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Group this is the last time you will have to make changes. Please do not

answer the questions now after I make final corrections it will be sent

out next week for your answers. Thank you again for your time. I am

hoping this will help us in a small way to find something to help us

cope. Please answer this week so I can complete the survey on time

Thank you again for your help

Rodney 65 NEPA

1 Name

2 Age

3 Age at first symptoms of RLS

4 Age when diagnosed with RLS

5 Who diagnosed RLS a doctor or yourself

6 How many doctors did you see before you were diagnosed with RLS

7 Do the doctors know enough or very little about RLS

8 Based on a scale of 1 (least) to 10 (best) how well does your doctor

deal

with you

9 Were your first treatments effective

10 Approximately how many medications have you tried

11 Did any work well

12 Is it still working

13 Are you still on this medication

14 What are you taking now

15 What worked best

16 Based on a scale of 1 (least) to 10 (best) how well does this work

for you

17 Do you use non prescription treatment

18 Does this work for you

19 Based on a scale of 1 (least) to 10 (best) how well does this work

for you

20 What are you taking

21 Have you tried a combination of medications

22 Does anyone else in your immediate family have RLS

23 What are their relation to you

24 What parts of your body are bothered most

25 What parts of your body are bothered least

26 Did you have any trauma before your RLS: i.e. operation, accident

27 Do you have pain with your RLS

28 Does your medication relieve your pain and RLS

29 (Female) Did you have RLS during pregnancy

30 (Female) Did it stay

31 (Female) Does your menstrual cycle effect your RLS

32 Have you found an exercise that helps

33 How long does it help

34 Is there any thing that you have used that is still working

35 How much faith do you put into what other people are taking

36 Do you follow your doctors orders faithfully

37 Do you experiment with combinations of medication

38 Are you depressed

39 How often

40 Would you use a experimental drug

41 Would you use a specialized diet

42 Can you see your self living with this the rest of your life

43 Would you support research for RLS

44 Do you drink socially or every day

45 Do you drink a lot of coffee

46 Do you smoke and how much

47 Do you consider your self over weight

48 Do you take medication for other problems

49 Did you change your life style after RLS how drastic

50 Have you ever had chicken pox

51 Have you ever shingles

52 When you have a acute illness is RLS better or worse

53 How important is the support group to you

54 Would you be willing to participate in medical trials

55 Describe your quality of life

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