Guest guest Posted May 2, 2000 Report Share Posted May 2, 2000 Becky, Kat, anyone else - do you know if the CMT 'balance problem' has anything to do with the 'inner ear' like other balance problems. Or, is ours directly related to proprioception or tripping? Has anyone come up with anything that helps balance - I know about physical therapy and some exercises, but just wondering if anything is new in this regard. Does anyone have anything positive they do that seems to help balance? I am well aware of watching where I am going, going slow and pacing myself, just wondering if there's more. Thanks for the help. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 --- KathleenLS@... wrote: > In a message dated 5/3/00 6:28:12 AM, bhmont@... > writes: > > << It isn't always easy to find a wall to steady > myself. >> > > I'm with you there. A wall, table, chair back, --- > Something!!!! Anything!!! > > My balance is deteriorating regardless of what I do. > Until about a year ago I > used to rescue worms after a rain, but I no longer > risk doing that. I have > the feeling I will tip all the way over if I lean > over, so I don't. I have > simple balance exercises, but they are getting > harder to do and they are NOT > improving my balance anyway. I bought my nice German > walking stick to use at > the zoo to cut down my risk of falling there. I > haven't fallen yet, anywhere, > and I dread the thought of doing it! I know falling > is a frequent event for > some CMTers, sad to say. I'm glad some of you can do > it with grace and humor. > I guess I need to train my hubby to do the Ta dah!!! > routine, just in case. > He would enjoy receiving the attention instead of > me. > > There may be some CMTers who are helped by various > exercises or whatever, but > I'm not one of them. What age a person is may make > some difference, but most > CMTers, even 20-30 year-olds, are way ahead of me > with symptoms so I wonder. > My mom didn't fall until she was in her 70s. > > Kat in Seattle > >Dear Kathleen, Sounds like you have a sence of humor. Are you serious about the worm catching? My husband always says " Are you alright " then he laughs-looks for anything that may have gotten in the way(ha,ha)and life goes on. Most of the time I just get up and keep walking like nothing ever happened. The real miracle is that I've never broken anything. I have drop toes and I have managed to step on my own toe when it goes up under my foot-you should see explaining that to the DR. I always avoid long walks without some kind of support. I'm 35 and my condition has gotten worse,but its been gradual,so I just deal with what comes. Keephanging in there-or on there. Kathy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Hi Kat Peggie here. Anybody can " trip " over something and fall..... and I have done that. However, my knee " pops out " on me.... and down I go. I have had both knees go out at the same time. Unless I am standing right next to something that I can grap ahold of in 100th of a second - I'm down on the ground/floor - whatever. Grass is a lot nicer to fall on then gravel..... I kind of think my knees pop out because of no muscles below the knee and maybe 25% above the knee. As I remember, you have 'regular' muscles below the knee, don't you? Maybe this is why you don't have falls? And of course, being careful and watching the ground/floor - as I would guess we all do!! Anyway, thought I would give you my little input! have a good one Re: balance question << It isn't always easy to find a wall to steady myself. >> I'm with you there. A wall, table, chair back, --- Something!!!! Anything!!! My balance is deteriorating regardless of what I do. Until about a year ago I used to rescue worms after a rain, but I no longer risk doing that. I have the feeling I will tip all the way over if I lean over, so I don't. I have simple balance exercises, but they are getting harder to do and they are NOT improving my balance anyway. I bought my nice German walking stick to use at the zoo to cut down my risk of falling there. I haven't fallen yet, anywhere, and I dread the thought of doing it! I know falling is a frequent event for some CMTers, sad to say. I'm glad some of you can do it with grace and humor. I guess I need to train my hubby to do the Ta dah!!! routine, just in case. He would enjoy receiving the attention instead of me. There may be some CMTers who are helped by various exercises or whatever, but I'm not one of them. What age a person is may make some difference, but most CMTers, even 20-30 year-olds, are way ahead of me with symptoms so I wonder. My mom didn't fall until she was in her 70s. Kat in Seattle ------------------------------------------------------------------------ Get paid for the stuff you know! Get answers for the stuff you don't. And get $10 to spend on the site! http://click.egroups.com/1/2200/7/_/616793/_/957365762/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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