Having Children

[Guest guest]

I had two children within a year. June 83 and Dan May 84. At the time I

didn't know I had CMT so consequently wasn't on any medication. I sailed through

both my pregnancies but I did find that after about 28 weeks I couldn't hardly

walk and standing etc was very painful. I also delivered earlier. at 34

weeks and Dan at 36 weeks.

I had another son in 91 again I was fine, except for the walking and the

pain.

I've been reading the messages with interest regarding having children and

the risks of passing CMT on to them. My father only found out earlier this month

for definite that he had something wrong and that it's CMT (he's has it very

mildly and is 61 now) and that he passed it on to me. He was naturally upset

about it but sadly he said he'd wished he'd never been born.

Okay, so yes I got from him. I've had it all my life and have been disabled

and in pain with it, but I've had up till now a damn good life and one that I've

lived to the full. It hasn't been easy in any way with divorce, children,

violent partner and working up to 18 hrs a day to pay for the kids and the house

whilst on my own. And yes, to be honest looking back there are parts that given

the chance I would change but you know, if I could change those parts I wouldn't

be me.

I walked for 37 years, I've done things I shouldn't have done, but now what

I have to do is change my lifestyle. At times I feel as if I'm fighting for my

life, my identity because of what has happened, so quickly and so recently but I

certainly have never wished I hadn't be born. Now I'm a mother, I adore my kids

and yes I cry when they hurt and I wish I hadn't given it to them but it

happened and now, we work things out together, so that they'll have a good and

fruitful life. Hey I want grandkids... someday

Sue

Having children

Hi everyone,

I have got a question to those of you who have cmt and have decided to

have children:

I am 28 years old and I would like to have a child. What do I have to

expect during

pregnancy. I know, Kathleen told me a few months ago that there are

women who

needed a wheelchair because of the fact they were pregnant. But I guess

this is the

worst case. What did you experience? And was it a question for you

wheter having

children or not? How old were you when you had your child? What happened

during

pregnancy, did you have pain (I mean if you had pain before)? Did you

take medicine

like anti-depressants (prozac or so)?

Thanks for your help.

Best wishes from Germany,

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[Guest guest]

I have 3, a son now 35, a daughter 33, a daughter 20 I didn't know I

had CMT until 1994. I did know I had what the Dr. called poly-neurtis

ayear before I had my 20 yr.old.MY 33 yr old has CMT but very mild she

has a 6 yr. old boy who so far is fine she is now pregnant again. I did

great on all except I lost feeling in my hands when I was about 7mo.

with my last it lasted for about 3mos. So far I have a happy story. What

the future holds noone knows my children are the most important thing in

my life. I also raised 2 stepsons that are like my own.. ;)