'what to expect'

[Guest guest]

Hello Brad, while I am not certain of my 'type' of CMT, I can tell you

that doctors told me what to 'expect' from the time I was a kid - and

none of it has happened yet. I was 'supposed' to be wearing leg braces

by age 18, with 2 or 3 other surgeries before that. Leg braces haven't

happened yet. (and I am 47) Then, when I was 27, I was 'supposed' to be

in a wheelchair permanently by the time I was 30. On my 30th birthday I

was traveling and no wheelchair in sight - and still not in sight yet.

Those 'expectations' were what members of the medical community not only

'expected', but 'predicted' and even 'suggested'.

So, the best I have to offer you is to make yourself comfortable as

possible, live, love and enjoy your life.There is a very important

connection to be considered - to stay as positive as you can. If

medications or supplements or diet changes or physical therapy or

massage or hottubs or inshoe orthotics or AFOs of a wheelchair or a

scooter improve your quality of life, try them out. I have tried many

different things to manage my CMT. Alot of my own life's journey with

CMT was the 'trial and error' method. But I am no worse for the 'error'

part.

Find good Drs.or other practioners you like and get to know them and let

them get to know you. Work together to manage CMT. And most of all,

'exercise' your brain, it is the best muscle we've got!

Gretchen

So. California