Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 Hello Kat! Thank you for your encouragement. I´ve noticed that you are writing this in the middle of the day. Here is the clock 22:00 in the evening (I was surprised when I got your answer so quickly after have written the first one for 1 -2 hours ago). I `m sure I got my CMT from my father even if he never has been diagnosed. He doesn´t want to know about it at all even if he feels sorry for me and my children. I have understood that that kind of reaction is quit common among older people hear in Sweden, they probably feel ashame. That´s sad, at least for them. My father for example is suffering a lot from pain and has not got any good medicines or treatment for that. He has a typical CMT foot but dispite of that has no doctor ever sent him to a neuro. He stills think (pretends?) that it´s true what a doctor told him for many years ago about his feet: " You wore to small shoes when you was a child " . When my parents went to a doctor with me as a child because of my feetprobems he said " She will be allright when she gets a fiance " , sorry he wasn´t right, I have tried (I was 33 years old when I finally got my diagnose)! As you can see, I´m almost " foaming over " of talking about me and my family when i now finally meet people with the same problems like us. We have no supporting groups in Sweden as far as I know and no open web-sites. From Rose-Marie Quote Link to comment Share on other sites More sharing options...
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