Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 In a message dated 5/12/00 3:08:46 PM Central Daylight Time, ann9055@... writes: << it breaks my heart everyday to see him struggle... >> Hi Tana-- Bud here-- There is no way I can express the grief that a parent has when we find out that our children have CMT. We do what we can, hope a lot and pray that it won't happen, I'm sure manytimes we cry in the night. I keep hoping that we will be the last generation to be afflicted and there will be perhaps some way to at least slow the progress of the disease, if not cure it entirely. I had an aunt who had no visible symptoms at all, but now her great granddaughter, age 7, has been diagnosed with it. Most of our affected people show symptoms as late as the middle '40s, but as for me, it was becoming evident when I was about 8, in my feet. The arches became so high that in HS, I wore " tennis shoes " made from rubber & cloth. I was able to find a clinic whose doctors diagnosed " it, " but in the 1940s nothing was known as to different types. By now I'm in my 70s and retired from teaching and so I don't have to go out and slay a dragon everyday. My balance & my hands would not allow that now. There are many worthwhile things to life even with CMT, so try not to be discouraged. Bless you & your son, CMTer Bud in TX Quote Link to comment Share on other sites More sharing options...
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