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Re: Take Courage

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-- this is nne again. When I was about the same time out

on my surgery, I went through a really depressing period. I even

questioned whether I should have had the therapy. I think this is

normal and when I saw the doctor the next time, he was so pleased

with the way my foot was looking and healing, that his enthusiasm

perked me up and helped me over the hard part.

The fact that the recovery is such a long process really tries our

patience. I found that mine was not as good as I thought. The best

thing for me was to project in my mind what it will be like in six months

-- seeing me in regular shoes, walking without so much pain, falling

less, able to go places I might not have done before. Even if I don't

reach all these goals, thinking positively about the surgery and

outcome helped me get through the down times.

Just remember you have a lot of people here who care how you are

doing and are willing to listen and help whenever possible. Though I

don't respond a lot, I take courage from others sharing their

experiences. Even a little daily improvement, in retrospect how you

were at two weeks, four weeks, etc., begin to add up to major

improvement. Keep up your courage.

nne

Re: Tendon Transfer

>

>

>Hi Terry,

>

>my name is and I had done the transfer of the tibialis-posterior

tendon (th

>tendon of the muscle in the calf) and a achilles-tendon lengthening on both

feet in

>January this year. This surgery was done to make the pes cavus disappear

and to help

>me to lift up my feet again.

>Two days after the surgery I tried to stand up again but it didn' t work

because I

>hadn' t enough strength after the anaesthesia. On the fourth day I started

walking

>and after 14 days I could leave the hospital. The doctors told me that

probably I

>would be able to leave the hospital without crutches but for me it didn' t

work.

>I now have five scars on every foot but there were no stitches to betaken

away

>because they did a special kind of stitching. I also didn' t have a plast

and I was

>able to put weight on my feet immediately. The only big problem I had was a

lost of

>balance after the surgery and because of this walking out of the hospital

without

>crutches was not able.

>

>After the hospital I started with physiotherapy and lymphatic massage

(because of my

>swollen feet). But because of the lost balance learning how to walk is very

>difficult. I don' t need crutches but I have to hold on to somebody or

something.

>The surgery now was done 7 weeks ago and I progress very little every day.

But this

>seems to be normal as my doctor here told me because it is a " hard "

surgery. I hope

>that I will be able to go to work again in about 4 to 6 weeks.

>

>I don' t need afos after the surgery. I only need insoles for my shoes. My

feet look

>better now (no pes cavus anymore) and I am able to lift them up. The

doctors told me

>that in six month I will be able to walk again in a more secure way than

before. And

>I hope this statement of the doctors is right :-)

>

>Best wishes,

>

>

>

>

>>

>>

>> I am due to have a tendon transfer in about two months. My right ankle

provides

>> me with no support and I walk on the outerportion of my foot. I was

fitted with

>> a hinged brace on the right foot and have worn the hinged brace for about

1 yr.

>> or so. This kind of worked for awhile,

>> but I notice more and more that the foot is turning more outward. I

can't wear

>> ANYTHING except a sneaker, and even then it has to be just the right

sneaker.

>> After I have worn them for awhile they seem to stretch out and I keep

retying

>> the laces to make them as tight around the ankle as possible, for this

makes it

>> easier for me to walk, given the fact that the right ankle gives me NO su

pport.

>>

>> After this tendon transfer, I was told I might not need a splint on the

right

>> foot, then again I might. My foot is going to be flatter, my foot drop

>> improved, my toes will be less curled, for the orthopedic dr. is going to

do a

>> few other corrections, on the conservative side due to my age (51). I am

trying

>> to find out what experiences other CMT patients have had with this

surgery and

>> was a big improvement noticed? What if any down sides are there to this

surgery?

>> Is there anyone out there who has had tendon transfer and found they did

not

>> need to wear a splint? I was told I still might need a splint, just a

different

>> kind. Would this ToeOFF splint work? I now have the plastic AFO's,

regular on

>> the left because this foot has foot drop, but the ankle is still strong,

thank

>> god for that. Just dealing with the problems of one really bad foot is

enough.

>>

>> Any input from others would be greatly appreciated.

>>

>> Thanks,

>>

>> Terry

>> littlet@...

>>

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>>

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