Introduction Rose-Marie

[Guest guest]

Hello all CMT:ers all over the word!

Her´s a little introduction over me and my family who are living in Sweden

in the north of Europe. First: you have to excuse me when I´m spelling

wrong etc, I have only been learing english in school (have never been to

an english-talking country)(but Dimitrios, I´ve been to Greese twice on

wonderful hollidays in Korfu and Kos) and that were some years ago. I´m

glad I can read your messeges quit well (with just a little help from a

grammatic) but it´s more difficult to wright someting by myself.

Well, I`m soon 40 years old and have two sons; Pierre almost 13 years old

and Patric who is 8 years old. We have all CMT1. Me and Pierre got our

diagnose 1993, Patric a couple of years later. Pierre is the one who is

most effected by CMT, he has been operated twice in booth feet (with good

results as far as I can see), he walks very slow and clumsy. His hands is

also effected and he easy gets tired.

I´m the one who comes next in our family " effected-list " . I´m working

halftime for a handicap-organization called DHR which among many things is

working for better conditions for people with handicaps. I can walk by

myself but must rest several times during the day, have problems with my

hand and some pain. Patric is the less effected but have since three years

big troubles with his stomach; he feels sick almost every day and

sometimes he vomits, he has also pains in the stomack. The doctors can´t

find anything wrong with him (can this problems be related to CMT, what do

you think?).

I became very glad when i discovered all the informations and web-sites

about CMT over the internet. I have, for example, never met anyone else

with CMT except my family.

Greetings from Rose-Marie