Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 Hi Dawn: I have one flat foot that rotates to the left, and one high arch foot that wants to rotate to the left (that action may be coming from my hips also). So yes, barefoot they look like they are both pointed left. I don't want to scare you, but I think it's part of the weakening and deformity process. I was diagnosed when I was 6. Your daughter would probably benefit from some sort of bracing and/or exercises. Has she seen her dr.? Melody daughters new development > HI all, > > I do not know if any of you have had any similar experience with CMT > but I thought that I would give this a shot. > > My daughter (Bethany who has CMT 1-a) has dtarted having problems > with > her right foot turning in towards her left foot and her whole walk > starts to drift toward the left. She is also having extreme weekness > in her hands and this is causing her to shake and spill more. I am > not sure if this is related to her CMT, but I can find no other > reason > for her to have such weakness. > > Actually, this scars and I need to know if anybody else has had > similar experiences. I too have CMT but I was not diagnosed until I > was 22, she was diagnosed much ealier. > > If anybody can help tell me what may be going on please do so. > > Thanks a bunch. > Dawn > > > ------------------------------------------------------------------------ > Free Conference Calling with Firetalk! > Click Here! > http://click.egroups.com/1/5480/13/_/616793/_/964496304/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 Dawn, from what you describe about Bethany's feet, sounds like mine at about age 10, when a Dr. diagnosed my CMT and recommended tendon surgery (soft tissue surgery) Have you got a MDA clinic nearby you could take her to? http://www.mdausa.org to find one near you, or a neurologist in private practice? I don't know if you mean the shakiness is tremors or not.There are medications for tremors, but I don't know if they are given to a child. A good neurologist will help Bethany. As a kid I spilled and dropped things all the time. Not much anymore. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 Hello the House, Hi Dawn: I just had an ankle fusion for the same problem your describing that your daughter has, the turning of the foot inward. Mine also turned over so I was walking on my ankle. In my humble opinion I think your daughter is too young for an operation. Wearing AFO or some type of brace over a length of time would hopefully straighten the foot out. See if you can find a good orthopedic surgeon, preferably one who just does feet and knows about CMT. If your in the Boston, Ma area let me know and I will give you the name of one of the best around Good Luck E Quote Link to comment Share on other sites More sharing options...
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