offspring

[Guest guest]

Lamar, Martha and Joyce, when I was diagnosed with CMT as a kid, I

firmly remember the doc saying " you will probably be able to have

children " . Now, I was ten years old when I heard this. And in my mind

then I didn't quite 'get it' what having babies and my feet had in

commmon. I have not had the DNA 'type' test, only other neurological

testing to further confirm CMT of unknown origin. NO ONE anywhere in my

family has it/had it. Now most are deceased anyway. When I became of

child bearing years and learned more about CMT and the possibility that

I could pass it on to my offspring, I chose NOT to have children. For me

it was not only a personal, emotional decision, but also one of

responsibility. I have no regrets in my decisions. The risks for me

having a CMT child were too great, also too 'iffy'. Knowing my life and

what I went through, I was certain I could not see a child of mine go

through that. All of you who have children with CMT are my heroes. Guess

I was/am a chicken when it comes to the children issue and CMT.

Now that some diseases are 'jumping' genes, I am wondering if CMT will

do this too.

Gretchen