Guest guest Posted March 21, 1999 Report Share Posted March 21, 1999 <<<< >>> Thank you so much, Steph, It is true. The only thing that really gets me through, anything--not just RLS--are these small reminders of the beauty in life. Feelings of gratitude overwhelm and overtake any misfortune. Hard to explain how it works. I'm usually a lurker too. Mostly because my symptoms pale compared to some of those here. I have been grateful for the information and companionship in the wee hours. Last night I slept. Really slept. No drugs, no rls, just blessed honest to goodness sleep. I pray for that for all of you. I have learned to just get up in the night. Sometimes grudgingly, sometimes not. I am in Vail CO for the winter. Thought I came here to satisfy a long held skiing jones. A variety of physical and emotional difficulties made it apparent that skiing was a vehicle for getting my out here, away from my " real life " so I could recognize and resolve some old issues. My RLS really kicked in when I got on Paxil for depression. That led to my taking sleeping pill--Ambien which made it worse, tranq.--Ativan not strong enough, Halcion?? useless--thank the goddess considering the warnings on the insert. I ended up with not only sleep deprivation but a drug haze in my waking hours as well. Whew. I added alcohol to whole regime despite the warnings----severe desperation---I know you can all relate. I finally went cold turkey. It's been a tough go for weeks--but last night was the pay off!!! Right after I started on the Paxil and Ambien I went back to the psychiatrist and said that this jumpy leg thing I have was gettting worse and could it be the drugs. He, bless his soul, said " oh that's Restless Leg Syndrome(which ultimately led me to you all) but I'm sure there's no connection between that and the medicines " OH REALLY!!!!!! I sent him a copy of the info from that Dr. with the support group in Florida(Elaty?) when I wrote to tell him I had gone off the meds. To his credit he was receptive and wrote back thanking me and enclosing a copy of an article about permax. Long story short --can't count on them knowing. Two things: one--anyone else out there with thyroid problems? In the midst of this whole mess another doc took some blood which showed very low RBC's and VERY high TSH. Prescription???Different thyroid meds, iron and B-12. I think that's what is kicking in for me. Not to mention resolving some deep psychological issues. two--and I hesitate to say this but hey soap, jelly beans...what the heck. Before I knew what this was and was on my own with the whole thing I found that having an orgasm helped. Unfortunately the Paxil made that impossible. But now?.....ahhh ;~) Admittedly this may be a ridiculous thought for you big time twitchers but for mild cases...give it a try--can't hurt eh? OK enough Happy Spring anyone try balancing an egg on its end ..today is the day Sharifa smiling in Vail CO Quote Link to comment Share on other sites More sharing options...
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