Re: CMT & EMG

[Guest guest]

<< the nerve conduction studies and EMG, alone, are not definitive tests of

CMT.

Clinical observations are a very important compliment to a diagnosis. Testing

of reflexes, symmetry of face, occular movements, and blood work are

important for ruling out other neuromuscular disorders. Even when all of

these are done, I think that certain types of Spinal Muscular Atrophy present

on EMG and NCS the same as CMT. >>

Very well said, in my humble opinion. I know of a few people who have been

trying to get a final diagnosis for years, and still don't have one, even

though their EMG and the other tests seem to indicate CMT. One other factor

that helps with diagnosis is family history. Some folks are given an MRI to

figure out if the problem is with the CNS or the PNS (central or peripheral

nervous systems).

The human body is very complex. I have met people who have CMT plus

Parkinsons Disease, and CMT plus Multiple Sclerosis, which means their entire

nervous system is faulty, peripheral and central nervous system. It's hard

for me to imagine.

Very best of luck to everyone who is having surgery!

Kat in Seattle