Guest guest Posted April 29, 2000 Report Share Posted April 29, 2000 Hi Joyce, Neurontin seems to work best on the electrical type of nerve pain. It completely stopped mine.These were 'shocks/jolts pulsating through my entire body when I was at rest. I don't know about burning or frostbitten feelings as I don't have them. Neurontin also has given me renewed energy plus other good things. I am still tired at night, but then so is the rest of the world who put in a full day. One way to 'test' to see if the Neurontin is 'working' or not is to stop taking it, but one needs to slowly decrease the dosage over a period of time and be supervised by doctor. There havn't been any research or studies on CMT and Neurontin. So those of it taking it 'off label' are 'test cases' ourselves. You might want to read some of the 1997, 1998 + 1999 Medline abstracts listed under our 'links' here at CMTUS. These might give you more insight into how Neurontin works in general and in other illnesses. I don't know how long you have been taking it, but 1/3 of the people (in general) are 'instant responders' - they feel the good effects within a few days. Another 1/3 of the people require several months - 4-6 to feel the effects, and another 1/3 do not receive any benefits from it. It's not a perfect medication, but it does help many with a variety of illnesses. Gretchen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.