Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 10% Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 10% Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 how far are you from your 10%? From: ADARONE53@... Sent: Thursday, June 23, 2005 6:46 PMTo: gastric-bypass-support-kaiser-patients Subject: (no subject) I don't know what to do any more. I want to lose the 10%, but I can't stop eating. And I don't exercise. Am I lazy? I'm trier all the time. All I do is eat and sleep. I don't feel good. I don't want to go any where, or talk too any one. I'm trier of people seeing me fat. Then why don't I do any thing about it? I had orientation, one year ago. And I'm still the same, nothing has changed. What's wrong with me? I can't even get my self out of the house to go too a meeting. I Have one more test to take, then I will be done with my lad work. Please help Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 how far are you from your 10%? From: ADARONE53@... Sent: Thursday, June 23, 2005 6:46 PMTo: gastric-bypass-support-kaiser-patients Subject: (no subject) I don't know what to do any more. I want to lose the 10%, but I can't stop eating. And I don't exercise. Am I lazy? I'm trier all the time. All I do is eat and sleep. I don't feel good. I don't want to go any where, or talk too any one. I'm trier of people seeing me fat. Then why don't I do any thing about it? I had orientation, one year ago. And I'm still the same, nothing has changed. What's wrong with me? I can't even get my self out of the house to go too a meeting. I Have one more test to take, then I will be done with my lad work. Please help Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 how far are you from your 10%? From: ADARONE53@... Sent: Thursday, June 23, 2005 6:46 PMTo: gastric-bypass-support-kaiser-patients Subject: (no subject) I don't know what to do any more. I want to lose the 10%, but I can't stop eating. And I don't exercise. Am I lazy? I'm trier all the time. All I do is eat and sleep. I don't feel good. I don't want to go any where, or talk too any one. I'm trier of people seeing me fat. Then why don't I do any thing about it? I had orientation, one year ago. And I'm still the same, nothing has changed. What's wrong with me? I can't even get my self out of the house to go too a meeting. I Have one more test to take, then I will be done with my lad work. Please help Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 You are not alone. I too am struggling. I get home from work and am too tired to exercise and often too sore for yardwork. Too tired to cook right and just plain a grumply old man! (with an adorable smile and twinkly eyes I've been told...) I haven't had the epihany...other than it takes a bunch of little steps to add up to something significant. Keep track of those steps so you can track your progress and give yourself credit for anything you can. I don't think you are lazy...I don't think I am lazy...I think I am feeling too much physical and emotional pain to fight through it all. Seems overwhelming at times...so it's easier to sit and eat. Maybe that is what is happening with you? Just keep aware at all times that you have the choice to make. That does help me. When I think about that, I can put down the piece of garbage that was heading for my mouth. Acknowledge that when you do. I kiss the back of my hand. That way, if I am in public...it's subtle enough so no one is the wiser. I tried doing a happy dance once...but my boss didn't care for that! ; ) PS - stick around... > I don't know what to do any more. > I want to lose the 10%, but I can't stop eating. And I don't exercise. Am I > lazy? > I'm trier all the time. All I do is eat and sleep. I don't feel good. I > don't want to go any where, or talk too any one. I'm trier of people seeing me > fat. > Then why don't I do any thing about it? > > I had orientation, one year ago. And I'm still the same, nothing has > changed. What's wrong with me? > > I can't even get my self out of the house to go too a meeting. > > I Have one more test to take, then I will be done with my lad work. > > Please help > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 You are not alone. I too am struggling. I get home from work and am too tired to exercise and often too sore for yardwork. Too tired to cook right and just plain a grumply old man! (with an adorable smile and twinkly eyes I've been told...) I haven't had the epihany...other than it takes a bunch of little steps to add up to something significant. Keep track of those steps so you can track your progress and give yourself credit for anything you can. I don't think you are lazy...I don't think I am lazy...I think I am feeling too much physical and emotional pain to fight through it all. Seems overwhelming at times...so it's easier to sit and eat. Maybe that is what is happening with you? Just keep aware at all times that you have the choice to make. That does help me. When I think about that, I can put down the piece of garbage that was heading for my mouth. Acknowledge that when you do. I kiss the back of my hand. That way, if I am in public...it's subtle enough so no one is the wiser. I tried doing a happy dance once...but my boss didn't care for that! ; ) PS - stick around... > I don't know what to do any more. > I want to lose the 10%, but I can't stop eating. And I don't exercise. Am I > lazy? > I'm trier all the time. All I do is eat and sleep. I don't feel good. I > don't want to go any where, or talk too any one. I'm trier of people seeing me > fat. > Then why don't I do any thing about it? > > I had orientation, one year ago. And I'm still the same, nothing has > changed. What's wrong with me? > > I can't even get my self out of the house to go too a meeting. > > I Have one more test to take, then I will be done with my lad work. > > Please help > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 You are not alone. I too am struggling. I get home from work and am too tired to exercise and often too sore for yardwork. Too tired to cook right and just plain a grumply old man! (with an adorable smile and twinkly eyes I've been told...) I haven't had the epihany...other than it takes a bunch of little steps to add up to something significant. Keep track of those steps so you can track your progress and give yourself credit for anything you can. I don't think you are lazy...I don't think I am lazy...I think I am feeling too much physical and emotional pain to fight through it all. Seems overwhelming at times...so it's easier to sit and eat. Maybe that is what is happening with you? Just keep aware at all times that you have the choice to make. That does help me. When I think about that, I can put down the piece of garbage that was heading for my mouth. Acknowledge that when you do. I kiss the back of my hand. That way, if I am in public...it's subtle enough so no one is the wiser. I tried doing a happy dance once...but my boss didn't care for that! ; ) PS - stick around... > I don't know what to do any more. > I want to lose the 10%, but I can't stop eating. And I don't exercise. Am I > lazy? > I'm trier all the time. All I do is eat and sleep. I don't feel good. I > don't want to go any where, or talk too any one. I'm trier of people seeing me > fat. > Then why don't I do any thing about it? > > I had orientation, one year ago. And I'm still the same, nothing has > changed. What's wrong with me? > > I can't even get my self out of the house to go too a meeting. > > I Have one more test to take, then I will be done with my lad work. > > Please help > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 Good Advice !! Some times, even post op the daily battle wears us out...but we gotta keep up the good fight. Strive for excellence not perfection!! We can do this together!! Huggles > > I don't know what to do any more. > > I want to lose the 10%, but I can't stop eating. And I don't > exercise. Am I > > lazy? > > I'm trier all the time. All I do is eat and sleep. I don't feel > good. I > > don't want to go any where, or talk too any one. I'm trier of > people seeing me > > fat. > > Then why don't I do any thing about it? > > > > I had orientation, one year ago. And I'm still the same, nothing has > > changed. What's wrong with me? > > > > I can't even get my self out of the house to go too a meeting. > > > > I Have one more test to take, then I will be done with my lad work. > > > > Please help > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 Hey, -- I hate to be the one to scare the cr**p out of you, but here's my sister's story. She never found the strength, or ability or whatever it took to break out of that cycle. She actually thought she was eating very little, but she didn't exercise much. She was on oxygen for several years, and finally slowed down so much she lost control of bodily functions, was finally hospitalized. Even though she had gone to orientation at Richmond for WLS and was in the program for the surgery, she just couldn't loose the weight. They did finally figure out during the last month of her life that she had an under active thyroid and tried medicating her for that, but it seemed to be too late. She finally passed away because of lung damage, kidney damage, heart damage, and shutdown of other functions, all caused by her obesity. I relate the story, not to get sympathy, but because I hope this worse case scenario and tragic story of my sister's death can possibly inspire someone to make their life better. It would really give me great comfort, to bring something good out of a tragedy. I truly hope and pray you can find the strength to inspire yourself to do whatever it takes for you to get started to loose the weight. I don't know if you know it, but it is natural instinct for living bodies to MAINTAIN its weight, a survival instinct to hold stores of fuel in the body in case of famine. That is instinct; your intellect must overcome that! You CAN DO IT! Find your own inspiration! Do you have family you want to be able to really share your life with? Children? Spouse? Friends? The hope of a fuller life? Find a way to move more. (I have found that exercise actually wakes me up for a while!) Drink more water. Try very hard to cut back on your calories, fat & carbs mostly, or follow the recommended diet faithfully. Again, drinking water between meals can help fill you up so you don't eat so much. Also, exercise stimulates natural endorphins (good chemicals in your body) that act as a natural appetite depressant, so if you get hungry, try going for a walk, that may help you slow down the extra eating. I wish you best of luck on this journey. Keep us all informed. We really do care. Maybe those of us on this group can be part of your inspiration. OK, now! End of lecture! --Sandi H. (5 ft 1 inch tall and 50 years old) I live in Citrus Heights (Sacramento County) Dr. Leo – San Diego (Thru Kaiser) 315 at orientation (May '03) 285 at 3 pre-op appointments in San Diego (August 4, 2003) 252 at surgery (6/03/04) Last weighed at 177.5 (06/18/2005) Hopefully someday below 140 (yeah, I hope before Oct. 2nd when my daughter gets married!) sandiantoytrain @ yahoo . com > I don't know what to do any more. > I want to lose the 10%, but I can't stop eating. And I don't exercise. Am I lazy? > I'm trier all the time. All I do is eat and sleep. I don't feel good. I don't want to go any where, or talk too any one. I'm trier of people seeing me fat. > Then why don't I do any thing about it? > > I had orientation, one year ago. And I'm still the same, nothing has changed. What's wrong with me? > > I can't even get my self out of the house to go too a meeting. > > I Have one more test to take, then I will be done with my lad work. > > Please help > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 Thanks for sharing this with us. I too lost my little brother in 2001 from obesity. He weighed 500+ pounds and was one of those stories you see on TV where he only stayed in bed. On the rare occasions he would venture out he had to take oxygen with him too. He was only 34 years old. He wanted the surgery but Medicaid would not cover it. He died in his sleep...basically suffocated himself...there was fluid around his heart and in his lungs. He was my motivator for this surgery. He left behind 3 children. My step mother sent me pictures of his funeral as I couldnt get there in time..I got there a few days after due to 9-11. The pictures tore my heart apart. He couldnt fit in a casket...they had him laid out on a table. I felt so humiliated that his wife would have had him that way...He was to be cremated and I feel it would have given him more dignity to not have been viewed in that way. I vowed then that my husband and children would not have to see me like that. I had my surgery and owe it to my brother to live my life to the fullest. wanted this surgery so bad, but because he was dependant on government assistance he was denied this life saving gift. Huggles > > I don't know what to do any more. > > I want to lose the 10%, but I can't stop eating. And I don't > exercise. Am I lazy? > > I'm trier all the time. All I do is eat and sleep. I don't feel > good. I don't want to go any where, or talk too any one. I'm trier > of people seeing me fat. > > Then why don't I do any thing about it? > > > > I had orientation, one year ago. And I'm still the same, nothing > has changed. What's wrong with me? > > > > I can't even get my self out of the house to go too a meeting. > > > > I Have one more test to take, then I will be done with my lad work. > > > > Please help > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 Thanks for sharing this with us. I too lost my little brother in 2001 from obesity. He weighed 500+ pounds and was one of those stories you see on TV where he only stayed in bed. On the rare occasions he would venture out he had to take oxygen with him too. He was only 34 years old. He wanted the surgery but Medicaid would not cover it. He died in his sleep...basically suffocated himself...there was fluid around his heart and in his lungs. He was my motivator for this surgery. He left behind 3 children. My step mother sent me pictures of his funeral as I couldnt get there in time..I got there a few days after due to 9-11. The pictures tore my heart apart. He couldnt fit in a casket...they had him laid out on a table. I felt so humiliated that his wife would have had him that way...He was to be cremated and I feel it would have given him more dignity to not have been viewed in that way. I vowed then that my husband and children would not have to see me like that. I had my surgery and owe it to my brother to live my life to the fullest. wanted this surgery so bad, but because he was dependant on government assistance he was denied this life saving gift. Huggles > > I don't know what to do any more. > > I want to lose the 10%, but I can't stop eating. And I don't > exercise. Am I lazy? > > I'm trier all the time. All I do is eat and sleep. I don't feel > good. I don't want to go any where, or talk too any one. I'm trier > of people seeing me fat. > > Then why don't I do any thing about it? > > > > I had orientation, one year ago. And I'm still the same, nothing > has changed. What's wrong with me? > > > > I can't even get my self out of the house to go too a meeting. > > > > I Have one more test to take, then I will be done with my lad work. > > > > Please help > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 Thanks for sharing this with us. I too lost my little brother in 2001 from obesity. He weighed 500+ pounds and was one of those stories you see on TV where he only stayed in bed. On the rare occasions he would venture out he had to take oxygen with him too. He was only 34 years old. He wanted the surgery but Medicaid would not cover it. He died in his sleep...basically suffocated himself...there was fluid around his heart and in his lungs. He was my motivator for this surgery. He left behind 3 children. My step mother sent me pictures of his funeral as I couldnt get there in time..I got there a few days after due to 9-11. The pictures tore my heart apart. He couldnt fit in a casket...they had him laid out on a table. I felt so humiliated that his wife would have had him that way...He was to be cremated and I feel it would have given him more dignity to not have been viewed in that way. I vowed then that my husband and children would not have to see me like that. I had my surgery and owe it to my brother to live my life to the fullest. wanted this surgery so bad, but because he was dependant on government assistance he was denied this life saving gift. Huggles > > I don't know what to do any more. > > I want to lose the 10%, but I can't stop eating. And I don't > exercise. Am I lazy? > > I'm trier all the time. All I do is eat and sleep. I don't feel > good. I don't want to go any where, or talk too any one. I'm trier > of people seeing me fat. > > Then why don't I do any thing about it? > > > > I had orientation, one year ago. And I'm still the same, nothing > has changed. What's wrong with me? > > > > I can't even get my self out of the house to go too a meeting. > > > > I Have one more test to take, then I will be done with my lad work. > > > > Please help > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 My God, now there are three of us who share the loss of a sibling due to obesity! Thanks for sharing this with us. Hugs, LaWanda At 08:54 AM 6/24/05, you wrote: >Thanks for sharing this with us. I too lost my little brother in >2001 from obesity. He weighed 500+ pounds and was one of those >stories you see on TV where he only stayed in bed. On the rare >occasions he would venture out he had to take oxygen with him too. >He was only 34 years old. He wanted the surgery but Medicaid would >not cover it. He died in his sleep...basically suffocated >himself...there was fluid around his heart and in his lungs. He was >my motivator for this surgery. He left behind 3 children. My step >mother sent me pictures of his funeral as I couldnt get there in >time..I got there a few days after due to 9-11. The pictures tore my >heart apart. He couldnt fit in a casket...they had him laid out on a >table. I felt so humiliated that his wife would have had him that >way...He was to be cremated and I feel it would have given him more >dignity to not have been viewed in that way. I vowed then that my >husband and children would not have to see me like that. I had my >surgery and owe it to my brother to live my life to the fullest. > wanted this surgery so bad, but because he was dependant on >government assistance he was denied this life saving gift. > >Huggles > > > > > > I don't know what to do any more. > > > I want to lose the 10%, but I can't stop eating. And I don't > > exercise. Am I lazy? > > > I'm trier all the time. All I do is eat and sleep. I don't >feel > > good. I don't want to go any where, or talk too any one. I'm >trier > > of people seeing me fat. > > > Then why don't I do any thing about it? > > > > > > I had orientation, one year ago. And I'm still the same, >nothing > > has changed. What's wrong with me? > > > > > > I can't even get my self out of the house to go too a >meeting. > > > > > > I Have one more test to take, then I will be done with my lad >work. > > > > > > Please help > > > > > > Thank you > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 My God, now there are three of us who share the loss of a sibling due to obesity! Thanks for sharing this with us. Hugs, LaWanda At 08:54 AM 6/24/05, you wrote: >Thanks for sharing this with us. I too lost my little brother in >2001 from obesity. He weighed 500+ pounds and was one of those >stories you see on TV where he only stayed in bed. On the rare >occasions he would venture out he had to take oxygen with him too. >He was only 34 years old. He wanted the surgery but Medicaid would >not cover it. He died in his sleep...basically suffocated >himself...there was fluid around his heart and in his lungs. He was >my motivator for this surgery. He left behind 3 children. My step >mother sent me pictures of his funeral as I couldnt get there in >time..I got there a few days after due to 9-11. The pictures tore my >heart apart. He couldnt fit in a casket...they had him laid out on a >table. I felt so humiliated that his wife would have had him that >way...He was to be cremated and I feel it would have given him more >dignity to not have been viewed in that way. I vowed then that my >husband and children would not have to see me like that. I had my >surgery and owe it to my brother to live my life to the fullest. > wanted this surgery so bad, but because he was dependant on >government assistance he was denied this life saving gift. > >Huggles > > > > > > I don't know what to do any more. > > > I want to lose the 10%, but I can't stop eating. And I don't > > exercise. Am I lazy? > > > I'm trier all the time. All I do is eat and sleep. I don't >feel > > good. I don't want to go any where, or talk too any one. I'm >trier > > of people seeing me fat. > > > Then why don't I do any thing about it? > > > > > > I had orientation, one year ago. And I'm still the same, >nothing > > has changed. What's wrong with me? > > > > > > I can't even get my self out of the house to go too a >meeting. > > > > > > I Have one more test to take, then I will be done with my lad >work. > > > > > > Please help > > > > > > Thank you > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 My God, now there are three of us who share the loss of a sibling due to obesity! Thanks for sharing this with us. Hugs, LaWanda At 08:54 AM 6/24/05, you wrote: >Thanks for sharing this with us. I too lost my little brother in >2001 from obesity. He weighed 500+ pounds and was one of those >stories you see on TV where he only stayed in bed. On the rare >occasions he would venture out he had to take oxygen with him too. >He was only 34 years old. He wanted the surgery but Medicaid would >not cover it. He died in his sleep...basically suffocated >himself...there was fluid around his heart and in his lungs. He was >my motivator for this surgery. He left behind 3 children. My step >mother sent me pictures of his funeral as I couldnt get there in >time..I got there a few days after due to 9-11. The pictures tore my >heart apart. He couldnt fit in a casket...they had him laid out on a >table. I felt so humiliated that his wife would have had him that >way...He was to be cremated and I feel it would have given him more >dignity to not have been viewed in that way. I vowed then that my >husband and children would not have to see me like that. I had my >surgery and owe it to my brother to live my life to the fullest. > wanted this surgery so bad, but because he was dependant on >government assistance he was denied this life saving gift. > >Huggles > > > > > > I don't know what to do any more. > > > I want to lose the 10%, but I can't stop eating. And I don't > > exercise. Am I lazy? > > > I'm trier all the time. All I do is eat and sleep. I don't >feel > > good. I don't want to go any where, or talk too any one. I'm >trier > > of people seeing me fat. > > > Then why don't I do any thing about it? > > > > > > I had orientation, one year ago. And I'm still the same, >nothing > > has changed. What's wrong with me? > > > > > > I can't even get my self out of the house to go too a >meeting. > > > > > > I Have one more test to take, then I will be done with my lad >work. > > > > > > Please help > > > > > > Thank you > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 That is wonderful. You sure put it in very heartfelt words. I just know this will get to people. I hope you are posting this everywhere!!!!! Ingrid > > > (http://groups.yahoo.com/group/TheSemiColonFriends/) > One simple test that's all it takes. > A day out of your life. > A little unpleasant > preparation. > A little look at what's > behind you > And colon cancer will be one > thing you > won't have to deal with. > > If cancer is in your family you are > definitely at risk. If it is > not you only > have LESS risk not NO risk! > The scary thing is no one > thinks > it will happen to them. The > rest think it > is something you can only > get after 50. > And doctors often tell you > you don't > need to be tested until 50. > > That's what they told my > husband just 1 week before > he was diagnosed with a 13 > cm colon tumor and > multiple liver tumors. > He was only 43. He wasn't > due for a test > for 7 YEARS and suddenly > his life was > being talked about in > weeks and months > instead of years. > > Two years later my huband, > Phil and I consider > ourselves fortunate that > through good medicine and lots of > prayer Phil is still here. > > But dear friends I'd be lying if I were to tell you that > it has been easy. There is > stress about health of course > not to mention the expense > of cancer treatment > and medicine to counter > everything from nausea and > regularity, to depression and blood pressure. > Our lives and priorities > will never truly be the same. > > > They say it can take 5 > years for a colon tumor > to grow from a small > polyp you litterally snip away > to full blown cancer and > maybe even longer to spread. > That means Phil may have > had some sort of colon growth > since he was in his 30's > That's right 3-0. > A good 15-20 years BEFORE > the general age for > cancer testing. > > I don't know the > statistics for colon cancer before 50 > other than to tell you it > is on the rise. I don't know how > many get it who have NO history of cancer, except that > like friends who have > died of breast cancer w/o a history > people are dying of colon > cancer w/o a history too. > > As your friend I urge you > DON'T BE ONE OF THOSE > STATISTICS!!!! > Ask your Dr. for a > colonoscopy. > Just 1 day of unpleasantness > for a lifetime w/o > colon cancer. > > YOU ARE WORTH IT!!! > > > > > In Honor of my husband > A. May > diagnosed Stage 4 > Colo-rectal Cancer > June 19, 2003 > With All My Love > ALWAYS > Narice > (http://groups.yahoo.com/group/TheSemiColonFriends/) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2006 Report Share Posted March 31, 2006 Hi - Welcome, I'm brand new to this group too and I also live in NC!! I am over on the coast in a really small rural town called Sneads Ferry. I was Dx'd in 1994 in New York with NS, I've been sick since 1989. I have only been living in North Carolina for just over two years and havent seen any Dr here for the disease-I also havent taken any medicine for it either in the last 3 or 4 years. I have good and bad days - but lately the bad is outweighing the good. I dont want to whine, but I am afraid if I dont get to a doc soon I will just get to the point of no return.I have financial issues and really lousy insurance so I have been trying to ignore this for the last 3 years, but I dont know what to do anymore.I would assume you have a neurologist here, the closest city to me is ville NC and I am about an hour north of Wilmington-would you mind telling me who you see? Irene > > Hi, > My name is . I live in North Carolina.I have a wonderful husband, twin > boys that are thirteen. We live in the country on a farm. I love animals, we > have four cats and a dog. I am an artist I used to teach art but am unable > now due to my disease. We have a pool that I really enjoy. I was diagnosis > with neurosarcoidosis in April 1999. I had been sick for along time. I had a > cough that would not go away which lead to x-rays and surgery which gave them > the diagnosis of sarcoidosis. I also had a MRI of the brain which showed > small lessions throughout the brain. They came up with the diagnosis of > neursarcoidosis after seeing the MRI and all of my symptoms. I have really > been sick but am getting better with help from my Dr. My family is great they > really support me and also my Dr. I am on plaquenil, arava, leukeran and > prednisone. The combination of these drugs has been helpful especially the > arava. My tremors are not as bad and my walking and balance is improving. I > also have problems with my speech and that is getting better. I also have > sarcoidosis in my eyes, lungs and lymph nodes. Each day is a challenge > because I don't know how I will feel. Cannot go or do much anymore because I > am so tired and unable to walk much. I thought it would be helpful to heard > for others who have the same problem. People don't realize how much a > struggle it is to have this disease unless they could live with it for one > day. I feel like I am fighting a monster, somedays it wins but most of the > days I win. > > Your new friend, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2006 Report Share Posted March 31, 2006 Hi - Welcome, I'm brand new to this group too and I also live in NC!! I am over on the coast in a really small rural town called Sneads Ferry. I was Dx'd in 1994 in New York with NS, I've been sick since 1989. I have only been living in North Carolina for just over two years and havent seen any Dr here for the disease-I also havent taken any medicine for it either in the last 3 or 4 years. I have good and bad days - but lately the bad is outweighing the good. I dont want to whine, but I am afraid if I dont get to a doc soon I will just get to the point of no return.I have financial issues and really lousy insurance so I have been trying to ignore this for the last 3 years, but I dont know what to do anymore.I would assume you have a neurologist here, the closest city to me is ville NC and I am about an hour north of Wilmington-would you mind telling me who you see? Irene > > Hi, > My name is . I live in North Carolina.I have a wonderful husband, twin > boys that are thirteen. We live in the country on a farm. I love animals, we > have four cats and a dog. I am an artist I used to teach art but am unable > now due to my disease. We have a pool that I really enjoy. I was diagnosis > with neurosarcoidosis in April 1999. I had been sick for along time. I had a > cough that would not go away which lead to x-rays and surgery which gave them > the diagnosis of sarcoidosis. I also had a MRI of the brain which showed > small lessions throughout the brain. They came up with the diagnosis of > neursarcoidosis after seeing the MRI and all of my symptoms. I have really > been sick but am getting better with help from my Dr. My family is great they > really support me and also my Dr. I am on plaquenil, arava, leukeran and > prednisone. The combination of these drugs has been helpful especially the > arava. My tremors are not as bad and my walking and balance is improving. I > also have problems with my speech and that is getting better. I also have > sarcoidosis in my eyes, lungs and lymph nodes. Each day is a challenge > because I don't know how I will feel. Cannot go or do much anymore because I > am so tired and unable to walk much. I thought it would be helpful to heard > for others who have the same problem. People don't realize how much a > struggle it is to have this disease unless they could live with it for one > day. I feel like I am fighting a monster, somedays it wins but most of the > days I win. > > Your new friend, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2006 Report Share Posted March 31, 2006 Hi - Welcome, I'm brand new to this group too and I also live in NC!! I am over on the coast in a really small rural town called Sneads Ferry. I was Dx'd in 1994 in New York with NS, I've been sick since 1989. I have only been living in North Carolina for just over two years and havent seen any Dr here for the disease-I also havent taken any medicine for it either in the last 3 or 4 years. I have good and bad days - but lately the bad is outweighing the good. I dont want to whine, but I am afraid if I dont get to a doc soon I will just get to the point of no return.I have financial issues and really lousy insurance so I have been trying to ignore this for the last 3 years, but I dont know what to do anymore.I would assume you have a neurologist here, the closest city to me is ville NC and I am about an hour north of Wilmington-would you mind telling me who you see? Irene > > Hi, > My name is . I live in North Carolina.I have a wonderful husband, twin > boys that are thirteen. We live in the country on a farm. I love animals, we > have four cats and a dog. I am an artist I used to teach art but am unable > now due to my disease. We have a pool that I really enjoy. I was diagnosis > with neurosarcoidosis in April 1999. I had been sick for along time. I had a > cough that would not go away which lead to x-rays and surgery which gave them > the diagnosis of sarcoidosis. I also had a MRI of the brain which showed > small lessions throughout the brain. They came up with the diagnosis of > neursarcoidosis after seeing the MRI and all of my symptoms. I have really > been sick but am getting better with help from my Dr. My family is great they > really support me and also my Dr. I am on plaquenil, arava, leukeran and > prednisone. The combination of these drugs has been helpful especially the > arava. My tremors are not as bad and my walking and balance is improving. I > also have problems with my speech and that is getting better. I also have > sarcoidosis in my eyes, lungs and lymph nodes. Each day is a challenge > because I don't know how I will feel. Cannot go or do much anymore because I > am so tired and unable to walk much. I thought it would be helpful to heard > for others who have the same problem. People don't realize how much a > struggle it is to have this disease unless they could live with it for one > day. I feel like I am fighting a monster, somedays it wins but most of the > days I win. > > Your new friend, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 Please get your child to an emergency room ASAP. Not to give you a scare but she could be suffering from a bout of cholangitis or some other digestive problem which is best handled by IV antibiotics. Has there been some invasive procedure done (ERCP, upper GI, etc.)? She may have gotten a bug from a non-sterile scope during one of these procedures as some facilities are not up to good sterilizations standards. Whatever may be the case, please do not wait until Monday to have someone see your child. Blessings for a speedy answer and recovery, Deb GERD, UC 1993, cholecystectomy 2004, PSC 2005, colectomy 2005, CKD 2007, SBO April 2008, one fat and happy golden retriever Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2013 Report Share Posted January 27, 2013 UNSUBSCRIBE Quote Link to comment Share on other sites More sharing options...
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