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Welcome Marco, I am of German origin/ancestry, and am ashamed to say I

can only read the language, not speak it. I'm happy you found us! I had

many wrong diagnoses too. The first and the last were CMT, I had every

other diagnosis in between - all over a period of 37 years. I am now 47.

I used to play badminton too! And have always loved my bike - the latest

one is a Trek Mountainbike. You wrote a wonderful introduction, don't

worry about writing or spelling or anything. (and that goes for everyone

of our 'global' members too!)

Gretchen in California

jentges@... wrote:

>

> I am a 25 years old german guy. While searching for information about

> CMT I found this website. By this way, I want try to get some contact

> with other german people with CMT.

> Unfortunatly CMT in germany is not as popular as in the US. I havn't

> found any homepages of CMT persons in german language yet.

> Nevertheless it is very important for me, to meet some people to

> share

> some experience about this topic and how to live with CMT. Because of

> the fact that this kind of illness isn't well known here, the

> first diagnosises of several doctors in my case were wrong. I

> remarked

> the first symptoms of CMT at the age of 12 because I was not able to

> use roller blades. Seven years later a doctor found out, that it is

> CMT.

> I think in the last years I learned to accept my CMT desease and I

> also learned a CMT handycap isn't the mayor thing of live and most

> activities are also possible. I am very sportive: Riding mountainbike

> and playing badminton are my most favorite sport activities.

>

> I hope that you have got some impressions of me now and do not

> hesitate to contact me, even if you are not living in my

> neighbourhood

> ;-)

> (I hope that the context of my sentences is quite correct.

> Unfortunatly I haven't found my dictionary.)

>

> Marco

>

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>

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