(no subject)

[Guest guest]

Hi, I also was diagnosed with cea at the age of 20, and was put on

antibiotics. I am also in the process of dieting and drinking plenty of

water. Also am using Noritate. But it helps very little. I just wanted

to agree with you that this DOES aggrevate during the mentrual cycle.

Atleast in mine it does. Every month I go through the ultimate fight

against our problem and as soon as I THINK I have it under control, BAM!!

Menstrual cycle. It's just that way. Remember that women's bodies will

react a little differently because our cycles are different from men. We

can't do much about that.

Much Luck!

[Guest guest]

Elena,

Actually...ha ha ha....you're right. There are some things that are

difficult to even digest mentally. And no, I'm not on it religiously. I'm

starting out with drinking lots of water, changing my diet a bit and now I

will start drinking Vitamin C. The thing is with changing my diet, is a

little difficult. I am Cuban, and eat cuban food, which is cooked alot

with tomato sauce. I read in someone's e-mail to the board about how they

stopped using tomatoes in their diet. I found that quite interesting

because that has always been a doubt in my head about tomato sauce in my

cooking, and how that should be affecting me.

Reason: I became a Cosmotologist years ago and they taught us about skin

disorders and COLORS. Yes, colors. It's incredible but true. The primary

cycle of colors is red, blue and yellow. And the taught us colors that

neutralize each of these colors. Mostly with the intention of hair

tinting. But think about this, red neutralizes green and vice versa. Now,

think about this fact also and put it together. When you feed babies too

much carrots, their skin tends to turn orangy, right? What do the

pediatricians say? Give them more GREEN vegetables. To tone down the

orangy effect in their skin. And although orange isn't red, it's in the

family.

Therefore, it's my understanding that tomatoes may NOT be helping my

rosacea. As I've said before, when I eat more green vegetables in my diet,

my rosacea calms down a 90%. It's incredible but true.

I find this difficult because my husband doesn't eat vegetables....a bit

stubborn. But I don't have enough money or time to be making 2 sets of

meals. So, I'm a bit stuck with the diet situation. I can change my diet

for the most part at work, and when I get home, eat less of what's on the

table. Which I have been doing. Along with drinking more water. It's

helped incredibly.

Except when it's time for your monthly......bad luck for us girls!

[Guest guest]

Elena,

Actually...ha ha ha....you're right. There are some things that are

difficult to even digest mentally. And no, I'm not on it religiously. I'm

starting out with drinking lots of water, changing my diet a bit and now I

will start drinking Vitamin C. The thing is with changing my diet, is a

little difficult. I am Cuban, and eat cuban food, which is cooked alot

with tomato sauce. I read in someone's e-mail to the board about how they

stopped using tomatoes in their diet. I found that quite interesting

because that has always been a doubt in my head about tomato sauce in my

cooking, and how that should be affecting me.

Reason: I became a Cosmotologist years ago and they taught us about skin

disorders and COLORS. Yes, colors. It's incredible but true. The primary

cycle of colors is red, blue and yellow. And the taught us colors that

neutralize each of these colors. Mostly with the intention of hair

tinting. But think about this, red neutralizes green and vice versa. Now,

think about this fact also and put it together. When you feed babies too

much carrots, their skin tends to turn orangy, right? What do the

pediatricians say? Give them more GREEN vegetables. To tone down the

orangy effect in their skin. And although orange isn't red, it's in the

family.

Therefore, it's my understanding that tomatoes may NOT be helping my

rosacea. As I've said before, when I eat more green vegetables in my diet,

my rosacea calms down a 90%. It's incredible but true.

I find this difficult because my husband doesn't eat vegetables....a bit

stubborn. But I don't have enough money or time to be making 2 sets of

meals. So, I'm a bit stuck with the diet situation. I can change my diet

for the most part at work, and when I get home, eat less of what's on the

table. Which I have been doing. Along with drinking more water. It's

helped incredibly.

Except when it's time for your monthly......bad luck for us girls!

[Guest guest]

Elena,

Actually...ha ha ha....you're right. There are some things that are

difficult to even digest mentally. And no, I'm not on it religiously. I'm

starting out with drinking lots of water, changing my diet a bit and now I

will start drinking Vitamin C. The thing is with changing my diet, is a

little difficult. I am Cuban, and eat cuban food, which is cooked alot

with tomato sauce. I read in someone's e-mail to the board about how they

stopped using tomatoes in their diet. I found that quite interesting

because that has always been a doubt in my head about tomato sauce in my

cooking, and how that should be affecting me.

Reason: I became a Cosmotologist years ago and they taught us about skin

disorders and COLORS. Yes, colors. It's incredible but true. The primary

cycle of colors is red, blue and yellow. And the taught us colors that

neutralize each of these colors. Mostly with the intention of hair

tinting. But think about this, red neutralizes green and vice versa. Now,

think about this fact also and put it together. When you feed babies too

much carrots, their skin tends to turn orangy, right? What do the

pediatricians say? Give them more GREEN vegetables. To tone down the

orangy effect in their skin. And although orange isn't red, it's in the

family.

Therefore, it's my understanding that tomatoes may NOT be helping my

rosacea. As I've said before, when I eat more green vegetables in my diet,

my rosacea calms down a 90%. It's incredible but true.

I find this difficult because my husband doesn't eat vegetables....a bit

stubborn. But I don't have enough money or time to be making 2 sets of

meals. So, I'm a bit stuck with the diet situation. I can change my diet

for the most part at work, and when I get home, eat less of what's on the

table. Which I have been doing. Along with drinking more water. It's

helped incredibly.

Except when it's time for your monthly......bad luck for us girls!

[Guest guest]

Hi J, I know how you feel as i have been exactly were you are now. I would

recommend laser as it gave me back my confidence, i could finally look

people in the face again.When you are that low there is only one way to go

(UP) good luck Perrianne

>From: Jreyn71716@...

>To: rosacea-support

>Subject: (no subject)

>Date: Mon, 10 Sep 2001 17:46:42 EDT

>

>Hi

>

>As a new member to this group I thoght I would give some background

>to my condition and hopefully learn from other people with similar

>circumstances.

>I`m now 28 but have suffered with seborrheic dermatitis for about 12

>years, for this I was prescribed steroid cream and Nizoral

>shampoo.However the steroid cream has i have been told caused steroid

>rosacea and I therefore have stopped using it, after several very bad

>flare ups my skin has subsided.

>Now I find that my skin and scalp becomes scaly/thick and extremely

>dry despite using Aqueous cream(water based) and I am therefore

>having to use the Nizoral shampoo frequently and basically scrubbing

>my skin to rid it of it`s " second layer " if you like, which obviously

>aggravates my rosacea and becomes a vicious circle.

>I`m really getting seriously down and have lost all self esteem and

>take days off work now when I just can`t go out the house..

>I`ve heard of laser treatment and despite the cost am seriously

>considering it.

>Can anyone offer any help.

>Yours in desperation...

>J

>

>

>

>

>

>

>

[Guest guest]

Dear Brett,, I seem to have a bit of a red nose all the time but when i have

a flush it glows so red i could crawl in a hole. My cheeks are the same.I

do not seem to have the swelling.I had laser done about 7 years ago when i

was at my lowest,i only had 3 sessions as i could not afford any more at

that time. After a couple of months my face seemed to look fairly normal

again, i did not seem to get any flushing again until a couple of years ago.

I have been thinking of going back and trying it again as i can see it going

back to the way it was. All the best Perrianne

>

>To: " Perrianne Hajdu " perrianne7@...>

>Subject: Re: (no subject)

>Date: Sat, 15 Sep 2001 17:21:38 -0400

>

>Perrianne,

>Hello, I saw your post regarding laser. Did you have ant swelling? My

>nose

>gets red and then it stays swollen for days. Actually, it has been swollen

>for months. I have had one Vbeam treatment done and connot wait for the

>second. How has your laser helped you?

>thank you

> (no subject)

> >>Date: Mon, 10 Sep 2001 17:46:42 EDT

> >>

> >>Hi

> >>

> >>As a new member to this group I thoght I would give some background

> >>to my condition and hopefully learn from other people with similar

> >>circumstances.

> >>I`m now 28 but have suffered with seborrheic dermatitis for about 12

> >>years, for this I was prescribed steroid cream and Nizoral

> >>shampoo.However the steroid cream has i have been told caused steroid

> >>rosacea and I therefore have stopped using it, after several very bad

> >>flare ups my skin has subsided.

> >>Now I find that my skin and scalp becomes scaly/thick and extremely

> >>dry despite using Aqueous cream(water based) and I am therefore

> >>having to use the Nizoral shampoo frequently and basically scrubbing

> >>my skin to rid it of it`s " second layer " if you like, which obviously

> >>aggravates my rosacea and becomes a vicious circle.

> >>I`m really getting seriously down and have lost all self esteem and

> >>take days off work now when I just can`t go out the house..

> >>I`ve heard of laser treatment and despite the cost am seriously

> >>considering it.

> >>Can anyone offer any help.

> >>Yours in desperation...

> >>J

> >>

> >>

> >>

> >>

> >>

> >>

> >>

[Guest guest]

Dear Brett,, I seem to have a bit of a red nose all the time but when i have

a flush it glows so red i could crawl in a hole. My cheeks are the same.I

do not seem to have the swelling.I had laser done about 7 years ago when i

was at my lowest,i only had 3 sessions as i could not afford any more at

that time. After a couple of months my face seemed to look fairly normal

again, i did not seem to get any flushing again until a couple of years ago.

I have been thinking of going back and trying it again as i can see it going

back to the way it was. All the best Perrianne

>

>To: " Perrianne Hajdu " perrianne7@...>

>Subject: Re: (no subject)

>Date: Sat, 15 Sep 2001 17:21:38 -0400

>

>Perrianne,

>Hello, I saw your post regarding laser. Did you have ant swelling? My

>nose

>gets red and then it stays swollen for days. Actually, it has been swollen

>for months. I have had one Vbeam treatment done and connot wait for the

>second. How has your laser helped you?

>thank you

> (no subject)

> >>Date: Mon, 10 Sep 2001 17:46:42 EDT

> >>

> >>Hi

> >>

> >>As a new member to this group I thoght I would give some background

> >>to my condition and hopefully learn from other people with similar

> >>circumstances.

> >>I`m now 28 but have suffered with seborrheic dermatitis for about 12

> >>years, for this I was prescribed steroid cream and Nizoral

> >>shampoo.However the steroid cream has i have been told caused steroid

> >>rosacea and I therefore have stopped using it, after several very bad

> >>flare ups my skin has subsided.

> >>Now I find that my skin and scalp becomes scaly/thick and extremely

> >>dry despite using Aqueous cream(water based) and I am therefore

> >>having to use the Nizoral shampoo frequently and basically scrubbing

> >>my skin to rid it of it`s " second layer " if you like, which obviously

> >>aggravates my rosacea and becomes a vicious circle.

> >>I`m really getting seriously down and have lost all self esteem and

> >>take days off work now when I just can`t go out the house..

> >>I`ve heard of laser treatment and despite the cost am seriously

> >>considering it.

> >>Can anyone offer any help.

> >>Yours in desperation...

> >>J

> >>

> >>

> >>

> >>

> >>

> >>

> >>

[Guest guest]

Dear Brett,, I seem to have a bit of a red nose all the time but when i have

a flush it glows so red i could crawl in a hole. My cheeks are the same.I

do not seem to have the swelling.I had laser done about 7 years ago when i

was at my lowest,i only had 3 sessions as i could not afford any more at

that time. After a couple of months my face seemed to look fairly normal

again, i did not seem to get any flushing again until a couple of years ago.

I have been thinking of going back and trying it again as i can see it going

back to the way it was. All the best Perrianne

>

>To: " Perrianne Hajdu " perrianne7@...>

>Subject: Re: (no subject)

>Date: Sat, 15 Sep 2001 17:21:38 -0400

>

>Perrianne,

>Hello, I saw your post regarding laser. Did you have ant swelling? My

>nose

>gets red and then it stays swollen for days. Actually, it has been swollen

>for months. I have had one Vbeam treatment done and connot wait for the

>second. How has your laser helped you?

>thank you

> (no subject)

> >>Date: Mon, 10 Sep 2001 17:46:42 EDT

> >>

> >>Hi

> >>

> >>As a new member to this group I thoght I would give some background

> >>to my condition and hopefully learn from other people with similar

> >>circumstances.

> >>I`m now 28 but have suffered with seborrheic dermatitis for about 12

> >>years, for this I was prescribed steroid cream and Nizoral

> >>shampoo.However the steroid cream has i have been told caused steroid

> >>rosacea and I therefore have stopped using it, after several very bad

> >>flare ups my skin has subsided.

> >>Now I find that my skin and scalp becomes scaly/thick and extremely

> >>dry despite using Aqueous cream(water based) and I am therefore

> >>having to use the Nizoral shampoo frequently and basically scrubbing

> >>my skin to rid it of it`s " second layer " if you like, which obviously

> >>aggravates my rosacea and becomes a vicious circle.

> >>I`m really getting seriously down and have lost all self esteem and

> >>take days off work now when I just can`t go out the house..

> >>I`ve heard of laser treatment and despite the cost am seriously

> >>considering it.

> >>Can anyone offer any help.

> >>Yours in desperation...

> >>J

> >>

> >>

> >>

> >>

> >>

> >>

> >>

[Guest guest]

In a message dated 10/15/01 8:22:24 PM Eastern Daylight Time,

asularz@... writes:

> It's the only thing that has

>

,

what symptoms did the Avita gel help? And where do you buy it?

~~~Beth~~~

[Guest guest]

I've sent out numerous posts about Avita Gel. It's the only thing that has

helped me with my rosacea (and I've had extremely BAD rosacea for 10+

years.)

Give it a try. It's the mildest form of Vit. A out there.

(no subject)

> I just got back from my derm appointment this morning and as usual I'm

> completely frustrated. She was the most obnoxious (sp) doctor I have met

so

> far. I felt she was just humoring me. I basically was asking all the

> questions based on this group and years of research. At one point I

actually

> said to her she was being rude and to please not act annoyed with me. I

have

> come to the realization that the only thing they are good for is writing

the

> perscription for what you want. Sometimes I feel we have more knowledge

than

> them.

>

> Just needed to vent. By the way she sent me home with samples of a micro

> retina A called Avita. Anyone tried it? I'm sure its too harsh for us,

but

> she gave the cream version and said What do you have to lose? Just my

> face for cry and out loud.!!

>

> diane

>

>

> --

> Please read the list highlights before posting to the whole group

(http://rosacea.ii.net/toc.html)

>

> See http://www.drnase.com for info on his recently published book.

>

> To leave the list send an email to

rosacea-support-unsubscribe

>

>

[Guest guest]

Dear and Diane,

This isn't proof...but, I " exploded " with rosacea 2 months after using Avita.

Only one of the

suspects is Avita however as I had other suspect new agents introduced too

(Cytomel

, L-Tryptophan and tyrosine) in the same

time frame (2 months

prior to the rosacea explosion).

I can say that although I used Avita sparingly (twice a week? maybe)...it did

affect my skin each time

and produced a response/sensitivity that was not " my normal " . And then I

" exploded " ...perhaps

unrelated or only marginally related to the Avita...but, perhaps causally

related too...you just can't

know for sure.

But...please be very skeptical and avoid it and its analogues if you can.

Sallie

" C. Sularz " wrote:

> I've sent out numerous posts about Avita Gel. It's the only thing that has

> helped me with my rosacea (and I've had extremely BAD rosacea for 10+

> years.)

>

> Give it a try. It's the mildest form of Vit. A out there.

>

> (no subject)

>

> > I just got back from my derm appointment this morning and as usual I'm

> > completely frustrated. She was the most obnoxious (sp) doctor I have met

> so

> > far. I felt she was just humoring me. I basically was asking all the

> > questions based on this group and years of research. At one point I

> actually

> > said to her she was being rude and to please not act annoyed with me. I

> have

> > come to the realization that the only thing they are good for is writing

> the

> > perscription for what you want. Sometimes I feel we have more knowledge

> than

> > them.

> >

> > Just needed to vent. By the way she sent me home with samples of a micro

> > retina A called Avita. Anyone tried it? I'm sure its too harsh for us,

> but

> > she gave the cream version and said What do you have to lose? Just my

> > face for cry and out loud.!!

> >

> > diane

> >

> >

> > --

> > Please read the list highlights before posting to the whole group

> (http://rosacea.ii.net/toc.html)

> >

> > See http://www.drnase.com for info on his recently published book.

> >

> > To leave the list send an email to

> rosacea-support-unsubscribe

> >

> >

[Guest guest]

I've been on it a year (and use it regularly - not " sparingly " ) and have had

no ill effects except that most of my rosacea symptoms (which I had for 10+

years) have gone and I consider that close to a miracle!! I'm even off my

antibiotics now!

I was to the point where I didn't even want to leave my house - my texture

was so uneven, I was beet red, had papules/pustules ALL over. My derm

suggested the LOWEST form of Vitamin A which is Avita Gel. Within weeks

EVERYthing cleared up!

With all medications, you must follow there directions and use them as

prescribed - not just here and there.

(no subject)

> >

> > > I just got back from my derm appointment this morning and as usual I'm

> > > completely frustrated. She was the most obnoxious (sp) doctor I have

met

> > so

> > > far. I felt she was just humoring me. I basically was asking all the

> > > questions based on this group and years of research. At one point I

> > actually

> > > said to her she was being rude and to please not act annoyed with me.

I

> > have

> > > come to the realization that the only thing they are good for is

writing

> > the

> > > perscription for what you want. Sometimes I feel we have more

knowledge

> > than

> > > them.

> > >

> > > Just needed to vent. By the way she sent me home with samples of a

micro

> > > retina A called Avita. Anyone tried it? I'm sure its too harsh for

us,

> > but

> > > she gave the cream version and said What do you have to lose?

Just my

> > > face for cry and out loud.!!

> > >

> > > diane

> > >

> > >

> > > --

> > > Please read the list highlights before posting to the whole group

> > (http://rosacea.ii.net/toc.html)

> > >

> > > See http://www.drnase.com for info on his recently published book.

> > >

> > > To leave the list send an email to

> > rosacea-support-unsubscribe

> > >

> > >

[Guest guest]

Bernice,

I have heard of at least one shunt, hopefully someone will answer you.

I do not remember the results.

Welcome to our group, sorry you had to find us. There is a support

group in Denver

Parkinson Association of the Rockies

1420 Ogden St.

Denver, CO 80218

phone:

Fax:

email: parrockies@...

website: www.parkinsoncolorado.org

They cover Colorado, Wyoming, western Nebraska, and western Kansas.

Their Parkinson Plus support group meets the second Friday of each

month in Denver at Adult Day Program, 3444 S. Emerson St.,

Englewood, CO 80110. This group has many patients with ShyDrager/MSA.

Take care, Bill Werre

--------------------------------------------

BStern5774@... wrote:

My

husband was diagnosed w/Parkinson's 2 years ago. Now they think he

has MSA. He was a brilliant man, a scientist and now he is almost

like a vegetable. His movement is poor and his memory is failing.

He has been on sinimet and other Parkinson med and is not reacting well.

We are going to the Cleveland Clinic in hopes of some help. Any suggestions

would be most helpful.

Bernice Stern

If you do not wish to belong to shydrager,

you may

unsubscribe by sending a blank email

to

shydrager-unsubscribe

[Guest guest]

Bernice,

I have heard of at least one shunt, hopefully someone will answer you.

I do not remember the results.

Welcome to our group, sorry you had to find us. There is a support

group in Denver

Parkinson Association of the Rockies

1420 Ogden St.

Denver, CO 80218

phone:

Fax:

email: parrockies@...

website: www.parkinsoncolorado.org

They cover Colorado, Wyoming, western Nebraska, and western Kansas.

Their Parkinson Plus support group meets the second Friday of each

month in Denver at Adult Day Program, 3444 S. Emerson St.,

Englewood, CO 80110. This group has many patients with ShyDrager/MSA.

Take care, Bill Werre

--------------------------------------------

BStern5774@... wrote:

My

husband was diagnosed w/Parkinson's 2 years ago. Now they think he

has MSA. He was a brilliant man, a scientist and now he is almost

like a vegetable. His movement is poor and his memory is failing.

He has been on sinimet and other Parkinson med and is not reacting well.

We are going to the Cleveland Clinic in hopes of some help. Any suggestions

would be most helpful.

Bernice Stern

If you do not wish to belong to shydrager,

you may

unsubscribe by sending a blank email

to

shydrager-unsubscribe

[Guest guest]

Bernice,

Welcome to this group. They know about so much information and experiences.

My husband was diagnosed with Pd in 1997 and MSA in 1998. Be strong. There may well be some good days.

Marilyn

[Guest guest]

Bernice,

Welcome to this group. They know about so much information and experiences.

My husband was diagnosed with Pd in 1997 and MSA in 1998. Be strong. There may well be some good days.

Marilyn

[Guest guest]

Bernice,

Welcome to this group. They know about so much information and experiences.

My husband was diagnosed with Pd in 1997 and MSA in 1998. Be strong. There may well be some good days.

Marilyn

[Guest guest]

unsubscribe

[Guest guest]

PLEASE READ:

If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe

You create a whole new email. Don't reply to any. Put the email address above into the TO field. And send the email. That's all it takes.

Regards,

=jbf=

B. Fisher

[Guest guest]

Glad to know I am not the only one having email problems.

{{{HUGZ}}}

KarynWms@... wrote: test 123

Karyn E.

KarynWms@... " >Karyn , RN/Founder/President

http://www.pancassociation.org " >Pancreatitis Association International

Phone 1- /

[Guest guest]

If one day you feel like crying......

Call me.

I don't promise that

I will make you laugh,

But I can cry with you.

If one day you want to run away-

Don't be afraid to call me.

I don't promise to ask you to

stop...

But I can run with you.

If one day you don't want to

listen

to anyone...

Call me.

I promise to be there for you.

And I promise to be very quiet.

But if one day you call...

And there is no answer...

Come fast to see me.

Maybe I need you.

If I ever ignored you.

I'm Sorry...

If I ever made you feel bad or put you

down.

I'm Sorry...

If I ever thought I was bigger or better

than you.

I Luv You...

Don't ever forget that! Through bad times

and good,

I'll always be here for you.

I am Sorry...

For everything wrong I've ever done.

I'm writing this because what if tomorrow

never comes?

What if I never get to say good-bye or give a

u a BIG hug?

What if I never get to say I'm sorry or I

love you?

Because what if tomorrow never comes?

I LOVE YOU!

FRIENDS ALWAYS!!!

SEND THIS TO ALL THE PEOPLE YOU

LUV!!!!!!

WHEN YOU RECEIVE THIS LETTER,

YOU'RE REQUESTED TO SEND IT

TO AT LEAST 10 PEOPLE WHO ARE YOUR

FRIENDS..KEEP IT GOING!!!

INCLUDING THE PERSON WHO SENT IT TO

YOU.!

[Guest guest]

I checked the attachment for virusses, but didn't found anything. Still, I

do not trust this mail, because it has no subject and the attachment is also

an email without subject.

Timo

Fwd: (no subject)

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

I checked the attachment for virusses, but didn't found anything. Still, I

do not trust this mail, because it has no subject and the attachment is also

an email without subject.

Timo

Fwd: (no subject)

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

It's Ok, it's a text email that has been forwarded multiple times...aol

seems to handle it as a .eml There is no harmful attachment.

Hugs,

Pam

Re: Fwd: (no subject)

> I checked the attachment for virusses, but didn't found anything. Still, I

> do not trust this mail, because it has no subject and the attachment is

also

> an email without subject.

>

> Timo

>

>

> ----- Original Message -----

>

[Guest guest]

Angie,

Please tell your father my thoughts and prayers are with him on his

speedy recovery.