Re: Let me know if you want me to stay in the group

[Guest guest]

Can't speak for the rest of the group, but I have no problem with your

being here. Are the exercises you mentioned of a yoga type? Since I

started doing these types of exercises for a back problem, I have

noticed an improvement, but have also been taking a calcium,magnesium

and zinc supplement, plus a timed release iron with folic acid. Don't

know which, if any are helping.

ne, 59, Lawrenceville, NJ

--- Meadows drmead@...> wrote:

>

>

> I am a physician who has had RLS for several years

> and about 18 months

> ago I accidentally discovered some simple exercises

> that relieved my

> symptoms, which are, admittedly, mild. In

> investigating whether or not

> this had been reported in the medical literature, I

> found that it had

> not. In addition, I found that the current concepts

> of causation were

> that it was inherited, and that it was due to brain,

> spinal cord, or

> spinal abnormalities. I knew that I did not have any

> of these and that

> no neurological problem could be relieved by 15

> minutes of low grade

> exercise. I have spent the last 18 months reviewing

> and analyzing 190

> articles from the medical literature from the

> original article of the

> Swedish neurologist, Ekbom, in 1945 through the

> present time. The

> clinical studies do not support the current theories

> of neurological

> causation but do support the principles of Ekbom

> that RLS is primarily a

> vascular problem.

> I don't want to impose myself on the group, but,

> without trying to

> be offensive, it is obvious that many of you have

> very little knowledge

> of the multiple previous studies that have been

> done.Please let me know

> if you don't want me to stay in the group.

> Below is a summary of some of the arguments

> against a neurological

> origin.

> Reasons why restless legs is not of neurological

> origin, but

> vascular

>

> Some people are relieved by vasodilators

> Stopping vasodilators makes the symptoms worse

> Giving vasoconstrictors makes the symptoms worse.

> A reduction in physical activity relieves symptoms

> overnight in many

> Pregnant women who are put on bed rest in the

> third trimester usually

> get relief

> After delivery, 94 of 97 women obtained complete

> relief most in 10

> days

> At least 15% of sufferers have spontaneous

> remissions, frequently of a

> month or more.

> When symptoms occur, physical activity usually

> gives temporary relief.

>

> Symptoms can be improved by a long-term exercise

> program

> People frequently get the onset of symptoms after

> a sub-total

> gastrectomy

> Symptoms are made worse by alcohol, and smoking and

> relieved by stopping

> smoking and reducing the alcoholic intake.

> Symptoms are made worse by varicose veins,

> vasoconstriction, and venous

> insufficiency.

> Symptoms are made worse by and can be caused by

> caffeine, and improve

> when the caffeine is stopped.

> People with mild restless legs get symptoms only

> after strenuous

> exercise.

> Symptoms are worse after a physically tiring day

> RLS is associated with microemboli to the lungs

> and to the legs

> Why does iron deficiency anemia make the symptoms

> worse in some people

> but 75% of people with iron deficiency do not have

> RLS

> M. Meadows, M.D.

>

>

>

>

>

------------------------------------------------------------------------

> Are you hogging all the fun?

> http://www.ONElist.com

> Friends tell friends about ONElist!

>

------------------------------------------------------------------------

> This forum is for support only. The information

> posted to this List is for support purposes

> and is not intended to replace the examination,

> diagnosis and treatment of a licensed

> physician and no such claims are inferred.

>

_________________________________________________________

[Guest guest]

Can't speak for the rest of the group, but I have no problem with your

being here. Are the exercises you mentioned of a yoga type? Since I

started doing these types of exercises for a back problem, I have

noticed an improvement, but have also been taking a calcium,magnesium

and zinc supplement, plus a timed release iron with folic acid. Don't

know which, if any are helping.

ne, 59, Lawrenceville, NJ

--- Meadows drmead@...> wrote:

>

>

> I am a physician who has had RLS for several years

> and about 18 months

> ago I accidentally discovered some simple exercises

> that relieved my

> symptoms, which are, admittedly, mild. In

> investigating whether or not

> this had been reported in the medical literature, I

> found that it had

> not. In addition, I found that the current concepts

> of causation were

> that it was inherited, and that it was due to brain,

> spinal cord, or

> spinal abnormalities. I knew that I did not have any

> of these and that

> no neurological problem could be relieved by 15

> minutes of low grade

> exercise. I have spent the last 18 months reviewing

> and analyzing 190

> articles from the medical literature from the

> original article of the

> Swedish neurologist, Ekbom, in 1945 through the

> present time. The

> clinical studies do not support the current theories

> of neurological

> causation but do support the principles of Ekbom

> that RLS is primarily a

> vascular problem.

> I don't want to impose myself on the group, but,

> without trying to

> be offensive, it is obvious that many of you have

> very little knowledge

> of the multiple previous studies that have been

> done.Please let me know

> if you don't want me to stay in the group.

> Below is a summary of some of the arguments

> against a neurological

> origin.

> Reasons why restless legs is not of neurological

> origin, but

> vascular

>

> Some people are relieved by vasodilators

> Stopping vasodilators makes the symptoms worse

> Giving vasoconstrictors makes the symptoms worse.

> A reduction in physical activity relieves symptoms

> overnight in many

> Pregnant women who are put on bed rest in the

> third trimester usually

> get relief

> After delivery, 94 of 97 women obtained complete

> relief most in 10

> days

> At least 15% of sufferers have spontaneous

> remissions, frequently of a

> month or more.

> When symptoms occur, physical activity usually

> gives temporary relief.

>

> Symptoms can be improved by a long-term exercise

> program

> People frequently get the onset of symptoms after

> a sub-total

> gastrectomy

> Symptoms are made worse by alcohol, and smoking and

> relieved by stopping

> smoking and reducing the alcoholic intake.

> Symptoms are made worse by varicose veins,

> vasoconstriction, and venous

> insufficiency.

> Symptoms are made worse by and can be caused by

> caffeine, and improve

> when the caffeine is stopped.

> People with mild restless legs get symptoms only

> after strenuous

> exercise.

> Symptoms are worse after a physically tiring day

> RLS is associated with microemboli to the lungs

> and to the legs

> Why does iron deficiency anemia make the symptoms

> worse in some people

> but 75% of people with iron deficiency do not have

> RLS

> M. Meadows, M.D.

>

>

>

>

>

------------------------------------------------------------------------

> Are you hogging all the fun?

> http://www.ONElist.com

> Friends tell friends about ONElist!

>

------------------------------------------------------------------------

> This forum is for support only. The information

> posted to this List is for support purposes

> and is not intended to replace the examination,

> diagnosis and treatment of a licensed

> physician and no such claims are inferred.

>

_________________________________________________________

[Guest guest]

Can't speak for the rest of the group, but I have no problem with your

being here. Are the exercises you mentioned of a yoga type? Since I

started doing these types of exercises for a back problem, I have

noticed an improvement, but have also been taking a calcium,magnesium

and zinc supplement, plus a timed release iron with folic acid. Don't

know which, if any are helping.

ne, 59, Lawrenceville, NJ

--- Meadows drmead@...> wrote:

>

>

> I am a physician who has had RLS for several years

> and about 18 months

> ago I accidentally discovered some simple exercises

> that relieved my

> symptoms, which are, admittedly, mild. In

> investigating whether or not

> this had been reported in the medical literature, I

> found that it had

> not. In addition, I found that the current concepts

> of causation were

> that it was inherited, and that it was due to brain,

> spinal cord, or

> spinal abnormalities. I knew that I did not have any

> of these and that

> no neurological problem could be relieved by 15

> minutes of low grade

> exercise. I have spent the last 18 months reviewing

> and analyzing 190

> articles from the medical literature from the

> original article of the

> Swedish neurologist, Ekbom, in 1945 through the

> present time. The

> clinical studies do not support the current theories

> of neurological

> causation but do support the principles of Ekbom

> that RLS is primarily a

> vascular problem.

> I don't want to impose myself on the group, but,

> without trying to

> be offensive, it is obvious that many of you have

> very little knowledge

> of the multiple previous studies that have been

> done.Please let me know

> if you don't want me to stay in the group.

> Below is a summary of some of the arguments

> against a neurological

> origin.

> Reasons why restless legs is not of neurological

> origin, but

> vascular

>

> Some people are relieved by vasodilators

> Stopping vasodilators makes the symptoms worse

> Giving vasoconstrictors makes the symptoms worse.

> A reduction in physical activity relieves symptoms

> overnight in many

> Pregnant women who are put on bed rest in the

> third trimester usually

> get relief

> After delivery, 94 of 97 women obtained complete

> relief most in 10

> days

> At least 15% of sufferers have spontaneous

> remissions, frequently of a

> month or more.

> When symptoms occur, physical activity usually

> gives temporary relief.

>

> Symptoms can be improved by a long-term exercise

> program

> People frequently get the onset of symptoms after

> a sub-total

> gastrectomy

> Symptoms are made worse by alcohol, and smoking and

> relieved by stopping

> smoking and reducing the alcoholic intake.

> Symptoms are made worse by varicose veins,

> vasoconstriction, and venous

> insufficiency.

> Symptoms are made worse by and can be caused by

> caffeine, and improve

> when the caffeine is stopped.

> People with mild restless legs get symptoms only

> after strenuous

> exercise.

> Symptoms are worse after a physically tiring day

> RLS is associated with microemboli to the lungs

> and to the legs

> Why does iron deficiency anemia make the symptoms

> worse in some people

> but 75% of people with iron deficiency do not have

> RLS

> M. Meadows, M.D.

>

>

>

>

>

------------------------------------------------------------------------

> Are you hogging all the fun?

> http://www.ONElist.com

> Friends tell friends about ONElist!

>

------------------------------------------------------------------------

> This forum is for support only. The information

> posted to this List is for support purposes

> and is not intended to replace the examination,

> diagnosis and treatment of a licensed

> physician and no such claims are inferred.

>

_________________________________________________________

[Guest guest]

well dr meadows i certainly hope you stay with us and also hope you will

enjoy the debate that is sure to occur regarding your comments. i for one

have always felt that rls (at least for me) is vascular in nature - it has

the ring of truth......but i'm not sure of course!!!! i would be most

interested in hearing of the exercises you use and how its affected your

rls condition - i would also like to know what your symptoms are and what

if any medications or 'vitamins' you use to relieve your rls condition.

JACK

waiting for the rain and or snow in western nys

At 11:05 AM 4/11/99 -0500, you wrote:

>

>

>I am a physician who has had RLS for several years and about 18 months

>ago I accidentally discovered some simple exercises that relieved my

>symptoms, which are, admittedly, mild. In investigating whether or not

>this had been reported in the medical literature, I found that it had

>not. In addition, I found that the current concepts of causation were

>that it was inherited, and that it was due to brain, spinal cord, or

>spinal abnormalities. I knew that I did not have any of these and that

>no neurological problem could be relieved by 15 minutes of low grade

>exercise. I have spent the last 18 months reviewing and analyzing 190

>articles from the medical literature from the original article of the

>Swedish neurologist, Ekbom, in 1945 through the present time. The

>clinical studies do not support the current theories of neurological

>causation but do support the principles of Ekbom that RLS is primarily a

>vascular problem.

> I don't want to impose myself on the group, but, without trying to

>be offensive, it is obvious that many of you have very little knowledge

>of the multiple previous studies that have been done.Please let me know

>if you don't want me to stay in the group.

> Below is a summary of some of the arguments against a neurological

>origin.

> Reasons why restless legs is not of neurological origin, but

>vascular

>

> Some people are relieved by vasodilators

> Stopping vasodilators makes the symptoms worse

> Giving vasoconstrictors makes the symptoms worse.

> A reduction in physical activity relieves symptoms overnight in many

> Pregnant women who are put on bed rest in the third trimester usually

>get relief

> After delivery, 94 of 97 women obtained complete relief most in 10

>days

>At least 15% of sufferers have spontaneous remissions, frequently of a

>month or more.

> When symptoms occur, physical activity usually gives temporary relief.

>

> Symptoms can be improved by a long-term exercise program

> People frequently get the onset of symptoms after a sub-total

>gastrectomy

>Symptoms are made worse by alcohol, and smoking and relieved by stopping

>smoking and reducing the alcoholic intake.

>Symptoms are made worse by varicose veins, vasoconstriction, and venous

>insufficiency.

>Symptoms are made worse by and can be caused by caffeine, and improve

>when the caffeine is stopped.

> People with mild restless legs get symptoms only after strenuous

>exercise.

> Symptoms are worse after a physically tiring day

> RLS is associated with microemboli to the lungs and to the legs

>Why does iron deficiency anemia make the symptoms worse in some people

>but 75% of people with iron deficiency do not have RLS

> M. Meadows, M.D.

>

>

>

>

>------------------------------------------------------------------------

>Are you hogging all the fun?

>http://www.ONElist.com

>Friends tell friends about ONElist!

>------------------------------------------------------------------------

>This forum is for support only. The information posted to this List is

for support purposes

>and is not intended to replace the examination, diagnosis and treatment of

a licensed

>physician and no such claims are inferred.

>

>

We've done it again!!! Please visit our NEW " Spring " homepage!

Enjoy:-)

NEW - homepage URL:

http://www.frontiernet.net/~goviers

updated 4/1/99.

OR

If you liked our old homepage, you can now find it at this address:

http://netjunk.com/users/chief39

On the Internet, nobody knows you're a cat.

The total sum of the world's IQ is constant. If the population is

increasing, then intelligence is ...

" Millions yearn for immortality who don't know what to do with themselves

on a rainy Sunday afternoon. "

[Guest guest]

well dr meadows i certainly hope you stay with us and also hope you will

enjoy the debate that is sure to occur regarding your comments. i for one

have always felt that rls (at least for me) is vascular in nature - it has

the ring of truth......but i'm not sure of course!!!! i would be most

interested in hearing of the exercises you use and how its affected your

rls condition - i would also like to know what your symptoms are and what

if any medications or 'vitamins' you use to relieve your rls condition.

JACK

waiting for the rain and or snow in western nys

At 11:05 AM 4/11/99 -0500, you wrote:

>

>

>I am a physician who has had RLS for several years and about 18 months

>ago I accidentally discovered some simple exercises that relieved my

>symptoms, which are, admittedly, mild. In investigating whether or not

>this had been reported in the medical literature, I found that it had

>not. In addition, I found that the current concepts of causation were

>that it was inherited, and that it was due to brain, spinal cord, or

>spinal abnormalities. I knew that I did not have any of these and that

>no neurological problem could be relieved by 15 minutes of low grade

>exercise. I have spent the last 18 months reviewing and analyzing 190

>articles from the medical literature from the original article of the

>Swedish neurologist, Ekbom, in 1945 through the present time. The

>clinical studies do not support the current theories of neurological

>causation but do support the principles of Ekbom that RLS is primarily a

>vascular problem.

> I don't want to impose myself on the group, but, without trying to

>be offensive, it is obvious that many of you have very little knowledge

>of the multiple previous studies that have been done.Please let me know

>if you don't want me to stay in the group.

> Below is a summary of some of the arguments against a neurological

>origin.

> Reasons why restless legs is not of neurological origin, but

>vascular

>

> Some people are relieved by vasodilators

> Stopping vasodilators makes the symptoms worse

> Giving vasoconstrictors makes the symptoms worse.

> A reduction in physical activity relieves symptoms overnight in many

> Pregnant women who are put on bed rest in the third trimester usually

>get relief

> After delivery, 94 of 97 women obtained complete relief most in 10

>days

>At least 15% of sufferers have spontaneous remissions, frequently of a

>month or more.

> When symptoms occur, physical activity usually gives temporary relief.

>

> Symptoms can be improved by a long-term exercise program

> People frequently get the onset of symptoms after a sub-total

>gastrectomy

>Symptoms are made worse by alcohol, and smoking and relieved by stopping

>smoking and reducing the alcoholic intake.

>Symptoms are made worse by varicose veins, vasoconstriction, and venous

>insufficiency.

>Symptoms are made worse by and can be caused by caffeine, and improve

>when the caffeine is stopped.

> People with mild restless legs get symptoms only after strenuous

>exercise.

> Symptoms are worse after a physically tiring day

> RLS is associated with microemboli to the lungs and to the legs

>Why does iron deficiency anemia make the symptoms worse in some people

>but 75% of people with iron deficiency do not have RLS

> M. Meadows, M.D.

>

>

>

>

>------------------------------------------------------------------------

>Are you hogging all the fun?

>http://www.ONElist.com

>Friends tell friends about ONElist!

>------------------------------------------------------------------------

>This forum is for support only. The information posted to this List is

for support purposes

>and is not intended to replace the examination, diagnosis and treatment of

a licensed

>physician and no such claims are inferred.

>

>

We've done it again!!! Please visit our NEW " Spring " homepage!

Enjoy:-)

NEW - homepage URL:

http://www.frontiernet.net/~goviers

updated 4/1/99.

OR

If you liked our old homepage, you can now find it at this address:

http://netjunk.com/users/chief39

On the Internet, nobody knows you're a cat.

The total sum of the world's IQ is constant. If the population is

increasing, then intelligence is ...

" Millions yearn for immortality who don't know what to do with themselves

on a rainy Sunday afternoon. "

[Guest guest]

well dr meadows i certainly hope you stay with us and also hope you will

enjoy the debate that is sure to occur regarding your comments. i for one

have always felt that rls (at least for me) is vascular in nature - it has

the ring of truth......but i'm not sure of course!!!! i would be most

interested in hearing of the exercises you use and how its affected your

rls condition - i would also like to know what your symptoms are and what

if any medications or 'vitamins' you use to relieve your rls condition.

JACK

waiting for the rain and or snow in western nys

At 11:05 AM 4/11/99 -0500, you wrote:

>

>

>I am a physician who has had RLS for several years and about 18 months

>ago I accidentally discovered some simple exercises that relieved my

>symptoms, which are, admittedly, mild. In investigating whether or not

>this had been reported in the medical literature, I found that it had

>not. In addition, I found that the current concepts of causation were

>that it was inherited, and that it was due to brain, spinal cord, or

>spinal abnormalities. I knew that I did not have any of these and that

>no neurological problem could be relieved by 15 minutes of low grade

>exercise. I have spent the last 18 months reviewing and analyzing 190

>articles from the medical literature from the original article of the

>Swedish neurologist, Ekbom, in 1945 through the present time. The

>clinical studies do not support the current theories of neurological

>causation but do support the principles of Ekbom that RLS is primarily a

>vascular problem.

> I don't want to impose myself on the group, but, without trying to

>be offensive, it is obvious that many of you have very little knowledge

>of the multiple previous studies that have been done.Please let me know

>if you don't want me to stay in the group.

> Below is a summary of some of the arguments against a neurological

>origin.

> Reasons why restless legs is not of neurological origin, but

>vascular

>

> Some people are relieved by vasodilators

> Stopping vasodilators makes the symptoms worse

> Giving vasoconstrictors makes the symptoms worse.

> A reduction in physical activity relieves symptoms overnight in many

> Pregnant women who are put on bed rest in the third trimester usually

>get relief

> After delivery, 94 of 97 women obtained complete relief most in 10

>days

>At least 15% of sufferers have spontaneous remissions, frequently of a

>month or more.

> When symptoms occur, physical activity usually gives temporary relief.

>

> Symptoms can be improved by a long-term exercise program

> People frequently get the onset of symptoms after a sub-total

>gastrectomy

>Symptoms are made worse by alcohol, and smoking and relieved by stopping

>smoking and reducing the alcoholic intake.

>Symptoms are made worse by varicose veins, vasoconstriction, and venous

>insufficiency.

>Symptoms are made worse by and can be caused by caffeine, and improve

>when the caffeine is stopped.

> People with mild restless legs get symptoms only after strenuous

>exercise.

> Symptoms are worse after a physically tiring day

> RLS is associated with microemboli to the lungs and to the legs

>Why does iron deficiency anemia make the symptoms worse in some people

>but 75% of people with iron deficiency do not have RLS

> M. Meadows, M.D.

>

>

>

>

>------------------------------------------------------------------------

>Are you hogging all the fun?

>http://www.ONElist.com

>Friends tell friends about ONElist!

>------------------------------------------------------------------------

>This forum is for support only. The information posted to this List is

for support purposes

>and is not intended to replace the examination, diagnosis and treatment of

a licensed

>physician and no such claims are inferred.

>

>

We've done it again!!! Please visit our NEW " Spring " homepage!

Enjoy:-)

NEW - homepage URL:

http://www.frontiernet.net/~goviers

updated 4/1/99.

OR

If you liked our old homepage, you can now find it at this address:

http://netjunk.com/users/chief39

On the Internet, nobody knows you're a cat.

The total sum of the world's IQ is constant. If the population is

increasing, then intelligence is ...

" Millions yearn for immortality who don't know what to do with themselves

on a rainy Sunday afternoon. "

[Guest guest]

----------

>

> To: rlssupport (AT) onelist (DOT) com

> Subject: Let me know if you want me to stay in the group

> Date: Sunday, April 11, 1999 11:05 AM

>

>

>

Just curious, , are you a friend of Dr. Mc?

I'll give my responses next to your list of indicators. Some match and

some don't for me.

I can say you will probably have a lot of response and differing opinions

about your findings from the folks on this list.

> I am a physician who has had RLS for several years

I'm a 49 yr old teacher who has had RLS since before I was 10 yrs. old.

and about 18 months

> ago I accidentally discovered some simple exercises that relieved my

> symptoms,

I do leg lifts while lying on my side which helps while I'm waiting for

the meds to kick in.

which are, admittedly, mild. In investigating whether or not

> this had been reported in the medical literature, I found that it had

> not. In addition, I found that the current concepts of causation were

> that it was inherited, and that it was due to brain, spinal cord, or

> spinal abnormalities.

My mother had it and my two boys have it, 14 and 15 yrs. old. I had two

lumbar spinal surgeries in my 20's which made the RLS worse.

I knew that I did not have any of these and that

> no neurological problem could be relieved by 15 minutes of low grade

> exercise. I have spent the last 18 months reviewing and analyzing 190

> articles from the medical literature from the original article of the

> Swedish neurologist, Ekbom, in 1945 through the present time. The

> clinical studies do not support the current theories of neurological

> causation

I think our fellow group members will support me in saying that if you

study this group and the supplemental URL's you will find several areas

that support the onset of RLS, including neurological

but do support the principles of Ekbom that RLS is primarily a

> vascular problem.

> I don't want to impose myself on the group, but, without trying to

> be offensive, it is obvious that many of you have very little knowledge

> of the multiple previous studies that have been done.Please let me know

> if you don't want me to stay in the group.

> Below is a summary of some of the arguments against a neurological

> origin.

> Reasons why restless legs is not of neurological origin, but

> vascular

>

> Some people are relieved by vasodilators

Not me

> Stopping vasodilators makes the symptoms worse

> Giving vasoconstrictors makes the symptoms worse.

> A reduction in physical activity relieves symptoms overnight in many

Physical activity tires me out and the RLS is not as bad when I am tired

> Pregnant women who are put on bed rest in the third trimester usually

> get relief

Whoa! This one I really have to argue on. I had some of the worse RLS of

my life during both pregnancies and didn't have

any relief during either pregnancy. Relief only came when I slept due to

exhaustion after the babies came!

> After delivery, 94 of 97 women obtained complete relief most in 10

> days

Not I

> At least 15% of sufferers have spontaneous remissions, frequently of a

> month or more.

My RLS has only become gradually worse and there have been no spontaneous

remissions at all

> When symptoms occur, physical activity usually gives temporary relief.

True for me

>

> Symptoms can be improved by a long-term exercise program

Don't know for me, as I'm like Garfield. I don't do much exercise. My

exercise is standing up in front of a class and walking all over my campus

fixing computers.

> People frequently get the onset of symptoms after a sub-total

> gastrectomy

Never had one of those, thank God

> Symptoms are made worse by alcohol, and smoking and relieved by stopping

Alcohol calms my RLS, however, I am not a drinker, rarely having a

drink--maybe every 4 or 5 months

> smoking and reducing the alcoholic intake.

I don't smoke.

> Symptoms are made worse by varicose veins, vasoconstriction, and venous

> insufficiency.

I don't have vericose veins, nor did my mother and hopefully my boys never

will

> Symptoms are made worse by and can be caused by caffeine, and improve

> when the caffeine is stopped.

Caffeine after 4 p.m. in any form just keeps me wide awake until the wee

hours

> People with mild restless legs get symptoms only after strenuous

> exercise.

Exercise helps mine

> Symptoms are worse after a physically tiring day

I sleep better after a hard day at school--RLS is not as bad

> RLS is associated with microemboli to the lungs and to the legs

Not in my case that I am aware of

> Why does iron deficiency anemia make the symptoms worse in some people

> but 75% of people with iron deficiency do not have RLS

Iron supplements sometimes relieve my RLS as do Vitamin E, Amino Acids,

Calcium, magnesium, and potassium

Lindy B. in Southeast Texas

> M. Meadows, M.D.

>

>

>

>

> ------------------------------------------------------------------------

> Are you hogging all the fun?

> http://www.ONElist.com

> Friends tell friends about ONElist!

> ------------------------------------------------------------------------

> This forum is for support only. The information posted to this List is

for support purposes

> and is not intended to replace the examination, diagnosis and treatment

of a licensed

> physician and no such claims are inferred.

[Guest guest]

----------

>

> To: rlssupport (AT) onelist (DOT) com

> Subject: Let me know if you want me to stay in the group

> Date: Sunday, April 11, 1999 11:05 AM

>

>

>

Just curious, , are you a friend of Dr. Mc?

I'll give my responses next to your list of indicators. Some match and

some don't for me.

I can say you will probably have a lot of response and differing opinions

about your findings from the folks on this list.

> I am a physician who has had RLS for several years

I'm a 49 yr old teacher who has had RLS since before I was 10 yrs. old.

and about 18 months

> ago I accidentally discovered some simple exercises that relieved my

> symptoms,

I do leg lifts while lying on my side which helps while I'm waiting for

the meds to kick in.

which are, admittedly, mild. In investigating whether or not

> this had been reported in the medical literature, I found that it had

> not. In addition, I found that the current concepts of causation were

> that it was inherited, and that it was due to brain, spinal cord, or

> spinal abnormalities.

My mother had it and my two boys have it, 14 and 15 yrs. old. I had two

lumbar spinal surgeries in my 20's which made the RLS worse.

I knew that I did not have any of these and that

> no neurological problem could be relieved by 15 minutes of low grade

> exercise. I have spent the last 18 months reviewing and analyzing 190

> articles from the medical literature from the original article of the

> Swedish neurologist, Ekbom, in 1945 through the present time. The

> clinical studies do not support the current theories of neurological

> causation

I think our fellow group members will support me in saying that if you

study this group and the supplemental URL's you will find several areas

that support the onset of RLS, including neurological

but do support the principles of Ekbom that RLS is primarily a

> vascular problem.

> I don't want to impose myself on the group, but, without trying to

> be offensive, it is obvious that many of you have very little knowledge

> of the multiple previous studies that have been done.Please let me know

> if you don't want me to stay in the group.

> Below is a summary of some of the arguments against a neurological

> origin.

> Reasons why restless legs is not of neurological origin, but

> vascular

>

> Some people are relieved by vasodilators

Not me

> Stopping vasodilators makes the symptoms worse

> Giving vasoconstrictors makes the symptoms worse.

> A reduction in physical activity relieves symptoms overnight in many

Physical activity tires me out and the RLS is not as bad when I am tired

> Pregnant women who are put on bed rest in the third trimester usually

> get relief

Whoa! This one I really have to argue on. I had some of the worse RLS of

my life during both pregnancies and didn't have

any relief during either pregnancy. Relief only came when I slept due to

exhaustion after the babies came!

> After delivery, 94 of 97 women obtained complete relief most in 10

> days

Not I

> At least 15% of sufferers have spontaneous remissions, frequently of a

> month or more.

My RLS has only become gradually worse and there have been no spontaneous

remissions at all

> When symptoms occur, physical activity usually gives temporary relief.

True for me

>

> Symptoms can be improved by a long-term exercise program

Don't know for me, as I'm like Garfield. I don't do much exercise. My

exercise is standing up in front of a class and walking all over my campus

fixing computers.

> People frequently get the onset of symptoms after a sub-total

> gastrectomy

Never had one of those, thank God

> Symptoms are made worse by alcohol, and smoking and relieved by stopping

Alcohol calms my RLS, however, I am not a drinker, rarely having a

drink--maybe every 4 or 5 months

> smoking and reducing the alcoholic intake.

I don't smoke.

> Symptoms are made worse by varicose veins, vasoconstriction, and venous

> insufficiency.

I don't have vericose veins, nor did my mother and hopefully my boys never

will

> Symptoms are made worse by and can be caused by caffeine, and improve

> when the caffeine is stopped.

Caffeine after 4 p.m. in any form just keeps me wide awake until the wee

hours

> People with mild restless legs get symptoms only after strenuous

> exercise.

Exercise helps mine

> Symptoms are worse after a physically tiring day

I sleep better after a hard day at school--RLS is not as bad

> RLS is associated with microemboli to the lungs and to the legs

Not in my case that I am aware of

> Why does iron deficiency anemia make the symptoms worse in some people

> but 75% of people with iron deficiency do not have RLS

Iron supplements sometimes relieve my RLS as do Vitamin E, Amino Acids,

Calcium, magnesium, and potassium

Lindy B. in Southeast Texas

> M. Meadows, M.D.

>

>

>

>

> ------------------------------------------------------------------------

> Are you hogging all the fun?

> http://www.ONElist.com

> Friends tell friends about ONElist!

> ------------------------------------------------------------------------

> This forum is for support only. The information posted to this List is

for support purposes

> and is not intended to replace the examination, diagnosis and treatment

of a licensed

> physician and no such claims are inferred.

[Guest guest]

----------

>

> To: rlssupport (AT) onelist (DOT) com

> Subject: Let me know if you want me to stay in the group

> Date: Sunday, April 11, 1999 11:05 AM

>

>

>

Just curious, , are you a friend of Dr. Mc?

I'll give my responses next to your list of indicators. Some match and

some don't for me.

I can say you will probably have a lot of response and differing opinions

about your findings from the folks on this list.

> I am a physician who has had RLS for several years

I'm a 49 yr old teacher who has had RLS since before I was 10 yrs. old.

and about 18 months

> ago I accidentally discovered some simple exercises that relieved my

> symptoms,

I do leg lifts while lying on my side which helps while I'm waiting for

the meds to kick in.

which are, admittedly, mild. In investigating whether or not

> this had been reported in the medical literature, I found that it had

> not. In addition, I found that the current concepts of causation were

> that it was inherited, and that it was due to brain, spinal cord, or

> spinal abnormalities.

My mother had it and my two boys have it, 14 and 15 yrs. old. I had two

lumbar spinal surgeries in my 20's which made the RLS worse.

I knew that I did not have any of these and that

> no neurological problem could be relieved by 15 minutes of low grade

> exercise. I have spent the last 18 months reviewing and analyzing 190

> articles from the medical literature from the original article of the

> Swedish neurologist, Ekbom, in 1945 through the present time. The

> clinical studies do not support the current theories of neurological

> causation

I think our fellow group members will support me in saying that if you

study this group and the supplemental URL's you will find several areas

that support the onset of RLS, including neurological

but do support the principles of Ekbom that RLS is primarily a

> vascular problem.

> I don't want to impose myself on the group, but, without trying to

> be offensive, it is obvious that many of you have very little knowledge

> of the multiple previous studies that have been done.Please let me know

> if you don't want me to stay in the group.

> Below is a summary of some of the arguments against a neurological

> origin.

> Reasons why restless legs is not of neurological origin, but

> vascular

>

> Some people are relieved by vasodilators

Not me

> Stopping vasodilators makes the symptoms worse

> Giving vasoconstrictors makes the symptoms worse.

> A reduction in physical activity relieves symptoms overnight in many

Physical activity tires me out and the RLS is not as bad when I am tired

> Pregnant women who are put on bed rest in the third trimester usually

> get relief

Whoa! This one I really have to argue on. I had some of the worse RLS of

my life during both pregnancies and didn't have

any relief during either pregnancy. Relief only came when I slept due to

exhaustion after the babies came!

> After delivery, 94 of 97 women obtained complete relief most in 10

> days

Not I

> At least 15% of sufferers have spontaneous remissions, frequently of a

> month or more.

My RLS has only become gradually worse and there have been no spontaneous

remissions at all

> When symptoms occur, physical activity usually gives temporary relief.

True for me

>

> Symptoms can be improved by a long-term exercise program

Don't know for me, as I'm like Garfield. I don't do much exercise. My

exercise is standing up in front of a class and walking all over my campus

fixing computers.

> People frequently get the onset of symptoms after a sub-total

> gastrectomy

Never had one of those, thank God

> Symptoms are made worse by alcohol, and smoking and relieved by stopping

Alcohol calms my RLS, however, I am not a drinker, rarely having a

drink--maybe every 4 or 5 months

> smoking and reducing the alcoholic intake.

I don't smoke.

> Symptoms are made worse by varicose veins, vasoconstriction, and venous

> insufficiency.

I don't have vericose veins, nor did my mother and hopefully my boys never

will

> Symptoms are made worse by and can be caused by caffeine, and improve

> when the caffeine is stopped.

Caffeine after 4 p.m. in any form just keeps me wide awake until the wee

hours

> People with mild restless legs get symptoms only after strenuous

> exercise.

Exercise helps mine

> Symptoms are worse after a physically tiring day

I sleep better after a hard day at school--RLS is not as bad

> RLS is associated with microemboli to the lungs and to the legs

Not in my case that I am aware of

> Why does iron deficiency anemia make the symptoms worse in some people

> but 75% of people with iron deficiency do not have RLS

Iron supplements sometimes relieve my RLS as do Vitamin E, Amino Acids,

Calcium, magnesium, and potassium

Lindy B. in Southeast Texas

> M. Meadows, M.D.

>

>

>

>

> ------------------------------------------------------------------------

> Are you hogging all the fun?

> http://www.ONElist.com

> Friends tell friends about ONElist!

> ------------------------------------------------------------------------

> This forum is for support only. The information posted to this List is

for support purposes

> and is not intended to replace the examination, diagnosis and treatment

of a licensed

> physician and no such claims are inferred.

[Guest guest]

Dear Dr. Meadows,

I have had RLS since very early childhood and it does

run in my family (whether or not this means it is

inherited is still of course open to question). My

father knew all about simple isometric type exercises

that would help alleviate mild RLS 50 years ago and

they worked for me when my RLS was mild or perhaps

when I was young and believed they would because my

father told me they would (maybe it has a

psychological cause).

My RLS decreased in severity and frequency when I

hit puberty (maybe it has a hormonal cause) only to

reappear in more recent years with far more intensity.

The exercises I used to use have no effect on my RLS

today although I sometimes still use them while I am

waiting for my Sinimet/Mirapex to kick in (maybe in

involves a neurotransmitter since these meds

definitely help people) but that is I think mainly a

way of continuning to move. The meds work whether I

do the exercises or not.

Like a lot of people with RLS, exercise in general

increases my symptoms (maybe RLS is caused by lactic

acid build-up with muscle exertion).

My RLS got worse as my rheumatoid arthritis worsened

- perhaps it has an immunological component.

Personally, I welcome you to our group - I do not

care if you are a doctor or not - I have found that

most doctors don't even know what RLS is much less

have any expertise in treating it. I respect your

medical knowledge and the research efforts you have

made with re to RLS and I'm sure that we can learn

from you as you can learn from us. Although I am not

a physician, I am a scientist and have worked in

medical research (including neurochemistry,

endocrinology, immunology, genetics, pharmacology and

even circulatory disorders) and my guess (at least in

my case) is that my RLS is is primarily a neurological

condtion - which is probably exacerbated by my

arthritis and other medical conditions, which could

very well include cirulatory problems of some kind.

People in my family live to a ripe old age - both

sides - they all pretty much go nuts (one way or the

other) and then most die from strokes!

The only thing that bothered me about your opening

message was that you seem to be dogmatic re the cause

of RLS - you seem to be saying you know the cause of

RLS. You may be right, you may be wrong - you may

have a piece of the puzzle or the cause of some

people's RLS. My personal hunch is that there is no

single cause of RLS that applies to all people and to

all symptoms.

I certainly think you should stay in the group if

you want to exchange ideas and be there (like we are)

for others who struggle with RLS - this is a support

group - that's what we are about

Jane hickorywind_98@...>

_________________________________________________________