Guest guest Posted January 12, 1999 Report Share Posted January 12, 1999 Okay...I sent your letter on to the RLS group. Now...you need this address: rlssupport (AT) onelist (DOT) com When you write to the group, send it to that address. Did you see the letter I sent, today, welcoming new people, describing the photo album, and describing the Digest versus the Regular version of the email group? If not, I'll be happy to send it to you. If you are on the Regular version, then you are getting emails all day and night as soon as the people send them to the group. If you hit REPLY, you'll be writing back to that individual person. I think. Always check your TO: line at the top of the letter. If you want to reply to the group, I think you have to copy and paste the letter...or do a FORWARD. Experiment with it. Click on FORWARD, then try clicking on REPLY and see how it changes the TO: line. If you are writing an original letter...not in response to anyone, just use the address I gave you. You can also copy and paste parts of a letter and use it in your response. It's best to NOT include a person's whole letter when responding. Delete what isn't pertinent and just quote, or leave in, the parts that pertain to your comments. If you start getting too much mail, consider using the Digest Version, where you get one huge email per day with all the emails from that day inside of it. If you do that, you can NOT use the REPLY feature, you have to copy the people's addresses and write fresh new letters. It's a little more complicated, but for those of us who are overwhelmed with too much email, it helps us cut down. Welcome to the group. Have you been to Jodi's pages? Have you been to MY pages? http://www.netzone.com/~gunzel/rls.html My pages present a non-prescription meds approach to handling RLS. Jodi's pages will have links to an informational page about the RLS group, as well as tons of great RLS links. http://www.mLists.net/judson/rls.html Hope this helps. Jill At 03:21 PM 1/12/99 PST, you wrote: >Hello group! >I'm very new here, but have been trying like crazy to find info. on rls. >I do believe that I've hit the jackpot! I'm 34 and have had rls since I >was a kid. Up until a couple of years ago, I didn't even know that there >was a name for this,and I wasn't sure if there were other people that >had it. Have I learned alot! My symptoms are mainly kicking my >legs(often my left one) in order to get to sleep. When I was younger, I >often remember a combination kicking or rocking back and forth in order >to fall asleep. Unless I'm totally exhauseted,I rarely have the urge to >rock,just wiggle my legs back and forth. I'd be interesed in knowing if >anyone else had the rocking experience. Since hitting on this list,I >never dreamed that others suffered so with this syndrom. I'm happy to be >here and I hope to learn more. > >Kathy > > > >>From bounce-rlssupport--1401-crazyfatcat=hotmail.com (AT) onelist (DOT) com Tue >Jan 12 07:07:28 1999 >>Received: (qmail 32604 invoked by alias); 12 Jan 1999 15:08:50 -0000 >>Received: (qmail 32443 invoked from network); 12 Jan 1999 15:08:33 >-0000 >>Received: from unknown (HELO nz1.netzone.com) (207.98.129.70) by >pop.onelist.com with SMTP; 12 Jan 1999 15:08:33 -0000 >>Received: from netzone.netzone.com (d3-14.pay.goodnet.com >[207.98.131.142]) by nz1.netzone.com (8.8.8/8.6.9) with SMTP id IAA11304 >for rlssupport (AT) onelist (DOT) com>; Tue, 12 Jan 1999 08:07:43 -0700 (MST) >>Message-Id: 3.0.5.32.19990112075944.00877100@...> >>X-Sender: gunzel@... >>X-Mailer: QUALCOMM Windows Eudora Pro Version 3.0.5 (32) >>Date: Tue, 12 Jan 1999 07:59:44 -0700 >>To: rlssupport (AT) onelist (DOT) com >> >>Mailing-List: list rlssupport (AT) onelist (DOT) com; contact >rlssupport-owner (AT) onelist (DOT) com >>Delivered-To: mailing list rlssupport (AT) onelist (DOT) com >>Precedence: bulk >>List-Unsubscribe: rlssupport-unsubscribe (AT) ONElist (DOT) com> >>Mime-Version: 1.0 >>Content-Type: text/plain; charset= " us-ascii " >>Subject: RLS: clarification >> >> >> >>WARNING ABOUT TONE OF VOICE: This letter is one of explanation....NOT >>defensiveness. I'm VERY glad a potential misunderstanding was brought >to >>my attention. I'm just trying to clear up any question that I may have >>created. I'm smiling, Folks! )))))) >> >>A friendly member of our group has informed me that my " apology " >letter, >>which said that I didn't mean to send the letter about the photos >(meant >>for Jodi) to the group....might have been mistaken by new members of >the >>group. >> >>I certainly hope this isn't the case...but I see her point and see the >>potential for it to have been taken wrong by someone who didn't know me >or >>some of the history of the group. I appreciate her feedback, and I >hope >>she's the only one that saw the potential problems with my letter, but >just >>in case....and in the hopes of not offending anyone unnecessarily...I'd >>like to take a minute to explain what happened. >> >>#1...When I wrote the first letter (to Jodi) I was in a hurry to leave >>town. When I wrote the second one, it was late, I was in a hurry to >get to >>bed, and I'd been gone for three days and returned to find what was >>supposed to be a private email had been sent for everyone to see. In >this >>case...there was NOTHING in the email that wasn't fine for everyone to >see. >> No secrets, no personal comments, etc. BUT, it was written in sort of >a >>shorthand that I knew Jodi would understand. If I'd written it to the >>group (which is 200+ people), I'd have made all the comments much >clearer. >>Why did I seem embarrassed about it? I wasn't ashamed of the >content....I >>was just disappointed that I'm such a dunce sometimes and can't >remember a >>simple rule: ALWAYS check the TO: line and see where it's going, before >>hitting the SEND key!!! I should know better. Duh!!!! During the >last >>year, several of us HAVE sent embarrassing emails through the group by >>mistake. It was just " one more goof " and I was sorta joking about >>it...saying " ooops, guess it's MY turn to goof " . >> >>#2...I made this comment in my letter to Jodi, " Seems like there are >LOTS >>of new ones [members of the group] and there's no telling where they >came >>from. " It was pointed out to me that this sounded odd...potentially >>snobby, etc. I can understand that, too. I wasn't referring to >>geographic location. Although, as an aside, that's an interesting >topic, >>which I'll comment on, at the end of this letter. Once again, I would >have >>written that differently for the group. Jodi knew what I meant. For >the >>others, though...what I meant was that everyone arrives at our email >group >>along a different cyber-route. Some have gone to local support groups >in >>their towns and been told a URL which eventually gets them to the >group. >>Others were up all night one night, found my page, wrote to me, and I >told >>them to join the group. Others found the RLS Foundation page and saw >the >>link to the group. Others were given a name, which gave them another >name, >>which got them here. And others found Jodi and entered by having her >add >>them to the list. Why is this important? Because not everyone passed >the >> " group information page " on their way here. We have a website that >>explains all about the Regular and Digest versions of the list, the >group >>rules, net-etiquette, group topics, and how we like people to add >>signatures to letters so we know their age and location (just a way of >>keeping everyone straight) etc. etc. So, what I meant was, " we don't >know >>if everyone has seen the introduction materials on their way to the >group, >>or if they came here from a different direction and just suddenly, one >day, >>started receiving emails. " >> >>There are no secrets in that letter I sent. And the only reason I sent >it >>was because I wanted Jodi, in her position as moderator, to broadcast >some >>of the group information for all the new folks. I wanted the >information >>known. I just felt she was the one to put it out, not myself. >> >>I hope this clears it up. As for the person who pointed out the >possible >>confusion....*smile*....no...it was NOT an " idiotic assumption " . It >was a >>genuine concern, and I really appreciate you pointing out to me the >>possibility for major misunderstanding from people who didn't know me, >yet. >>I think we're back on track, now. Yes? >> >>I've learned many things from this group in the past year. I'd say >about >>50% of it has been about RLS, but the other 50% has been about >>communications and dealing with people who are tired and hurting (like >most >>of us are). We easily misunderstand people, take things wrong, or let >out >>feelings get stepped on. I think, in terms of our cyber support group, >the >>best rule of thumb is to do exactly what this member did with me. When >you >>think a letter sounds mean, aggressive, hateful, out of place, >>etc....contact the person and make sure it was meant the way you read >it. >>There's a good chance it wasn't. I know that for myself, I really >>appreciate the chance to explain and clear things up. >> >>Meanwhile.....I'm going to go ahead and rewrite that letter to Jodi and >>include the info, for the group, in a separate email. >>Thanks, >> >>Jill, 46 >>Payson, AZ >>http://www.netzone.com/~gunzel/rls.html >> >>------------------------------------------------------------------------ >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.