Guest guest Posted May 11, 1999 Report Share Posted May 11, 1999 -> > >---------- >> >> > >> > > >_______________________________________________________________________ ________ >_______________________________________________________________________ ________ > > >_______________________________________________________________________ ________ >_______________________________________________________________________ ________ > > >> >Dear Greg Yes animals walking on bed. I have often thougth that my cat was walking on my bed and worse yet before a cat I had those strange sensation of some thing moving on my bed and had to shase scarey thoughts out of my head. I had no idea that my legs were moving so slightly that sensation was coming from my legs.My neurologist reported back to my doctor that I " have a substantial problem with leg movements and this should be first aspect of her sleep related disorderwhich is addressed. The Apneas and hypopneas is really minimal compared to other individuals with these problems.My leg movements were seen at a rate af 54.6 movements per hour. " And he said that " this patient has remarkably disruptive sleep cycle " . It always took me a very long time to fall asleep and I had to get up often. Before the sleep clinic results came out a PA told me to just stay in bed not to get up and I tried to tell him how hard that would be for me that I just thave to get up and move around.So now I am falling asleep and staying asleep most of the night with help of Klonopin. And when the cat does walk on the bed and want out I don't feel it my husband has to let him out and I never hear him get up . I hope you get relief Greg and thank you others for your storys of good results so far with this drug Klonopin. I am not advocating this drug for all.I am just so pleased to be sleepin gwell fo rth efirst time in my life even if it is just for awhile untill I can restore my body with some deep rest. It will help my whole out look on life and things. Sincerely yours Jeanie Stout > > > >_______________________________________________________________________ ________ >_______________________________________________________________________ ________ > >Message: 11 > Date: 10 May 1999 20:44:35 -0000 > From: LoneLt@... >Subject: RLS 1st Diagnosis > >Hello folks, my name is Greg and I have just been diagnosed with RLS. It does make sense that this may be causing my sleeping problems. I am usually awakened at night by what feels like my pets walking on my bed. But, after awakening I discover that it is not the pets it's me jumping and kicking. My legs feel like the muscles are contantly having to be moved in order to stretch them out of they continue to ache endlessly. Is this a symptom of RLS? At work my legs ache to the point that I have to get up and walk around before they stop hurting. Another symptom? I am very unfamiliar with this and have read some material on it that I have found on the Internet. This is all very helpful. My Doctor has begun a prescription of Simetec (sp) once before bed and then one after 2 to 3 hours if the problem persists. Has anyone else been started on this regimin and found that it just did not do the job? RIght now, I dread having to lay down and try to sleep. I know it will take be several > hours before I do slee > >Thank you.. >Greg > > >_______________________________________________________________________ ________ >_______________________________________________________________________ ________ > >Message: 12 > Date: Mon, 10 May 1999 18:18:48 EDT > From: SurSiliImp@... >Subject: Klonopin, Sinemet & Mirapex & check out Ferritin Level! > >Nat and Angie, > >Angie, ditto goes for you in checking out with lab work the things below. If >the .5 mg of Mirapex has not done the job, perhaps you should check with you >doctor on increasing the dosage to see if this would help. > >Nat, how much Sinemet are you taking a day? You could be among the 80%+ when >it goes over 200 mg that it produces augmentation or rebound during the >daytime or worsening of your symptoms so that taking other things to combat >this is not the solution -- the solution might be to switch to another drug >such as Mirapex. That is slowly decreasing the Sinemet while the Mirpex is >upped. > >Plus having your ferritin level and B-12 and folic acid levels checked. The >RLS docs at Hopkins, among the best, recommend for an RLS patient, that >their ferritin level be at least 50 although for others, the lab might report >12-150 is normal or some such depending on your age. About 20% to 25% of RLS >patients are too low on ferritin levels, a measure of the body's storage of >iron which is needed for the dopamine receptors to take up what there is >(many suspect a lot of RLS/PLMD patients are too low on dopamine). > >Many when the ferritin level comes up, my mother is one, there symptoms can >improve dramatically. Her RLS symptoms improved by 50% when her low levels >came up just a modest amount. > >These tests are not included in the normal panels such as SMAC and CBC that a >doctor typically orders; they must be ordered separately. To find out more, >check out Dr. Elaty's write up at: > >http://www.mlists.net/judson/Elaty.html > >Below is what Dr. Elaty, the Medical Advisor for the Central Florida RLS >Support Group has to say on Sinemet. > >Hope this helps! > >Barbara > >F. SINEMET (Carbidopa/Levodopa) >CAUTION! A recent study shows in 80%+, Sinemet can in time make your symptoms >worse; you might love the doctor who prescribes it at first only to perhaps >dislike him or her later! In doses 300 mg (Levodopa) a day or under, Sinemet >is less likely to cause augmentation or worsening of your symptoms during the >day. Protein can hamper the absorption of Sinemet. > >One should not eat protein for 45 minutes to 1 hour after taking Sinemet nor >two hours or more previously. A small amount food such as crackers or a >banana eaten when taking Sinemet might lower the chances of nausea. Also, >supplementation with B-6, antiseizure and antihypertenisve drugs, antacids, >valium, dalmane and xanax may cause undesirable drug interactions; consult >your physician. > > >_______________________________________________________________________ ________ >_______________________________________________________________________ ________ > >Message: 13 > Date: Mon, 10 May 1999 20:15:26 EDT > >Subject: reply > >To Nat Dean, >You asked about the DHA neuromins.............. I think only I and one >other person are taking them right now. I can buy them locally at a >health food store (Nature's Way brand, 60 softgels of 100 mg each.), or >send for them from Puritan's Pride, 1233 >Montauk Highway,PO BOx 9001, Oakdale, NY, 11769-9001. At our local >health food store the price is $19.90/bottle of 60. Through Puritan's >Pride, the price is $29.95 for that same 60!!!!!!!!!!! BUT, if you buy >one bottle, you get one free; buy two bottles get three free. So it's a >better deal. > >I wish you good luck with them. Hope they help you as much as they have >me. > >am, AZ > >___________________________________________________________________ >You don't need to buy Internet access to use free Internet e-mail. >Get completely free e-mail from Juno at http://www.juno.com/getjuno.html >or call Juno at (800) 654-JUNO [654-5866] > > >_______________________________________________________________________ ________ >_______________________________________________________________________ ________ > >Message: 14 > Date: Mon, 10 May 1999 17:31:39 -0700 (PDT) > >Subject: Re: reply > >am and all. >I'm also taking the neuromins, as of Saturday. Hoping, hoping, >hoping.........! >ne, 59, Lawrenceville, NJ > > > > >--- am Jannah mjannah@...> wrote: >> >> >> To Nat Dean, >> You asked about the DHA neuromins.............. I >> think only I and one >> other person are taking them right now. I can buy >> them locally at a >> health food store (Nature's Way brand, 60 softgels >> of 100 mg each.), or >> send for them from Puritan's Pride, 1233 >> Montauk Highway,PO BOx 9001, Oakdale, NY, >> 11769-9001. At our local >> health food store the price is $19.90/bottle of 60. >> Through Puritan's >> Pride, the price is $29.95 for that same >> 60!!!!!!!!!!! BUT, if you buy >> one bottle, you get one free; buy two bottles get >> three free. So it's a >> better deal. >> >> I wish you good luck with them. Hope they help you >> as much as they have >> me. >> >> am, AZ >> >> ___________________________________________________________________ >> You don't need to buy Internet access to use free >> Internet e-mail. >> Get completely free e-mail from Juno at >> http://www.juno.com/getjuno.html >> or call Juno at (800) 654-JUNO [654-5866] >> >> >----------------------------------------------------------------------- - >> ONElist: the best source for group communications. >> http://www.onelist.com >> Join a new list today! >> >----------------------------------------------------------------------- - >> This forum is for support only. The information >> posted to this List is for support purposes >> and is not intended to replace the examination, >> diagnosis and treatment of a licensed >> physician and no such claims are inferred. >> > >_________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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