Here is some EMPOWERMENT against the RLS Monster!!

April 6, 1999

Hi,

I personally E-mailed Tomy apologizing for not having sent him my file on

Mirapex/ Requip when I now remember, he pleaded for help. Tomy, I must be in

a real fog as I understand better then anyone, as a signicant other, how

tough RLS is on the one who feels so helpless as they see the profound

suffering that takes place; my mother is 81. who started this group

originally, if I remember correctly, got going on it trying to find

information just like I and Tomy are doing trying to find help his mother.

After beating our heads up against the wall with three neurologists, I

decided to form a support group locally figuring that would bring others who

each would know a little something that would help and all together, we would

do better tackling the RLS monster. Guess what, it bring in a wealth of

information and insights!

Stick around; we are going to empower you and your mother against this

monster Tomy!

I think I did send you a post that my Mom was being helped by Mirapex, etc.,

etc. and just didn't fully put it together. Please forgive me.

For newcomers or if you have not yet, I suggest you go by and read Dr.

Elaty's INFORMATION ON RLS: he makes mince meat of a difficult subject in

organizing the possible underlying causes that need checking out and then

working from least harmful or side effects on up with virtually every

treatment available. Plus below are other sites recommended by Dr. Elaty that

you visit. The comments are his; I just pasted them in. I will also post it

shortly so you have no excuses for not reading it!

Live in Central Florida? The next RLS Support Group meeting in Orlando is

Sunday, 4-11-99. Post to me for further details. We have a terrific bunch;

RLS sufferers or their significant others, are the nicest people in the

world! The RLS Cyberspace Group is excellent but there is nothing like

meeting in person with other RLS " pros " who have become that by necessity

after years of suffering. We have members from age 29 to 85.

Barbara

Facilitator Central Florida

RLS Support Group

P. S. For those who would like a quality printed job on beautiful salmon

paper of Dr. Elaty's write-up to take to your doctor as many physicians are

leary of something printed off the Internet, it is $2 donation now (8 pages;

printed front and back) + No. 10 long white self-addressed envelope w/33

cents postage & send both: Barbara Stock, 415 Kilshore Lane, Winter Park, FL

32789. I2 takes 55 cents postage, 3 = 77 cents postage & 4 = 99 cents + $2

ea. If you need more 4, post to me first. We'll give you a discount! Dr.

Elaty is our group's Medical Advisor and gives us permission to reprint his

Treatise on RLS.

ELATY, FRANK, MD: INFORMATION ON RESTLESS LEGS SYNDROME (RLS)/PERIOD LEG

MOVEMENT SYNDROME (PLMS): Concise and in an easy to understand by a physician

with clinical experience with many and who has extensively researched ways to

help RLS/PLMS patients. http://www.mlists.net/judson/Elaty.html

RLS FOUNDATION: Gold standard for excellent information! Also, a list of

local support groups and how to contact them: http://www.rls.org

RICHARD ALLEN, MD, JOHN HOPKINS, ON RLS:

http://www.mhsource.com/edu/psytimes/p980614.html

AOL CHAT TRANSCRIPT OF 11-19-98 WITH HIGHLY REGARDED RLS DOCS:

http://www.mlists.net/judson/RLSConference.html

HEALTHGATE: http://www.healthgate.com/HealthGate/MEDLINE/search-adv.shtml

Free searches of millions of medical journal articles.

JODI'S GREAT RLS SITE: http://www.mlists.net/judson/rls.html

MAYO CLINIC: You may have Restless Legs Syndrome.

http://www.mayohealth.org/mayo/9705/htm/restless.htm

NATIONAL INSTITUTE OF HEALTH: INFORMATION ON RLS:

http://www.ninds.nih.gov/healinfo/DISORDER/restless/RESTLESS.HTM

PREVENTION MAGAZINE ON RLS:

http://www.healthyideas.com/healing/vitamin/restlesslegs/

WEEKLY RLS AOL CHAT MEETING: E-Mail Jodi: jmjudson@...

RESTLESS LEGS SYNDROME FORUM: http://www.sleepnet.com/rls/rls.html

SOUTHERN CALIFORNIA RLS SUPPORT GROUP (A well organized bunch!):

http://surf.to/rls

WE MOVE (Excellent info on RLS!): http://www.wemove.org/

<< Barbara, Thank you so much for sharing your file. I asked for info on

Mirapex too, as my Mother(age 82) was just put on it. I think I

received 2 replies. Glad you had so much response. Your messages were

just what I needed to know. By the way, Mother is doing well. Only

been on Mirapex for 3 weeks but so far it's great. She is worried about

not sleeping, but she is taking one pill at 6 p.m. and still takes one

Sinemet before bedtime. I visited her Easter(she lives in Ky.) and it

was so great not to see her walking the floor suffering!! Anyway,

thanks for the info. Tomy in Ohio

>>

April 7, 1999

Our support group will discuss Mirapex and Requip at our next meeting April 17,

1999. Is it too

much trouble for you to send me information in your file? Can it be e-mailed?

Thank Pamela

SurSiliImp@... wrote:

> From: SurSiliImp@...

>

> Hi,

>

> I personally E-mailed Tomy apologizing for not having sent him my file on

> Mirapex/ Requip when I now remember, he pleaded for help. Tomy, I must be in

> a real fog as I understand better then anyone, as a signicant other, how

> tough RLS is on the one who feels so helpless as they see the profound

> suffering that takes place; my mother is 81. who started this group

> originally, if I remember correctly, got going on it trying to find

> information just like I and Tomy are doing trying to find help his mother.

>

> After beating our heads up against the wall with three neurologists, I

> decided to form a support group locally figuring that would bring others who

> each would know a little something that would help and all together, we would

> do better tackling the RLS monster. Guess what, it bring in a wealth of

> information and insights!

>

> Stick around; we are going to empower you and your mother against this

> monster Tomy!

>

> I think I did send you a post that my Mom was being helped by Mirapex, etc.,

> etc. and just didn't fully put it together. Please forgive me.

>

> For newcomers or if you have not yet, I suggest you go by and read Dr.

> Elaty's INFORMATION ON RLS: he makes mince meat of a difficult subject in

> organizing the possible underlying causes that need checking out and then

> working from least harmful or side effects on up with virtually every

> treatment available. Plus below are other sites recommended by Dr. Elaty that

> you visit. The comments are his; I just pasted them in. I will also post it

> shortly so you have no excuses for not reading it!

>

> Live in Central Florida? The next RLS Support Group meeting in Orlando is

> Sunday, 4-11-99. Post to me for further details. We have a terrific bunch;

> RLS sufferers or their significant others, are the nicest people in the

> world! The RLS Cyberspace Group is excellent but there is nothing like

> meeting in person with other RLS " pros " who have become that by necessity

> after years of suffering. We have members from age 29 to 85.

>

> Barbara

> Facilitator Central Florida

> RLS Support Group

>

> P. S. For those who would like a quality printed job on beautiful salmon

> paper of Dr. Elaty's write-up to take to your doctor as many physicians are

> leary of something printed off the Internet, it is $2 donation now (8 pages;

> printed front and back) + No. 10 long white self-addressed envelope w/33

> cents postage & send both: Barbara Stock, 415 Kilshore Lane, Winter Park, FL

> 32789. I2 takes 55 cents postage, 3 = 77 cents postage & 4 = 99 cents + $2

> ea. If you need more 4, post to me first. We'll give you a discount! Dr.

> Elaty is our group's Medical Advisor and gives us permission to reprint his

> Treatise on RLS.

>

> ELATY, FRANK, MD: INFORMATION ON RESTLESS LEGS SYNDROME (RLS)/PERIOD LEG

> MOVEMENT SYNDROME (PLMS): Concise and in an easy to understand by a physician

> with clinical experience with many and who has extensively researched ways to

> help RLS/PLMS patients. http://www.mlists.net/judson/Elaty.html

> RLS FOUNDATION: Gold standard for excellent information! Also, a list of

> local support groups and how to contact them: http://www.rls.org

> RICHARD ALLEN, MD, JOHN HOPKINS, ON RLS:

> http://www.mhsource.com/edu/psytimes/p980614.html

> AOL CHAT TRANSCRIPT OF 11-19-98 WITH HIGHLY REGARDED RLS DOCS:

> http://www.mlists.net/judson/RLSConference.html

>

> HEALTHGATE: http://www.healthgate.com/HealthGate/MEDLINE/search-adv.shtml

>

> Free searches of millions of medical journal articles.

> JODI'S GREAT RLS SITE: http://www.mlists.net/judson/rls.html

> MAYO CLINIC: You may have Restless Legs Syndrome.

> http://www.mayohealth.org/mayo/9705/htm/restless.htm

>

> NATIONAL INSTITUTE OF HEALTH: INFORMATION ON RLS:

>

> http://www.ninds.nih.gov/healinfo/DISORDER/restless/RESTLESS.HTM

> PREVENTION MAGAZINE ON RLS:

> http://www.healthyideas.com/healing/vitamin/restlesslegs/

>

> WEEKLY RLS AOL CHAT MEETING: E-Mail Jodi: jmjudson@...

> RESTLESS LEGS SYNDROME FORUM: http://www.sleepnet.com/rls/rls.html

> SOUTHERN CALIFORNIA RLS SUPPORT GROUP (A well organized bunch!):

> http://surf.to/rls

> WE MOVE (Excellent info on RLS!): http://www.wemove.org/

>

> << Barbara, Thank you so much for sharing your file. I asked for info on

> Mirapex too, as my Mother(age 82) was just put on it. I think I

> received 2 replies. Glad you had so much response. Your messages were

> just what I needed to know. By the way, Mother is doing well. Only

> been on Mirapex for 3 weeks but so far it's great. She is worried about

> not sleeping, but she is taking one pill at 6 p.m. and still takes one

> Sinemet before bedtime. I visited her Easter(she lives in Ky.) and it

> was so great not to see her walking the floor suffering!! Anyway,

> thanks for the info. Tomy in Ohio

> >>

>

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April 7, 1999