RLS and time of day

[Guest guest]

Jack asked: i almost always twitch and spasm and am

most uncomfortable at almost this exact time every evening..........is this

typical of most of us and why do you think this happens???

----------------------------------------------------------

Long, long time ago I used to get RLS only in bed or at movies - or places

like that where I had to sit for long periods of time.

Later, I had it all the timey - used to wake me up in the mornings - and I'd

have it all day. (and of course all night)

Now I notice that while I usually don't get it until I get in bed at night,

occasionally it does hit at other times - and it seems to be cyclical for

instance the past 3 days I have had it first thing in the morning - but not

at night (until last night - then I did have a recurrance at night)

Other times I'll get it earlier in the evening - say at 8:00 - but again, it

is cyclical - I'll get it at the same time for a few days....

Why this happens: I wish I knew.

This beast has been bugging me for longer than I can remember.....

My worst attacks were -

- a t my first Broadway play when I was 9. I had to go stand in the back -

my mother told me it was cause I was excited. NOT! (For many years after

that I saw movies only standing in the back)

- at a concert when I was 15 - I was with my sister and we were in the last

row - against the wall - furthest seat from the aisle - now if I can't get an

aisle seat - I don't go)

- in highschool at a meeting for being class rep after graduation. Some

woman was going on about how " we print wedding announcements, but not

engagement announcements ... " as I was digging my nails into my leg to try to

make that pain worse than the RLS sensation - and trying to do isometric

exercises without anyone noticing and thinking GET ME OUT OF HERE - I HAVE TO

MOVE

- on a flight from Salt Lake City to New York - and I had I miscounted my

meds - had plenty waiting at home - but none for the flight -- I thought I

would die - The stewardess kept yelling at me - I was sitting on my legs

trying to make them numb. This was perhaps the worst of all.

I've had it just about every day of my life - some days/months/years even

worse than others - but these incidents really stick out. (Well, I did have

about a year-long remission when I was on Depakote - but had to stop that

because of side effects)

Just now waiting for the Darvon to kick in (so I can stop kicking - lol)

Thanks for listening

44 NY