update and findings

[Guest guest]

Hello All,

I am not even going to address the previous non-rls issues that I see

all over my e-mails. I will write as I have always done,-like this is

the support group that I started with 1 yr ago.

I had a nerve block this past Monday at the Pain Clinic, and so far

my pain level has come way down.You " old-timers " know that I'm

referring to my hip, for you newbies, this chronic hip pain that I've

had for years has exacerbated my RLS. I am just now starting to feel

the effects wearing off, and today is Wednesday!! I have to wait until

I'm full blown again until I go back, and then the Dr. is going to try

a steroid in the block. I understand that that is suppose to calm down

the nerve?! I hope that it doesn't aggravate my RLS. I have to look

that up, to include running it past the Doc. But it sure has been a

nice 2 days- I've been holding my breath and praying that it would

work and it did !!!! :)The Dr. believes it to be some type of a nerve

entrapment. Whatever, I finally think I on the right road. Can I

actually dare to hope now !!

As far as my RLS goes, it stinks as usual. I have cut back on my

Neurontin to 600mg tid, because I was developing edema in my ankles

and feeling like a blow fish !This stupid weather has it off the

charts too. I mentioned the weather aspect to my Neuro and he said

move to Arizona! I told him he just wants to get rid of me, but he

did have a pt. that moved there and had wonderful results. Hmm, Jill

any rentals out there-just kidding I asked my Neuro what that

anti-convulsant was that he was talking about. It's Topamax (sp). It's

new as far as FDA goes, but he wants to wait until I'm through with

the Pain Clinic- or at least until they can get me going in the right

direction.

I have been seeing a counsolor for mild depression. She keeps wanting

me to go on an anti-depressant, and I have to remind her that I can't

take those d/t the RLS, and besides, if I have to take another med I

think I'll puke !

I truely wish that these health care people would understand that if

our symptoms were treated correctly and/or under control, we all would

be a much happier bunch of individuals ! I don't know of anyone who

would want this, I don't even think I'd wish this on my worst enemy

Well everyone, take care and peaceful nights. I do wish that the

group was it's old self again. I miss it

le R.I.

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