RLS 201

[Guest guest]

Subject sounds like a beginning class! Hi group. Well, I'm am amazing myself

at the number of times I have responded to a post in the past few days. I

wanted to respond a little to what you had to say Coco about the group

" descending on Dr. M. like a pack of wolves. " I think that's a little out of

proportion to what really happened with him. It is certainly true that when

we see something on the subject line we can choose to delete and sometimes I

thought that's what I would do but I realize that there really is too much to

learn from others in this group to do that, even from Dr. M. Personally, I

don't think we really have the power to " oust " this man. He unsubscribed of

his own free will and I feel that he has been rather rude to all of us as a

group and we have enough to contend with without dealing with this rudeness.

Perhaps I misunderstood what you were saying Coco and if so then I apologize.

I just feel this man had and seems still to have the opportunity to be more up

front with us about what's going on and a little more flexible in hearing us

out before running away. I don't think he's being quite up front and I am

more than willing to learn or listen to whatever new procedures may be out

there for us. TY for coming to our defense. I too feel that we are an

open-minded group of people and that there is not a " thinking blockage " going

on here. I am somewhat saddened that this man seems to have brought about so

much discord and I am not saying this to attack him. I just don't feel that

he has been very fair to any of us and we don't deserve that from anyone. I

too would like to welcome you JULI and am glad that you haven't found the

bickering in such poor taste that you felt you needed to leave. Sorry guys,

don't mean to be so long winded. Did want to let you all know that since my

last report of my blood tests re: liver abnormality the 2nd test was normal.

MD will do another in about a month to be positive. Also, have been recently

diagnosed w/fibromaylgia which I am learning is pretty common for RLSers.

Because of increased pain due to RLS and now fibro it has been determined that

I should enter the hospital (actually pain clinic) for some intense treatment.

Not positive when I'll be going. Probably sometime after the 10th of April so

I will be around for a while. Am feeling somewhat anxious about this since the

physiatrist who examined me didn't know what RLS/PLMD was. She wanted to stop

my meds but after speaking to Neuro realized that wasn't an option for her.

Contacted Foundation to have them send material to her, they were a little

surprised as well. Oh well, if nothing else this gives me an opportunity to

educate someone else about this malady. When I see length of this I think I

should start responding to individuals. Sorry. Good night all and be well.

Kathy/Cambridge