Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 hi everyone my name is brad rice you have seen or read some messages that i have posted while researching for my dau. she has demyelantion of the peripheal nerve while doing the search i learned alot and started realizing that i to have some of these symptoms so i went to my doc. and asked him to send me to my dau. neuroligist for emg and ncv testing well i had the test yesterday and i have cmt type 2 which variation is unknown my peroneal nerve from my knee to my foot is completly dead and the muscle by my ankle is gone (atrophy) it was a surprise to me that it was this bad and i did not realize it i am 37 years old my brothers feet are worse than mine and he has knee problems also my sister has symptoms but in her arms and hands worse than her legs and feet the neuro. wants to see all my family to check them he was a little surprised when he could not get any signals in the peroneal nerve and that the muscle was athropied don,t know what this means since the test my feet and lower legs have been acting funny lot of spasms and tingling is this normal he did say that type 2 was more rare than type 1 i would like to hear from anyone with type 2 or any other type that could give me some insite on what to exspect in the coming days even though i knew what the test results was going to be it was quite a shock that i had cmt type 2 but i will cope with it and learn how to keep myself going for as long as i can thanks for listerning hope this wasn,t to long brad rice dwnestr@... Quote Link to comment Share on other sites More sharing options...
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