Re: Juli

[Guest guest]

Welcome Juli,

I had good luck printing some of the information from the various sites, like,

Jodi's site and the So. Cal web site. I printed the information about

medications out, and my general practitioner put me on Mirapex, which is great

for me. Some people have gone through sleep studies and neurologist's.

I think I got lucky with my Doctor, but make no mistake, I am a well informed

consumer. I printed out some info for him, and put it in some folders, for

any future patients that are suffering. He really appreciated it. Hope this

helps.

As most of you know, I live in Malibu, and today, we released six rescued seal

lions back into the ocean, fully healed. It felt so good! Sweet Dreams,

Elaine, Malibu

[Guest guest]

Hi Juli,

I'm Kim and I live in Alberta, Canada. I've had rls for as long as I can

remember. I started with my GP which was no help. Then I finally got into

a sleep clinic where they used me as a Guinea pig for a textbook study.

After the study was done they said I has rls and plm, and that was

basically it. He said that they could put me on some meds, the same ones

used for Parkinson's but was not recommended because of the side effects.

Went back to my GP where she put me on Baclofen (Lioresal), this helped a

lot but by now I had bad insomnia and was on Sleeping pills everynight. I

then went to a sleep specialist, and this helped me greatly. I take

nothing now. The nights when my legs and arms act up I take IBprofen. I

found that by getting off everything (very hard to do). I feel better now

that I have in years. I just have to see how long it lasts. When my rls

act up they are bad and for days on end. I seem to only get it now in my

left arm and leg, does this happen to anyone else? I notice during the day

that my muscles twitch a lot more. Maybe they are too pooped out at night

from all the daytime rls

KimB