RLS: ice on back

February 23, 1999

Dear Group,

I'd like to share a letter with you, that was written to me after this

person viewed my website. She isn't a member of the email group and

doesn't want to be at this time. I thought her letter had some interesting

ideas and thoughts, though, so I obtained her permission to share it and

leave her email address there, in case anyone has comments to give to her,

or more info to share.

Caution: Do not confuse her with in Holland. This lady is in

Phoenix, Az.

Jill

46, AZ,

To: gunzel@...>

Subject: RLS

Date: Tue, 23 Feb 1999 16:39:45 -0700

Hi,

I read your website while I was researching RLS. I was diagnosed with it

about six months ago, but I suffered with its symptoms for probably a year

before I even knew what to call it. My doctor prescribed Xanax, and I take

1/2 of a 0.25 mg tablet each night right before I go to bed. It seems to

work. I learned by reading web sites that caffeine exacerbates the

symptoms so I cut out tea, only decaf for me. I don't drink coffee or

alcohol so I am okay there.

I have discovered, though, that Coke does not seem to bother me, so maybe

it is not really the caffeine, or it is different caffeine.

Before I went to a doctor for my condition I was suffering a lot (as you

well know). One night last summer in desperation in the middle of the

night while trying to sleep on the couch (trying not to disturb my husband)

I put one of those ice gel packs wrapped in a paper towel on my lower back,

anchored between my skin and my underwear (it stays in place that way).

That seemed to help tremendously. It at least quieted the wigglies and

allowed me to get to sleep. So now whenever I have any 'breakthrough

wigglies " even on my medication, I head straight for the freezer and get

one of those gel packs.

, Phoenix

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