Guest guest Posted May 4, 2000 Report Share Posted May 4, 2000 Neurologist have found that the drug ropinirole is a safe and effective treatment for restless legs syndrome go to http://www.pslgroup.com/dg/1cf0a6.htm to read about it. >Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 Does Restless Leg Syndrome coincide with CMT? When we first saw the neurologist for 's CMT we asked if he had any ideas for our sleeping arrangements, as I kick and toss so much in my sleep that can't sleep in the same bed (I kick his aching legs and feet - bad me!). The neurologist said I probably had RLS, but I haven't really had it formally checked out yet. can toss a bit on his own, so I think that would be a yucky coincidence, if we both had it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 Does Restless Leg Syndrome coincide with CMT? When we first saw the neurologist for 's CMT we asked if he had any ideas for our sleeping arrangements, as I kick and toss so much in my sleep that can't sleep in the same bed (I kick his aching legs and feet - bad me!). The neurologist said I probably had RLS, but I haven't really had it formally checked out yet. can toss a bit on his own, so I think that would be a yucky coincidence, if we both had it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 << Does Restless Leg Syndrome coincide with CMT? >> CMTers may have Restless Leg Syndrome, but people with Restless Leg Syndrome usually do NOT have CMT. Clear? Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 << Does Restless Leg Syndrome coincide with CMT? >> CMTers may have Restless Leg Syndrome, but people with Restless Leg Syndrome usually do NOT have CMT. Clear? Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2000 Report Share Posted July 22, 2000 , My toes curl specially on my left foot. During the day I have a soft sponge comb. Kind of like the ones that people use to paint their toenails. It keeps my toes streight, and they don't cramp. My hubby knows where to get these. He is not home now. If you are interested, I will ask him. How is Ella? oregonpapa@... wrote: Hey, thanks for the tip, Jeanie ... I'll try it tonight. --------------------------------- --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2000 Report Share Posted July 22, 2000 , My toes curl specially on my left foot. During the day I have a soft sponge comb. Kind of like the ones that people use to paint their toenails. It keeps my toes streight, and they don't cramp. My hubby knows where to get these. He is not home now. If you are interested, I will ask him. How is Ella? oregonpapa@... wrote: Hey, thanks for the tip, Jeanie ... I'll try it tonight. --------------------------------- --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 Restless Syndrome is more the need to move the legs rather than them doing there own jumps and twitches. I'm a bit more awake now. laurie > > Reply-To: > Date: Mon, 17 Jan 2005 08:56:13 -0600 > To: > > Subject: RE: restless leg syndrome > > Steve, Your analysis re RLS and myoclonus fits what I have seen in print and > heard from my docs. Which is that true RLS has a different etiology than > myoclonus, though both may present similarly to the layman's eye anyway. My > neurologist says mito-induced myoclonus is caused by metabolic changes in > the brain and does not originate in the muscle itself---unlike like the > twitches and fasciculations that can also occur in mito and other muscle > disorders. I haven't read a lot about RLS, but did do some reading a few > years back because my husband has it. My impression was that RLS is > considered benign (aside from interfering with sleep) and does not by itself > indicate any serious pathology, though it could certainly exist side by side > with other serious disorders. In contrast, myoclonus is usually associated > with a more serious underlying disorder of the brain. That's my take > gathered from various sources. > > > > B > > > > _____ > > From: Steve > Sent: Monday, January 17, 2005 3:28 AM > To: > Subject: restless leg syndrome > > > > * Just my own take here, on what may be two different " versions " of > RLS. Some > time ago when I was making my own mito dx (EVENTUALLY confirmed by docs) I > listed and then searched online for all my various symptoms. > > I have all my life sort of twitched or shaken my feet, especially when > trying to fall asleep but also at other times when sitting. When I was a > child my father called my frequent leg pains " growing pains " and I always > thought that my shaking was to somewhat minimize this ache/pain. Aspirin > helped me to fall asleep. > > My online search a few years ago turned up the term " restless leg syndrome " > which seemed to describe what I had. Both these online descriptions AND my > own experience is that this was basically voluntary, i.e. I could willfully > STOP it whenever I wanted, but for some reason it just HAPPENED when I > wasn't thinking about it. At any rate, a couple of online sources I just > reviewed link RLS to peripheral neuropathy (PN). BTW I NOW feel that my foot > shaking is somehow linked to my feet pains (PN) in that it seems to > alleviate the pain and lets me fall asleep. I also sometimes do this while > sitting; people sometimes have to ask me to stop vibrating my chair or the > table, which I don't notice that I'm doing. :-) > > Another data point of unknown relevance is that my son who has ADHD, used to > (when he was a child) do this same kind of shaking, of both his feet AND his > hands, when sitting or standing. He never could explain exactly WHY he did > it, but he could easily stop it for a time if asked to. I should add that I > had/have (undiagnosed, milder) ADHD since childhood, and that MY > foot-shaking began early on, long before any mito symptoms showed. > > , you seem to be saying that your version is entirely involuntary > and that you can't stop it by choice. I therefore understand that " my " RLS > is probably NOT what you are talking about, which is more along the line of > myoclonus, if I understand Laurie right. But I just thought I'd bring it up, > in case there's some confusion I could head off, especially regarding online > terminology. I hope I haven't ADDED to the confusion. > > Steve D. > > > > > > Quote Link to comment Share on other sites More sharing options...
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