pain, venting

January 28, 2000

alisha here,

after reading the posts on pain i decided to put my two cents in. i have

pain 24 hours a day, 7 days a week and 365 days a year. i was on

amitrypline(sp?) and gabapentin(sp?) for pain and they didn't seem to work

at all but maybe it was b/c i wasn't being monitored at all. so now i am on

no meds for pain but i would like to be b/c i just can't stand it.

also i would love to vent as well b/c maybe someone has an answer for me. i

have x-linked cmt and b/c of the way it works i am the only female in the

WHOLE FAMILY that has symptoms of cmt. neow the other people that have

symptoms are males. now my dad said that if mine was a new special strain of

cmt then some other female should have these symptoms as well! well i don't

thinks thats fair and i don't know how to answer. i am going to ask my neuro

in may when i see her about this.

i also get really cold hand and feet all the time and its not circulation

problems at all. i don't know why its happening. it just seems that when i

am going something on the computer my hands get really cold as well do my

feet. any insight???

" I am not crazy, I am just a teenager! "

ICQ # 47695812

for information on CMT go here

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January 30, 2000

Dear Alisha,

Can you discuss pain management with your doctor? If you aren't taking

anything your quality of life will be affected by the pain. I remember

being a teenager in pain. I can understand you. Get help. Talk to a family

doctor if that is available to you and go from there. Trust that you will

feel better and function better.

Your friend, Becca

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