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Re: Acceptance/feelings

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Gretchen, if they ever found a way to help regenerate the myelin I don't

know how I would feel. I've had several major surgeries and so I would still

be un-normal (couldn't think of a proper word, so I used un-normal). I can't

move my feet from side to side due to surgeries and my one ankle is fused.

However, I would be thrilled for others with CMT that still had the ability

to be helped by the regeneration...... I know it would help me also.... But

not the same way due to the surgeries. I would love to not feel tired.

GEEEZZZZ I've forgotten about my hands. I could have my hands back. No

surgery has screwed them up..... LOL

Jeanie

In a message dated 7/20/00 10:08:36 AM Pacific Daylight Time,

liliwigg@... writes:

> And I have it. I am 47 too and at my age I really don't think I

> personally want to be 'cured'. I do not look at myself as 'sick,

> malformed, or ill'. And when it comes time for me to leave this life, so

> be it. I have done wonderous things in spite of CMT and hope to continue

> this until I am beamed up to fly with the angels.

>

> Gretchen

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