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Thank you so much, Steph,

It is true. The only thing that really gets me through, anything--not

just RLS--are these small reminders of the beauty in life. Feelings of

gratitude overwhelm and overtake any misfortune. Hard to explain how it

works.

I'm usually a lurker too. Mostly because my symptoms pale compared to

some of those here. I have been grateful for the information and

companionship in the wee hours. Last night I slept. Really slept. No

drugs, no rls, just blessed honest to goodness sleep. I pray for that

for all of you. I have learned to just get up in the night. Sometimes

grudgingly, sometimes not.

I am in Vail CO for the winter. Thought I came here to satisfy a long

held skiing jones. A variety of physical and emotional difficulties made

it apparent that skiing was a vehicle for getting my out here, away from

my " real life " so I could recognize and resolve some old issues. My RLS

really kicked in when I got on Paxil for depression. That led to my

taking sleeping pill--Ambien which made it worse, tranq.--Ativan not

strong enough, Halcion?? useless--thank the goddess considering the

warnings on the insert. I ended up with not only sleep deprivation but a

drug haze in my waking hours as well. Whew. I added alcohol to whole

regime despite the warnings----severe desperation---I know you can all

relate. I finally went cold turkey. It's been a tough go for weeks--but

last night was the pay off!!!

Right after I started on the Paxil and Ambien I went back to the

psychiatrist and said that this jumpy leg thing I have was gettting

worse and could it be the drugs. He, bless his soul, said " oh that's

Restless Leg Syndrome(which ultimately led me to you all) but I'm sure

there's no connection between that and the medicines " OH REALLY!!!!!! I

sent him a copy of the info from that Dr. with the support group in

Florida(Elaty?) when I wrote to tell him I had gone off the meds. To his

credit he was receptive and wrote back thanking me and enclosing a copy

of an article about permax.

Long story short --can't count on them knowing.

Two things: one--anyone else out there with thyroid problems? In the

midst of this whole mess another doc took some blood which showed very

low RBC's and VERY high TSH. Prescription???Different thyroid meds, iron

and B-12. I think that's what is kicking in for me. Not to mention

resolving some deep psychological issues.

two--and I hesitate to say this but hey soap, jelly

beans...what the heck. Before I knew what this was and was on my own

with the whole thing I found that having an orgasm helped. Unfortunately

the Paxil made that impossible. But now?.....ahhh ;~) Admittedly this

may be a ridiculous thought for you big time twitchers but for mild

cases...give it a try--can't hurt eh?

OK enough Happy Spring anyone try balancing an egg on its end ..today

is the day

Sharifa

smiling in Vail CO

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