you. I'm also have my high arch corrected. The numbness in my big toe he feels is caused by my constantly clenching my toes when I walk. He also is going to straigthen the toes out. So I will be walking flatter on the ground and the foot drop will be better--perhaps gone? (although he did not say that). I still wear a brace on the left but that foot has a regular AFO whereas the right has a hinged brace but it is still not keeping the foot from turning out. Much to my surprise I thought this was going to be in and out surgery but found out I will be overnight/perhaps a few nights in the hospital. Any other questions, don't hesitate to ask. Re: (no subject) > > You did a great job explaining your situation and your situation sounds just > > about like everyone else in this group. Good luck in sdale. The Mayo > clinic there has a GREAT reputation. I used to live out there. > a > > ------------------------------------------------------------------------ > 1.6 Million Digital Images! > Download one Today from Corbis.com > http://click.egroups.com/1/3356/7/_/616793/_/955605097/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2000 Report Share Posted April 14, 2000 Just went to my ortho doctor yesterday. He has lots of patients that have CMT, and I feel his experience is very good. I found out that my tendon/tendons is gone, the one that helps the ankle keeps the foot from turning out. They are going to take the good tendons from my toes, cause he said that those were the ones that I have been using to pick my foot. Those good tendons from my toes will be used to correct the ankle. I think it is going to be positioned somewhere near the inside of the foot, across from the ankle. He mentioned the tibalis, sorry I can't be more specific for you. I'm also have my high arch corrected. The numbness in my big toe he feels is caused by my constantly clenching my toes when I walk. He also is going to straigthen the toes out. So I will be walking flatter on the ground and the foot drop will be better--perhaps gone? (although he did not say that). I still wear a brace on the left but that foot has a regular AFO whereas the right has a hinged brace but it is still not keeping the foot from turning out. Much to my surprise I thought this was going to be in and out surgery but found out I will be overnight/perhaps a few nights in the hospital. Any other questions, don't hesitate to ask. Re: (no subject) > > You did a great job explaining your situation and your situation sounds just > > about like everyone else in this group. Good luck in sdale. The Mayo > clinic there has a GREAT reputation. I used to live out there. > a > > ------------------------------------------------------------------------ > 1.6 Million Digital Images! > Download one Today from Corbis.com > http://click.egroups.com/1/3356/7/_/616793/_/955605097/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2000 Report Share Posted June 28, 2000 Tresea in Raleigh, I am in Durham and am scheduled to have the sugery July 20th. If I can get an earlier date I will take it. Anyway, I would like to call you and talk to you about your experiences. Is that possible. Or, you can call me at 419-0565. Congratulations on your weight loss. I can't wait until my turn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2000 Report Share Posted June 28, 2000 Tresea in Raleigh, I am in Durham and am scheduled to have the sugery July 20th. If I can get an earlier date I will take it. Anyway, I would like to call you and talk to you about your experiences. Is that possible. Or, you can call me at 419-0565. Congratulations on your weight loss. I can't wait until my turn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2000 Report Share Posted June 28, 2000 Tresea in Raleigh, I am in Durham and am scheduled to have the sugery July 20th. If I can get an earlier date I will take it. Anyway, I would like to call you and talk to you about your experiences. Is that possible. Or, you can call me at 419-0565. Congratulations on your weight loss. I can't wait until my turn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2000 Report Share Posted June 28, 2000 In a message dated 6/28/00 8:26:07 AM Central Daylight Time, rahango@... writes: << Tresea in Raleigh, I am in Durham and am scheduled to have the sugery July 20th. If I can get an earlier date I will take it. Anyway, I would like to call you and talk to you about your experiences. Is that possible. Or, you can call me at 419-0565. Congratulations on your weight loss. I can't wait until my turn. >> I guess you mean me () My name has been spelled many ways!!, but this is the correct version!! LOL!! Please feel free to call me anytime...... I love to talk MGB and I have been out of the loop the last three weeks due to a computer crash. The best time to call is mornings before 11 am or after 7:00 pm. Look forward to talking to you! from Raleigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2000 Report Share Posted June 28, 2000 In a message dated 6/28/00 8:26:07 AM Central Daylight Time, rahango@... writes: << Tresea in Raleigh, I am in Durham and am scheduled to have the sugery July 20th. If I can get an earlier date I will take it. Anyway, I would like to call you and talk to you about your experiences. Is that possible. Or, you can call me at 419-0565. Congratulations on your weight loss. I can't wait until my turn. >> I guess you mean me () My name has been spelled many ways!!, but this is the correct version!! LOL!! Please feel free to call me anytime...... I love to talk MGB and I have been out of the loop the last three weeks due to a computer crash. The best time to call is mornings before 11 am or after 7:00 pm. Look forward to talking to you! from Raleigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 These are laughable and cute thoughts! for women! by women!: > > > > The hardest years in life are those between ten and seventy. --Helen > > (at 73) > > > > I refuse to think of them as chin hairs. I think of them as stray > eyebrows. > > --Janette Barber > > > > Who ever thought up the word "Mammogram"? Every time I hear it, I think > > -I'm supposed to put my breast in an envelope and send it to > someone. --Jan > > King > > > > A few weeks after my [breast cancer] surgery, I went out to play catch > with > > my golden retriever. When I bent over to pick up the ball, my prosthesis > > fell out. The dog snatched it, and I found myself chasing him down the > > road yelling "Hey, come back here with my breast!" -- Ellerbee > > > > Things are going to get a lot worse before they get worse.--Lily Tomlin > > > > You know the hardest thing about having cerebral palsy and being a woman? > > It's plucking your eyebrows. That's how I originally got pierced ears. > > --Geri Jewell > > > > A male gynecologist is like an auto mechanic who never owned a > car.-- > > Snow > > > > Laugh and the world laughs with you. Cry and you cry with your > girlfriends. > > --Laurie Kuslansky > > > > My second favorite household chore is ironing. My first being hitting my > > head on the top bunk bed until I faint. --Erma Bombeck > > > > Old age ain't no place for sissies. --Bette > > > > A man's got to do what a man's got to do. A woman must do what he can't. > > --Rhonda Hansome > > > > The phrase "working mother" is redundant. --Jane Sellman > > > > Every time I close the door on reality it comes in through the windows. > > -- Unlimited > > > > Whatever women must do they must do twice as well as men to be thought > half > > as good. Luckily, this is not difficult. --Charlotte Whitton > > > > Thirty-five is when you finally get your head together and your body > starts > > falling apart. > > --Caryn Leschen > > > > If you can't be a good example, then you'll just have to serve as a > > horrible warning. > > -- Aird > > When I was young, I was put in a school for retarded kids for two years > > before they realized I actually had a hearing loss...and they called ME > > slow! > > --Kathy Buckley > > > > Behind every successful woman...is a substantial amount of coffee. > > -- Piro > > > > Behind every successful woman ...... is a basket of dirty laundry. --Sally > > Forth > > > > Top Ten Things Only Women Understand > > > > 10. Why it's good to have five pairs of black shoes. > > 9. The difference between cream, ivory, and off-white. > > 8. Crying can be fun. > > 7. FAT CLOTHES. > > 6. A salad, diet drink, and a hot fudge sundae make a balanced lunch. > > 5. Discovering a designer dress on the clearance rack can be considered a > > peak > > life experience. > > 4. The inaccuracy of every bathroom scale ever made. > > 3. A good man might be hard to find, but a good hairdresser is next to > > impossible. > > 2. Why a phone call between two women never lasts under ten minutes. > > AND THE NUMBER ONE THING ONLY WOMEN UNDERSTAND: > > 1. OTHER WOMEN! > > (Send this on to all the women you are grateful to have as friends) > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 These are laughable and cute thoughts! for women! by women!: > > > > The hardest years in life are those between ten and seventy. --Helen > > (at 73) > > > > I refuse to think of them as chin hairs. I think of them as stray > eyebrows. > > --Janette Barber > > > > Who ever thought up the word "Mammogram"? Every time I hear it, I think > > -I'm supposed to put my breast in an envelope and send it to > someone. --Jan > > King > > > > A few weeks after my [breast cancer] surgery, I went out to play catch > with > > my golden retriever. When I bent over to pick up the ball, my prosthesis > > fell out. The dog snatched it, and I found myself chasing him down the > > road yelling "Hey, come back here with my breast!" -- Ellerbee > > > > Things are going to get a lot worse before they get worse.--Lily Tomlin > > > > You know the hardest thing about having cerebral palsy and being a woman? > > It's plucking your eyebrows. That's how I originally got pierced ears. > > --Geri Jewell > > > > A male gynecologist is like an auto mechanic who never owned a > car.-- > > Snow > > > > Laugh and the world laughs with you. Cry and you cry with your > girlfriends. > > --Laurie Kuslansky > > > > My second favorite household chore is ironing. My first being hitting my > > head on the top bunk bed until I faint. --Erma Bombeck > > > > Old age ain't no place for sissies. --Bette > > > > A man's got to do what a man's got to do. A woman must do what he can't. > > --Rhonda Hansome > > > > The phrase "working mother" is redundant. --Jane Sellman > > > > Every time I close the door on reality it comes in through the windows. > > -- Unlimited > > > > Whatever women must do they must do twice as well as men to be thought > half > > as good. Luckily, this is not difficult. --Charlotte Whitton > > > > Thirty-five is when you finally get your head together and your body > starts > > falling apart. > > --Caryn Leschen > > > > If you can't be a good example, then you'll just have to serve as a > > horrible warning. > > -- Aird > > When I was young, I was put in a school for retarded kids for two years > > before they realized I actually had a hearing loss...and they called ME > > slow! > > --Kathy Buckley > > > > Behind every successful woman...is a substantial amount of coffee. > > -- Piro > > > > Behind every successful woman ...... is a basket of dirty laundry. --Sally > > Forth > > > > Top Ten Things Only Women Understand > > > > 10. Why it's good to have five pairs of black shoes. > > 9. The difference between cream, ivory, and off-white. > > 8. Crying can be fun. > > 7. FAT CLOTHES. > > 6. A salad, diet drink, and a hot fudge sundae make a balanced lunch. > > 5. Discovering a designer dress on the clearance rack can be considered a > > peak > > life experience. > > 4. The inaccuracy of every bathroom scale ever made. > > 3. A good man might be hard to find, but a good hairdresser is next to > > impossible. > > 2. Why a phone call between two women never lasts under ten minutes. > > AND THE NUMBER ONE THING ONLY WOMEN UNDERSTAND: > > 1. OTHER WOMEN! > > (Send this on to all the women you are grateful to have as friends) > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 These are laughable and cute thoughts! for women! by women!: > > > > The hardest years in life are those between ten and seventy. --Helen > > (at 73) > > > > I refuse to think of them as chin hairs. I think of them as stray > eyebrows. > > --Janette Barber > > > > Who ever thought up the word "Mammogram"? Every time I hear it, I think > > -I'm supposed to put my breast in an envelope and send it to > someone. --Jan > > King > > > > A few weeks after my [breast cancer] surgery, I went out to play catch > with > > my golden retriever. When I bent over to pick up the ball, my prosthesis > > fell out. The dog snatched it, and I found myself chasing him down the > > road yelling "Hey, come back here with my breast!" -- Ellerbee > > > > Things are going to get a lot worse before they get worse.--Lily Tomlin > > > > You know the hardest thing about having cerebral palsy and being a woman? > > It's plucking your eyebrows. That's how I originally got pierced ears. > > --Geri Jewell > > > > A male gynecologist is like an auto mechanic who never owned a > car.-- > > Snow > > > > Laugh and the world laughs with you. Cry and you cry with your > girlfriends. > > --Laurie Kuslansky > > > > My second favorite household chore is ironing. My first being hitting my > > head on the top bunk bed until I faint. --Erma Bombeck > > > > Old age ain't no place for sissies. --Bette > > > > A man's got to do what a man's got to do. A woman must do what he can't. > > --Rhonda Hansome > > > > The phrase "working mother" is redundant. --Jane Sellman > > > > Every time I close the door on reality it comes in through the windows. > > -- Unlimited > > > > Whatever women must do they must do twice as well as men to be thought > half > > as good. Luckily, this is not difficult. --Charlotte Whitton > > > > Thirty-five is when you finally get your head together and your body > starts > > falling apart. > > --Caryn Leschen > > > > If you can't be a good example, then you'll just have to serve as a > > horrible warning. > > -- Aird > > When I was young, I was put in a school for retarded kids for two years > > before they realized I actually had a hearing loss...and they called ME > > slow! > > --Kathy Buckley > > > > Behind every successful woman...is a substantial amount of coffee. > > -- Piro > > > > Behind every successful woman ...... is a basket of dirty laundry. --Sally > > Forth > > > > Top Ten Things Only Women Understand > > > > 10. Why it's good to have five pairs of black shoes. > > 9. The difference between cream, ivory, and off-white. > > 8. Crying can be fun. > > 7. FAT CLOTHES. > > 6. A salad, diet drink, and a hot fudge sundae make a balanced lunch. > > 5. Discovering a designer dress on the clearance rack can be considered a > > peak > > life experience. > > 4. The inaccuracy of every bathroom scale ever made. > > 3. A good man might be hard to find, but a good hairdresser is next to > > impossible. > > 2. Why a phone call between two women never lasts under ten minutes. > > AND THE NUMBER ONE THING ONLY WOMEN UNDERSTAND: > > 1. OTHER WOMEN! > > (Send this on to all the women you are grateful to have as friends) > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 Judee, thanks, I loved this!!! hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Judee, I don't know where you get the, but keep 'em coming! Thanks! LOL, Judy O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 On Tue, 6 Mar 2001 10:29:30 EST boogiebarbeque@... writes: > I WISH AUTISM WOULD GO AWAY!!!!!!!!!!!!!!!!!!!!!!!!!! > > Just having a bad day!!! > > thanks for the vent..... > Ann in Memphis > * I agree and now you made me cry! Here's a hug [[[[[[[ANN]]]]]]]]]]] on Long Island New York ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 Yikes, you're having a bad day already........ I hope it passes quickly. Take care of yourself and a few deep breathes now and then. Much lve, (no subject) > I WISH AUTISM WOULD GO AWAY!!!!!!!!!!!!!!!!!!!!!!!!!! > > Just having a bad day!!! > > thanks for the vent..... > Ann in Memphis > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 I am part American Indian (swear!), instead of a rain dance, I will start working on a Autism go away dance. Hugs A Jeffs mom Re: (no subject) Yikes, you're having a bad day already........ I hope it passes quickly. Take care of yourself and a few deep breathes now and then. Much lve, (no subject) > I WISH AUTISM WOULD GO AWAY!!!!!!!!!!!!!!!!!!!!!!!!!! > > Just having a bad day!!! > > thanks for the vent..... > Ann in Memphis > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 I'll dance with you!!!!!!!!! I'm german and swedish tho...ain't got too much rythum. :~) P.S. - , she's napping!!!!!!!!!!! Re: (no subject) > > Yikes, you're having a bad day already........ I hope it >passes quickly. > Take care of yourself and a few deep breathes now and then. >Much lve, > > (no subject) > > > > I WISH AUTISM WOULD GO AWAY!!!!!!!!!!!!!!!!!!!!!!!!!! > > > > Just having a bad day!!! > > > > thanks for the vent..... > > Ann in Memphis > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 I'll dance with you!!!!!!!!! I'm german and swedish tho...ain't got too much rythum. :~) P.S. - , she's napping!!!!!!!!!!! Re: (no subject) > > Yikes, you're having a bad day already........ I hope it >passes quickly. > Take care of yourself and a few deep breathes now and then. >Much lve, > > (no subject) > > > > I WISH AUTISM WOULD GO AWAY!!!!!!!!!!!!!!!!!!!!!!!!!! > > > > Just having a bad day!!! > > > > thanks for the vent..... > > Ann in Memphis > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 , that was great! I think I'll pass this one on! LOL, Judy O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 , that was great! I think I'll pass this one on! LOL, Judy O Quote Link to comment Share on other sites More sharing options...
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