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Gene therapy set back

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Hi Becky, couldn't agree with you more about the gene therapy set-back.I

think that boy who died might have had Lou Gehrigs' disease. It's been

awhile since I read anything about it until you posted. Sort of sounds

like it is going 'behind closed doors' for awhile. I feel so sad for the

poor boy who died. And I felt sick to my stomach in learning some of the

gene therapy reserach info and data was falsified. And oh boy, yes, it

DOES affect us with CMT!

Gretchen

Maxwell wrote:

>

> Gene therapy

>

> >Hi Becky, Yes, I heard about the gene therapy death, but my

> >understanding of that death was liver failure in a teen of age 18, and

> >was considered 'unrelated' to the actual gene therapy done. Now what I

> >have read about the gene therapy trials is that the have been halted,

> >not only due to that, but falsifying of data and information.

> >

> >Gretchen

> >

> Yes Gretchen, I know it was due to liver failure, but was

> interested in the other atricles at the links too. This may set gene

> therapy back and thats the point I intended to make, it affects us too in

> that respect.

>

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In a message dated 3/31/2000 4:41:22 PM Pacific Daylight Time,

liliwigg@... writes:

<< Hi Becky, couldn't agree with you more about the gene therapy set-back.I

think that boy who died might have had Lou Gehrigs' disease. It's been

awhile since I read anything about it until you posted. Sort of sounds

like it is going 'behind closed doors' for awhile. I feel so sad for the

poor boy who died. And I felt sick to my stomach in learning some of the

gene therapy reserach info and data was falsified. And oh boy, yes, it

DOES affect us with CMT!

>>

ALS research does involve CMT big time. CMT is piggybacked to ALS for

government funding purposes. But on the brightside I have heard that research

is looking promissing in another lab that is using mice to help with CMT

research.

jenny

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In a message dated 3/31/2000 5:23:18 PM Pacific Daylight Time,

RWTW128@... writes:

<< I been hearing about a lot of fatalities while trying gene therapy. I

think

reseachers do not know enough about what they are doing.

Russ White >>

They killed alot of sheep before hey made Dolly. I think with every giant

mistake they learn a bit more.

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