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HI all,

I thought that I would share my feelings about CMT and the effects I

had on me when I had my daughter. Because of my pregnancy I was

diagnosed with the CMT, until the (age 22) I was just a klutz to

everyone that I met.

My daughter Bethany does have CMT and at times she may get mad at her

disease, but never at me. She is 9 and knows that everyone is

different. Some of us have brown hair, some of us have green eyes,

but she looks at her CMT as a difference, not a huge problem.

Because of the effects that my pregnancy had on my body was so

negative I decided not to have any more children, but I know that if

I

did have more kids I would hopefully be able to show them that they

can live a great life with CMT. My daughter calls her CMT an

inconvience, not a big deal. Even though she has to wear AFO's most

of the time, she is treated no different at school, actually the kids

that are her friends help her when kids that are not her friends

start

to pick on her.

My daughter is very involved with MDA and has been an ambassador for

2

1/2 years now. She goes and speaks to crowds as large as 400+ people

and has the confidence to do so. She wears her AFO's with pride,

since they help her walk without falling as much.

Hope this helps!!!

Dawn and Bethany

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