Guest guest Posted March 14, 1999 Report Share Posted March 14, 1999 Never knew there were so many people with RLS. Luckily or unluckily I have another, well two heritary disorders and received a booklet entitled " Brain Connections " . In there was the address for RLS Foundation. Have been having problems for years, since 30's. At that time was diagnosed as nocturnal myoclonus, which I still have but then progrossed to this other horrible creepy-crawly feeling. Walked all night, no sleep, only making everything else worse. Luckily my doctor knew what I had!! Happy day, or not, depending on how you look at it. My mother has had it forever, my grandmother, uncles and my sister is developing. No physician, but mine, had ever paid any attention to their symptoms. Gave brochure to my mother who took to her physician, we are both now on Sinemet. After first pill, sleep! How wonderful. I have been on Sinemet now for 9 months and how great it is. I know if I have forgotten to take a dose, my legs start creeping and then jumping. It was wonderful to find out I wasn't crazy and not imagining it. Just getting over flu so this is first post since I subscribed over a week ago. I have a LOT of emails to go through. AGain, it is very nice to know we are not alone. One last thing, I did find, as I believe others did, that ephedrine or pseudoephedrine as is now on markets, in antihistamines aggravates condition. Am not supposed to be taking anyway but sometimes just have to because of sinus problems. Does not occur so far while on Sinemet. Again, glad to be on board and know there are others out there. NOW, how to educate physicians!!! Ginger Quote Link to comment Share on other sites More sharing options...
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