Re: Just to say Hi! - Types

[Guest guest]

Welcome to the group, Sherry.

How is your son affected? Feet? Hands? Mobility?

There is a teen email support group, too.

We have other Canadians, too. Which part do you call home?

<< I have a sixteen year old son that they just said has CMT. It has been

hard.The doctor is not sure what type we have. He did some tests here and it

came out that we did not have type 1, type 2 or type 3, so if anybody knows

about any of the other types. I would like as much information as I can get

thank-you. >>

Here are some web sites. There are many types.

http://tor-pw1.netcom.ca/~dgosling/cmt/types.html

http://www2.mc.duke.edu/depts/medicine/medgen/cmt.html

http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html#ra

What tests did he use to determine that?

Kat in Seattle

[Guest guest]

Welcome to the group, Sherry.

How is your son affected? Feet? Hands? Mobility?

There is a teen email support group, too.

We have other Canadians, too. Which part do you call home?

<< I have a sixteen year old son that they just said has CMT. It has been

hard.The doctor is not sure what type we have. He did some tests here and it

came out that we did not have type 1, type 2 or type 3, so if anybody knows

about any of the other types. I would like as much information as I can get

thank-you. >>

Here are some web sites. There are many types.

http://tor-pw1.netcom.ca/~dgosling/cmt/types.html

http://www2.mc.duke.edu/depts/medicine/medgen/cmt.html

http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html#ra

What tests did he use to determine that?

Kat in Seattle

[Guest guest]

Welcome to the group, Sherry.

How is your son affected? Feet? Hands? Mobility?

There is a teen email support group, too.

We have other Canadians, too. Which part do you call home?

<< I have a sixteen year old son that they just said has CMT. It has been

hard.The doctor is not sure what type we have. He did some tests here and it

came out that we did not have type 1, type 2 or type 3, so if anybody knows

about any of the other types. I would like as much information as I can get

thank-you. >>

Here are some web sites. There are many types.

http://tor-pw1.netcom.ca/~dgosling/cmt/types.html

http://www2.mc.duke.edu/depts/medicine/medgen/cmt.html

http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html#ra

What tests did he use to determine that?

Kat in Seattle

[Guest guest]

To Katheen:

I would like thank-you very much for the information. I will look

the web sites up.

My son is affected in his feet. He walks on the side of this

left foot.They have said he can wear AFO's to help him to flatten his

foot, but being a sixteen year old he said he will not wear it.

The doctor has done blood tests and an EMG.The doctor has sent

our blood some place else to see if they can say what type we have.

I live in Cambridge,Ontario,Canada.

Again thank-you very much. Sherry

> Welcome to the group, Sherry.

> How is your son affected? Feet? Hands? Mobility?

> There is a teen email support group, too.

> We have other Canadians, too. Which part do you call home?

>

> In a message dated 5/11/00 9:59:31 PM, mguitar@e... writes:

>

> << I have a sixteen year old son that they just said has CMT. It

has been

> hard.The doctor is not sure what type we have. He did some tests

here and it

> came out that we did not have type 1, type 2 or type 3, so if

anybody knows

> about any of the other types. I would like as much information as I

can get

> thank-you. >>

>

> Here are some web sites. There are many types.

>

> http://tor-pw1.netcom.ca/~dgosling/cmt/types.html

>

> http://www2.mc.duke.edu/depts/medicine/medgen/cmt.html

>

> http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html#ra

>

> What tests did he use to determine that?

>

> Kat in Seattle

[Guest guest]

To Katheen:

I would like thank-you very much for the information. I will look

the web sites up.

My son is affected in his feet. He walks on the side of this

left foot.They have said he can wear AFO's to help him to flatten his

foot, but being a sixteen year old he said he will not wear it.

The doctor has done blood tests and an EMG.The doctor has sent

our blood some place else to see if they can say what type we have.

I live in Cambridge,Ontario,Canada.

Again thank-you very much. Sherry

> Welcome to the group, Sherry.

> How is your son affected? Feet? Hands? Mobility?

> There is a teen email support group, too.

> We have other Canadians, too. Which part do you call home?

>

> In a message dated 5/11/00 9:59:31 PM, mguitar@e... writes:

>

> << I have a sixteen year old son that they just said has CMT. It

has been

> hard.The doctor is not sure what type we have. He did some tests

here and it

> came out that we did not have type 1, type 2 or type 3, so if

anybody knows

> about any of the other types. I would like as much information as I

can get

> thank-you. >>

>

> Here are some web sites. There are many types.

>

> http://tor-pw1.netcom.ca/~dgosling/cmt/types.html

>

> http://www2.mc.duke.edu/depts/medicine/medgen/cmt.html

>

> http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html#ra

>

> What tests did he use to determine that?

>

> Kat in Seattle

[Guest guest]

maybe your son can be helped with a podiatrist, and lifts in his shoes

mguitar@... wrote:

To Katheen:

I would like thank-you very much for the information. I will look

the web sites up.

My son is affected in his feet. He walks on the side of this

left foot.They have said he can wear AFO's to help him to flatten his

foot, but being a sixteen year old he said he will not wear it.

The doctor has done blood tests and an EMG.The doctor has sent

our blood some place else to see if they can say what type we have.

I live in Cambridge,Ontario,Canada.

Again thank-you very much. Sherry

> Welcome to the group, Sherry.

> How is your son affected? Feet? Hands? Mobility?

> There is a teen email support group, too.

> We have other Canadians, too. Which part do you call home?

>

> In a message dated 5/11/00 9:59:31 PM, mguitar@e... writes:

>

> << I have a sixteen year old son that they just said has CMT. It

has been

> hard.The doctor is not sure what type we have. He did some tests

here and it

> came out that we did not have type 1, type 2 or type 3, so if

anybody knows

> about any of the other types. I would like as much information as I

can get

> thank-you. >>

>

> Here are some web sites. There are many types.

>

> http://tor-pw1.netcom.ca/~dgosling/cmt/types.html

>

> http://www2.mc.duke.edu/depts/medicine/medgen/cmt.html

>

> http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html#ra

>

> What tests did he use to determine that?

>

> Kat in Seattle

---------------------------------

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[Guest guest]

maybe your son can be helped with a podiatrist, and lifts in his shoes

mguitar@... wrote:

To Katheen:

I would like thank-you very much for the information. I will look

the web sites up.

My son is affected in his feet. He walks on the side of this

left foot.They have said he can wear AFO's to help him to flatten his

foot, but being a sixteen year old he said he will not wear it.

The doctor has done blood tests and an EMG.The doctor has sent

our blood some place else to see if they can say what type we have.

I live in Cambridge,Ontario,Canada.

Again thank-you very much. Sherry

> Welcome to the group, Sherry.

> How is your son affected? Feet? Hands? Mobility?

> There is a teen email support group, too.

> We have other Canadians, too. Which part do you call home?

>

> In a message dated 5/11/00 9:59:31 PM, mguitar@e... writes:

>

> << I have a sixteen year old son that they just said has CMT. It

has been

> hard.The doctor is not sure what type we have. He did some tests

here and it

> came out that we did not have type 1, type 2 or type 3, so if

anybody knows

> about any of the other types. I would like as much information as I

can get

> thank-you. >>

>

> Here are some web sites. There are many types.

>

> http://tor-pw1.netcom.ca/~dgosling/cmt/types.html

>

> http://www2.mc.duke.edu/depts/medicine/medgen/cmt.html

>

> http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html#ra

>

> What tests did he use to determine that?

>

> Kat in Seattle

---------------------------------

border= " 0 "

alt= " Do you love your Mother? Send her flowers NOW!! "

src= " http://adimg.egroups.com/img/4105/10/_/616793/_/958133153/cc_mother_468x60.\

gif " >Do you love your Mom? Send her flowers NOW !!

---------------------------------

[Guest guest]

maybe your son can be helped with a podiatrist, and lifts in his shoes

mguitar@... wrote:

To Katheen:

I would like thank-you very much for the information. I will look

the web sites up.

My son is affected in his feet. He walks on the side of this

left foot.They have said he can wear AFO's to help him to flatten his

foot, but being a sixteen year old he said he will not wear it.

The doctor has done blood tests and an EMG.The doctor has sent

our blood some place else to see if they can say what type we have.

I live in Cambridge,Ontario,Canada.

Again thank-you very much. Sherry

> Welcome to the group, Sherry.

> How is your son affected? Feet? Hands? Mobility?

> There is a teen email support group, too.

> We have other Canadians, too. Which part do you call home?

>

> In a message dated 5/11/00 9:59:31 PM, mguitar@e... writes:

>

> << I have a sixteen year old son that they just said has CMT. It

has been

> hard.The doctor is not sure what type we have. He did some tests

here and it

> came out that we did not have type 1, type 2 or type 3, so if

anybody knows

> about any of the other types. I would like as much information as I

can get

> thank-you. >>

>

> Here are some web sites. There are many types.

>

> http://tor-pw1.netcom.ca/~dgosling/cmt/types.html

>

> http://www2.mc.duke.edu/depts/medicine/medgen/cmt.html

>

> http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html#ra

>

> What tests did he use to determine that?

>

> Kat in Seattle

---------------------------------

border= " 0 "

alt= " Do you love your Mother? Send her flowers NOW!! "

src= " http://adimg.egroups.com/img/4105/10/_/616793/_/958133153/cc_mother_468x60.\

gif " >Do you love your Mom? Send her flowers NOW !!

---------------------------------

[Guest guest]

In a message dated 5/12/2000 5:06:43 AM Pacific Daylight Time,

mguitar@... writes:

<< They have said he can wear AFO's to help him to flatten his

foot, but being a sixteen year old he said he will not wear it. >>

See if he will get a pair of AFOs even if he won't wear them. Spencer said

he would not wear them and now that he has them he go anywhere without them

on.