Guest guest Posted January 20, 2000 Report Share Posted January 20, 2000 Hello again! Will thank you all for sharing your ideas and experiences. By reading your messages about loosing wheigt, trying vitamines, light exercise etc you realize there is a lot of things you can do to improve yourself. I think many doctors should read this stuff and stopp saying to new " CMT:ers " " There is nothing to do about the CMT " . I think they cause so much damage by having that attitude. Ruth: Sorry about the food you cooked which you dropped. I use to say " Even if my home mostly is in such a mess at least my kichen floor must be the most cleanest one in the area " . Thats of caurse because I have to wipe it off every time I cook. There is always something I drop; potatos, tools etc. Barbara, Mark etc: Thank you for the advices. No, we havn´t done DNA tests. I spoke to the doctor today and he said that the DNA tests according to CMT still was done only for scientific -reasons, not for regular use on patients. I have understand that they quite often do DNA tests in US. I don´t know here what to believe. Are your DNA tests to " wide " , not saying so much as our doctor wants them to do or isn´t he just " up to date " ? If anybody else from Europe reads this: what do they say about DNA tests in your country? About vomiting: my doctor told me that he just recently had visited a European conferens about for example CMT. One of the most wellknown neuro. in Europe, a female one from the Netherlands, was asked about four times from different participants about the possibilty that CMT patients could arise the same problems from the stomach like my son (they probably had experiences from those problems). I think the reason would be that even the autonomic nervous system could be effected. Well the neuro could only say: " we just don´t know yet. " Well my son is now going to test a med. called Prepulsid (in Swedish at least) if the problems are caused by a too slow emptying of the intestines and stomach (caused by the eventually effected autonomic system). I think diabetics can arise the same problems here. Have a good time, Rosis from Sweden Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.