RLS: movies, meetings...Jane

[Guest guest]

Still one of the hardest places to use any " tricks " are in movies and

meetings..where you can't move around a lot or don't want to call attention

to yourself. Maybe it's a good time for a bunch of us to offer some tips

of things we've found that help. For example:

On airplanes...getting on LAST, taking aisle seats, using earphones and music

Movies...eating LOTS of popcorn just to stay busy, sucking on suckers,

aisle seats or leaving empty seats next to you....not sitting down until

the movie is ready to start (and the previews are over!)

Reading....sitting on vibrating or heating pads, rocking, suckers, earphones

Meetings....ehhhhh, just rip your hair out and look cross eyed. I think

that's the best tip we've come up with, to date.

Anyone else want to add to this? Go for it!!!! Just don't add unleaded to it!

Jill, 46

Payson, AZ

http://www.netzone.com/~gunzel/rls.html

[Guest guest]

Hi Jill,

I'm so happy that I joined this group. Everyone is so friendly.

Until I met you guys, I'd never talked to anyone, except my father and

a couple of physicians, who had ever heard of RLS. Most people I've

tried to explain it to (legs asleep - that kind of feeling - itching

sensation inside legs - bugs or something moving up and down inside

legs) think it's not a significant problem, it's just a restless

feeling like everyone gets. My ex-boyfriend got so irritated with me

when I would have to get up and walk or when I would keep shifting

around or rubbing my legs or making sure I had my Sinimet with me in

case I needed it. He really thought I was making a big deal of

nothing and disapproved of what he considered my dependence on drugs,

Mirapex in addition to Sinimet.

Thanks for the hints you gave me. I've tried the heating pad and it

does help some. I do leg stretches but it doesn't help very much.

The other day I was in a 3 hr meeting and I just had to leave ... I

kept moving my legs, shifting position, etc. and I was getting looks

from people. Then I was " reprimanded " for leaving after 1 1/2 hr. - I

had taken Sinimet before the meeting (I only had one with me since I'm

concerned about taking it in the daytime) ... I already take 3 to 4 at

night.

Anyhow, it is just so great to finally talk to people who know how

awful this thing can be and who believe me and understand. You can be

sure that if I find anything that helps me, I'll pass it on asap.

Nice to hear from you,

janegf@...

---Jill Gunzel wrote:

>

>

>

> Still one of the hardest places to use any " tricks " are in movies and

> meetings..where you can't move around a lot or don't want to call

attention

> to yourself. Maybe it's a good time for a bunch of us to offer some

tips

> of things we've found that help. For example:

> On airplanes...getting on LAST, taking aisle seats, using earphones

and music

> Movies...eating LOTS of popcorn just to stay busy, sucking on suckers,

> aisle seats or leaving empty seats next to you....not sitting down

until

> the movie is ready to start (and the previews are over!)

> Reading....sitting on vibrating or heating pads, rocking, suckers,

earphones

> Meetings....ehhhhh, just rip your hair out and look cross eyed. I

think

> that's the best tip we've come up with, to date.

>

> Anyone else want to add to this? Go for it!!!! Just don't add

unleaded to it!

>

>

> Jill, 46

> Payson, AZ

> http://www.netzone.com/~gunzel/rls.html

>

>

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